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Biopsy scheduled Biopsy scheduled

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Unread 03-06-2004, 04:01 PM
Biopsy scheduled

I will be having another sigmoidocope biopsy to " rule out a recurrance" next Friday, and I guess it is good because when the shadow shows up on April scans the Doctor will know what he is dealing with.
".I am considering foregoing any more tests or scans, just leave my health in God's hands. This seems right for me at this time. Reasonable people don't take their temperature every morning to see if they are OK. The happy truth is, that except for the adhesion bowel and bladder problem, I feel great, have lot's of energy, easily walk at least three miles, each day, ski, roller blade etc. My physical problems are most likely the extensive adhesions that the surgeon saw and removed, but said would come back because "cutting always causes scars ( the humbling bane of surgeons". The symptoms have remained unchanged since August, which is what is exactly what adhesions do, and what cancer which grows, and spreads does not do.I will gladly see a Doctor if I develop a problem that can be helped by medical care and will gratefully undergo any procedure that would alleviate the bowel and bladder problems, if there is good chance of success, but wonder if this constant testing does more harm than good for me.
The tests leave my husband with either a false sense of security or false sense of alarm, depending on the results and there is a tendency to live from test to test, plan life around the latest test result. My father had a complete physical, got an excellent bill of health three days before he died.
In Nov 2002 the oncologist said my cancer was so wide spread that chemo if it worked at all would only shrink the tumors, not make them go away, and buy me about a year. 2 months later when the scan showed no trace of cancer and the same Dr., said " These things happen sometimes and can't be explained"!.Every test and procedure requires a new specialist and I don't think any of my Dr's communicate with each other.
No Dr has given me a pelvic exam since the exenteration and that seems wrong for someone with vaginal cancer. Some act as if I am its borrowed time and it's foolish to worry about osteoporosis and others.
. "If the cancer recurs we will know because I will die and if it doesn't recur I go on until I die of something else. I would rather live for 5 days glorifying Him each moment, then 30 years fending off disease. Sorry for venting so much.
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Unread 03-06-2004, 05:16 PM
Biopsy scheduled


Ain't it the truth. Iam not a Christian and so we don't share the definition of "him", but I am with you 1000%. As a Jew, I believe in miracles, but not so much that prayer influences them.

My goodness, ifyour body paid as much attention to the tests as the docs, you'd be a gonner by now.

My CA-125 has NEVER dropped into the normal range. Eventually (like after 2 years) I said - stop testing. I've had all the theraapy you can give me. I feel great. I racewalk 4 miles a day. If I drop, it will be for something other than this +++ dancer!

Unread 03-06-2004, 05:22 PM
Will be Praying

that this is something normal, noncancerous. I think you're right on the adhesions idea. We have had a whole spate of false alarms caused by adhesions on another of my boards. I hear other things you're saying and I'm pleased that you're comfortable saying them. Living test to test, wondering who communicates... We're with you so let us know the results. OK?
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Unread 03-06-2004, 05:35 PM
Biopsy scheduled

Hi Debbie,

I get a lot of what you are saying. I finished treatment in June 2003. I have had two 3 month checkups. Just about the time you start to feel like you are getting back into a normal routine and feel like something other than a patient, it is time for another checkup. Once again I am a cancer patient. The nerves start to flare up again. What if this time they do find cancer again? Etc.

That being said. The checkups are the best defense we have against this disease getting the best of us. So for myself (I know we are all different), I will continue to get the recommended checkups for the required five years. I just hope that the day comes that I can have a checkup without all the emotions coming back.

Oh that statement about not having a pelvic exam and pap smear does not sound right. My Gyn/Onc has done a pelvic and pap each time. I would look into that. Did you have a vaginectomy with your exenteration?

I hope the vent made you feel better! LOL!

Take Care
Unread 03-06-2004, 07:39 PM
Biopsy scheduled

Hi Debbie,

I also totally understand what you are saying. I laughed when you wrote about the temperature taking and it really is soo soo true.

My oncologist told me that she has a patient whose ca125 is way up high but all tests are normal. The womans reaction was the same as yours. She also agreed that as long as she feels wonderful, she is leaving everything else alone but will continue to see the doctor on a regular basis.

I am Jewish and like Dorrie, do believe in miracles!!

Be Well

Unread 03-06-2004, 08:26 PM
Biopsy scheduled

s Debbie

What an interesting thread!
I believe we all find our own pathway of coping. And need to honor and respect that in each other.
Debbie: I never want to see you completely turn your back on the medical system. But you certainly know what is best for you.
I will be hoping that the latest biopsy via the sigmoidoscope shows nothing unusual. And I am delighted that you are feeling so well.
My own belief is that there is one GOD. And we all follow different paths to find him. On my jouney with ovarian cancer I have met and befriended women of many faiths who share the diagnosis of gyn cancers. I know I have said soooo often that befriending these brave, gracious, courageous women has been the plus side of cancer for me.

Unread 03-06-2004, 11:37 PM
Biopsy scheduled


I think that we'll have to turn the "GOD SQUAD" over to your case too! I'm with you...I have long ago put my life into His Hands. Sometimes I forgot that I was not in charge, but I was clearly reminded last year when I went through my treatment. Now, I try not to worry about anything and allow myself to be guided. I must say that it drives my husband crazy that I don't worry about things, but it is very peaceful for me.

I hope and pray that you continue to defy the odds. We are very blessed to have you here.

S and ers
Unread 03-07-2004, 05:43 AM
Biopsy scheduled

I hope that biopsy shows not cancer cells. I understand your thoughts to stop testing and put yourself in God's hands.

I have been a nurse for 30 years, in my current practice, I have many hospice patients. I have seen miracles or devine guidances or whatever your name them. Faith is powerful I am Catholic but also believe in the one God but many paths theory like Kareann.

You will know to do what is right for you.

Ruth S

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