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What do you do when the docs give up on you? What do you do when the docs give up on you?

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  #1  
Unread 03-12-2004, 09:52 PM
What do you do when the docs give up on you?

I feel like I 'm very close to this. My GYN has brushed me off, telling me she'll see me in a year for my annual. My pain management doctors are less than great at actually working with pain patients, and I'm finding it's not worth going to. And if that wasn't enough, my pain doc now only comes in on Thursday 12 to 2 and Friday 2-4. Ha! With hours like that, he gets booked up faster than I can dial the phone number. Next available appointment was in May.

Where do I go next. I'm not sure of the next step to take. I'm in horrible pain a lot of the time, and since I have no pain meds, nothing controls it, so the pain just controls me. Do I call my family doctor, or ask my GYN to refer me elsewhere.



Thanks for insight

Laura
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  #2  
Unread 03-12-2004, 10:12 PM
What do you do when the docs give up on you?

you know there are some wonderful books out there about visulization. I am a somewhat spiritual person and I have used visulization to put me in a better place when I am in great pain. It takes a lot of practice but I can say it has gotten me through some very unbearable stuff. It works, it has worked for me. I would suggest one of Sylvia Browns books. Maybe this could help you or someone else, who is feeling the same way. Be Well
  #3  
Unread 03-12-2004, 11:39 PM
What do you do when the docs give up on you?

I know what it feels like to be given up on! My gyn seemed to give up on me over a year ago by sending me to the urologist, blaming all my pain on my bladder problems. He told me he didn't think it was gynecological. I was devastated. I went several months in pain and finally wrote a letter to my gyn. It worked! He called me immediately after reading my letter and he has been working with me to find a solution to my pain ever since.

I just explained in the letter that I felt that although I did have bladder issues, that I was also having monthly ovarian pain and that my pain was too much to just live with. I told him I needed help. I was very respectful and told him how much I trusted him as a doctor, but at the same time, I know my body and I knew that my ovaries were to blame for my pain.

Writing a letter worked for me, maybe that would be something for you to consider
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  #4  
Unread 03-13-2004, 08:37 AM
You need to find another pain doc...

S Laura,

I'm sorry you are going through this...Sadly it seems to be a very common theme here on the road.

Do you have a GP/Family Doc who can help you now - while you are looking for a new pain doc?

My Gyn washed his hands of me too. I went to see him a few months after surgery (complaining of pain), and he said to give it a year. Well, I was in too much pain to go through a whole year without doing something. Luckily, my GP was willing to help. He prescribed Percocet...only 2 tabs a day, but it was better than nothing.

I am currently under the care of a wonderful Pain Clinic at a great hospital. I have been going there for approx 1 1/2 years and they are still running tests on me. With each dx I get, it seems that I am getting further away from where I want to be...But it feels good to finally be in the hands of some of the best Dr's in Canada. I know that there is no magical cure...But at least I know what I'm up against, and they are helping me manage my pain.

Please do call your GP...I'm sure he/she can help you, and perhaps refer you to a better pain clinic.

Please let us know how you make out....
  #5  
Unread 03-13-2004, 08:40 AM
What do you do when the docs give up on you?

's Laura

I don't know what it is with gyns, but I guess maybe they just get tired of their patients after awhile. Mine too has told me there is nothing more he can do for me.
I'm sorry you had such a bad experience with your pain doctor. Those hours are rediculous.
I would definitely go back to your GP and get another referral. Sometimes they are more understanding. They're your primary care doctor - your care is their primary concern.
I hope you get some relief soon, and can find the exit ramp on your map, or at least a rest stop for now!
It does help to know that we're not alone.

Always here for you.....
Shelley
  #6  
Unread 03-13-2004, 05:43 PM
What do you do when the docs give up on you?

Laura:

Now this just makes me plain mad ... at your gyn, of course

I just want to say, they aren't all like that and none of them should be.

I hope that you find a doctor soon who will partner with you to resolve your pain issues!!!!!!

In the meantime...........gentle, healing s
  #7  
Unread 03-13-2004, 05:50 PM
What do you do when the docs give up on you?

Laura,
I think it's time for you to find some new docs. JMHO of course. I've been on this Road for quite some time. I've had some really really bad docs *punch* and some really nice ones It's the nice helpful ones that can make the journey easier. But unless you continue to open s you won't know what's behind them.
  #8  
Unread 03-14-2004, 07:14 AM
What do you do when the docs give up on you?

I'd say find a new Pain Management doctor. They are obligated to help you. If you were where I am I'd refer you to my daughter's clinic where they have a Pain Management group run by a nurse and a massage therapist. Finding your own way is best and the support of a good doctor is a bonus. I've used hot water soaks, cold packs, heat packs, acupuncture, TENS machine, and meditation - all helped to some degree and eventually learning to just manage the rest has nelped me a lot. Now I just know I have a certain amount of pain and I am more relaxed about it, which helps a lot as well.

Good luck. Living with pain can really suck.
  #9  
Unread 03-14-2004, 08:53 AM
What do you do when the docs give up on you?

Oh ((((Laura)))) This is all only too familiar: 2 years ago, as I was dealing with chronic arthritic pain and persistant stress incontinence, I couldn't even find a GP to refer me to a rhumy and to a uro And the GP I'd found, after running all the arthritis tests in earnest, just told me there was nothing she could do for me because all the tests were negative... so sorry you're in pain, there's nothing I can do and I can't have you as a patient because I don't accept new patients

It took another 6 months, but I eventually found a really good GP who was willing to work with me and to try and find the cause of all my problems: she referred me to a rheumy who wasn't much help and referred me to a uro who then referred me to a Pelvic Therapy specialist and I'm a least getting a lot of help with the incontinence issues.

I know it's frustrating, especially when you're in pain and can barely function, but the only answer is to keep looking for a doctor who will be ready to help you and find the answer. Hopefully, for you, you will find this gem a whole lot faster than I did.

I'm thinking that, maybe, finding another GP who has connections to a pain specialists who have decent hours... enough of them to allow him/her to see all of his patients within a decent time frame and has time to work with them... might be the answer to all of your problems.

Sending lots and lots of s your way and hoping that you find that gem real soon.
  #10  
Unread 03-14-2004, 09:45 AM
What do you do when the docs give up on you?

Laura,

I don't know where in Wisconsin you live, and I have never been in chronic pain, so I can't personally relate to your situation. But I do have some advice to (cautiously) offer based on my experience as a very savy medical consummer and as a part-time front office person in my DH's medical practice.

--The Medical College of Wisconsin has a nationally renown pain program. I am not familiar with it, but many state medical societies use their research and protocols to distinguish chronic pain treatment from addictive prescribing. Their treatment approach is multimodal and includes physical and psychological components, narcotic and non-narcotic pain relief. If you don't live nearby, perhaps they have an "outpost" or can recommend someone trained in their program. Since people who go to pain clinics are there because their pain is chronic, I don't get why you, a continuing patient would need to wait forever for an appointment

--Didn't the surgeon who did your lap say s/he would deal with your pain issues post-op?

--In the meanwhile, it is unfortunate than many GP/obgyn's consider themselves unable to prescribe long term narcotics in the absence of a clear diagnosis, especially if that patient is going to go to work, drive etc. It is unfortunate, but there are some real medico-legal issues involved that docs who don't do chronic pain control on a regular basis do not feel capable of handling. That is still no excuse for making a patient feel abandoned.

--While you are looking for a new doctor and going through the process of being evaluated - after all - it seems no one is even sure why you are still in so much pain - is it post surgical? is it endo still? is it adhesions? is it something not gyn at all? Who is the doc who will investigate these options - all of which would imply a different treatment protocol.

--Could you and your PCP or gyn agree to a pain control protocol? Have you tried non-steroidals (and I'm not talking about motrin and naproxin - there are much more effective and stronger medications). Taken on a daily and not PRN basis, these, if tolerated, can reduce the inflamation associated with some of the conditions that cause pain. Some of the SSRIs can also help with pain control. Perhaps one of your docs would prescribe this kind of a regime with a narcotic to be used in the evenings? Lack of sleep in the evenings on account of pain can make daytime pain feel totally intractable. This is the sort of "til we figure this out" regime that many PCPs use while their patients are waiting a pain evaluation.

--In the meanwhile I would also gather up all of my medical records so I could quickly get them fed-exed to my new pain doctor, as soon as possible. You don't want to go through the trouble of finding one only to have them push the first appointment in to the oblivion because they can't get your records



Dorrie
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