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What exactly is a pain mgmt clinic? What exactly is a pain mgmt clinic?

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  #1  
Unread 03-15-2004, 06:52 AM
What exactly is a pain mgmt clinic?

I know that may sound like a silly question. But, when it was first brought to my attention it was made to sound like a drug rehab. Now my dr. that I am seeing makes it sound like a life saver. He says they will help me manage, dx's and learn new ways to cope with this chronic pelvic and back pain. My last gyn basically gave up on me and stopped treating me right in the middle of all my problems. Thankfully this wonderful dr stepped in and had been terrific with my care. He wants me to have a colonoscopy as I never realized BM were'nt supposed to be painful... Mine have always been. Then he wants me to try physical therapy and he has recommended pain mgnt clinic. I just don't know what that is.
Should I be leary. I have suffered from severe pelvic pain since I was 9 and had my first cycle. I started having back problems at 15 when I had a tumor on my sciatic nerve that paralized me until it's removal ( a 6 hour surgery) only to have it return 5 years later. Ever since I have had problems with my lower back and right leg. The endo didn't help.
I want to try all avenues of help. I am tired of hurting and I would like to have some normalcy to my life. I have three small children who aren't waiting for me to grow up. I want to be able to play with them again.
I know some of my sister speak very highly of pain mgnt. would you please explain to me exactly what to expect.
Thank you
Jeni
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  #2  
Unread 03-15-2004, 07:54 AM
What exactly is a pain mgmt clinic?

Dear Jeni:
if you can find a good pain clinic, that's great. like most things they vary in their quality.
I went to one, and was so upset i went out crying. The dr just wanted to give me $700 a pop "nerve blocks" without EVER having examined me. What a load of bullship.

A good pain clinic will look at your medical records, examine you, give you appropriate diagnostic tests, and begin to treat your chronic pain using a variety of methods. What you have to be careful of, is if they are offering only ONE kind of treatment, and what is their attitude towards appropriate palliative care with opioids. Some treat you like an addict.

You can learn alot about correct treatment of pain by looking at these sites:
American Academy of Pain Management
www.aapainmanage.org

American Academy of Pain Medicine
www.painmed.org

American Pain Society
www.ampainsoc.org


Look in the Google directory for Pain Management organizations.
I do empathise with you --i have lived with chronic pain for 15 years now.

Fluffy Lemur
  #3  
Unread 03-15-2004, 07:59 AM
What exactly is a pain mgmt clinic?

Jeni:

No personal experience with pain management clinic or doctors. I know it can be very successful for some. In your situation, I think it would be the thing to try. Of course, that is just my opinion.

I will admit that I fought trying an antidepressant to help me deal with the pain. I felt there was some sort of stigma attached to it and felt like I should be able to cope on my own. Well, in my case I did myself harm by not being open to this option.

The pain and stress fed on each other and I am feeling over all so much better for giving this a try. Well, you live and learn. Extraordinary pain calls for extraordinary treatment.

Give yourself permission to be taken care of. Its OK, hon. I know your goal is for you to be more available to live your life and be there for your kids. Express your goals and your concerns to the pain management docs so that they can help you reach your goals.

Be well, soon!!! s
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  #4  
Unread 03-16-2004, 12:56 AM
What exactly is a pain mgmt clinic?

Dear Jeni,

I guess every pain management clinic is different and every patient's plan going through one becomes something different. I go, especially as the pain I have from arthritis is so much worse lately. They work with you and your various doctors on pain medications, alternative treatments (we are going to try TENS for example), physical therapy and support systems (therapists, exercise groups, etc.). Some people end up with nerve blocks, or additional referals.

I found the first time I went, I felt an enormous weight of relief was lifted from me. I felt like someone finally understood how much I was suffering and would try to lessen my burden. I cried great tears. When my pain is being managed well, I don't need appointments as often, but right now, whew I need all the additional coping and medication strategies I can get to feeling better.

Hope this helps. If you have any more questions, I will try to help.
in love and light,
Loretta
  #5  
Unread 03-16-2004, 05:40 AM
What exactly is a pain mgmt clinic?

Hi --

I dealt with a pain management clinic for about a year for TMJ/trigeminal neuralgia pain. My personal experience with this particular pain clinic was wonderful..........it was thru a local hospital, the people there were very understanding. I had been going thru years of going round and round with dentists, TMJ specialists, neurologists, sinus surgery, chiropracters, you-name-it, trying to find some kind of relief. Finally a specialist referred me to the pain clinic. I had several appt's with the clinic, during which time they did different tests and tried several different options and different medications until we found a combination of an anti-depressant and a blood pressure medication that worked. After a few years (and after my hyst) I was able to wean myself off of the anti-depressant but I still take the blood pressure med to help control the pain.

The pain clinic was the one place where, as I continued trying different options with them, they didn't throw up their hands and say "there's nothing else we can do for you" (as a couple of other's in the medical field had done before.......sometimes I think they do that more out of frustration with the fact that thay HAVEN'T been able to help you than anything else, but it makes you feel like it's your fault somehow that you're still in pain). They kept in contact with my other doctors and really stayed on top of things.

For anyone who is suffering from chronic pain, I would not hesitate to recommend giving a pain clinic a try. I agree with Fluffy though, it'd be a good idea to check out any particular clinic before going if possible, see if you can find anything out about their reputation or the methods that they use.

Good luck -- my sympathies go to anyone who deals with chronic pain, I know what it's like only too well.

's

Ann
TAH/BSO 1/5/01
  #6  
Unread 03-16-2004, 05:45 AM
Thank you

You guys are so much help. I love coming here and having you help me understand things. I feel so secure now and so positive that pain manage ment is for me. I can't wait to give it a try. I am so tired of hurting and the "looks" that I get when I fill my prescriptions, my pharmacist has even refused to fill a couple of them saying that my dr shouldn't be giving me such strong pain meds. When did he become a dr,? My Dr. called and still couldnt' get him to fill them. It was horrible.
I hope that I can be lucky and find a pain mgnt dr that will be understanding and helpful to my pain and not treat me like a drug addict and just push me aside that is my biggest fear. After what my gyn did.
Today is a really bad day. It is rainy and chilly out and my back and leg are killing me. I am cramping up a storm, I swear I feel like I am fallling apart. I am going to try and get out of the house while my lil one is at pre-school. I am going to have my nails done. Maybe that will make me feel somewhat better.
In love and light
Jeni
  #7  
Unread 03-16-2004, 06:21 AM
What exactly is a pain mgmt clinic?

Jeni:

Getting your nails done is a wonderful idea. Pampering is always a good idea to lift your mood!!! Good for you!

s
  #8  
Unread 03-16-2004, 07:40 AM
What exactly is a pain mgmt clinic?

Jeni--
i do know what you are going through because i am in pain 24/7.
somedays i cry just thinking about what it would be like to have a day without pain.

YOu need emotional support, too in your struggle. I am so grateful to have a loving husband who would do anything for me, and two wonderful sisters who would help me in an instant. The first half of my life was not like that it, it was hell.

Try to find some on-line support groups, or even better,community support groups, too. I am on several Yahoo groups for chronic pain.

When you are in pain, try to find something that works to take your mind off it a little: I have a Homedics full body vibrating massage mat, and when i am in excruciating pain, i lay on that, put on some soft relaxing music, dim the lights, and it does comfort me. We are saving for a hot tub, because that really helps too.
I also like to color, so sometimes I break out my coloring books andmarkers to soothe myself.

I wish you courage and comfort on your journey!

Fluffy Lemur
  #9  
Unread 03-16-2004, 11:33 AM
What exactly is a pain mgmt clinic?

Hi Jeni

I have my first appt. with the pain clinic on April 30. If you go before that (I'm sure you will, things are really slow here), be sure to let us know how it goes. I'm curious too. I'm also looking forward to my appt. just to see what avenues are open. I know I can't live like this forever, so I'll try pretty well anything!
You're not alone, and we're always here for you.
's
Shelley
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