Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis. | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Support Posts > Hysterectomy Options and Alternatives is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis. Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis.

Thread Tools
Unread 03-18-2004, 10:40 PM
Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis.

Hi ladies, I FINALLY had my appoitment to review her findings during my laparoscopy, hysteroscopy and D&C a little over a month ago.

a little history...I went to the gyn because of bleeding issues, mostly. For the last 1.5 yrs I have been having heavier longer periods. I have been having alot of spotting and breakthrough bleeding etc... I also have pain during intercorse, but this is not so new. I have been hacing more PMS symptoms in general, and my pain is increasing with periods, but nothing I cant bear. Acutally I find the "pressure" on my perinium during my periods more unbearable than the "cramps"

Her findings during these procedures were polyps, that were removed during the D&C. HOPEFULLY she got them all. I have a fibroid that is either a intramural, OR a submucous. She told me but I cant remember, its one of the two. She said she also believes I have endometriosis. She said the patholgy from the D&C came back WITHOUT evidence of Endo, BUT she said during the laparoscopy she found a whole bunch of "lesions" on my uterus, that werent obvious endo, but she thinks thats what they are. She "burnt" a bunch of them, but not all. My ovaries and tubes were completely fine looking.

what do you think? if these "lesions" arent endo, any idea what else they could be?? I never thaught to ask her that while i was there. Since Pain isnt a huge problem of mine, Im reluctant to think it is Endo... or can you have endo without a ton of pain?! If so will this change and I will soon have a lot of pain??

So far the plan of action is as soon as my cycle permits I will be gonig on the pill, and seeing how that changes everything. I go back to my gyn beggining of July for a follow up, see how the pill is/isnt working etc.
Sponsored Links
Unread 03-19-2004, 09:32 AM
Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis.

Hi ((nlynn1)),
I'm sorry to hear about your continuing pain & problems
With the results of the D&C not showing Endo will not rule out the possibility of Endo elsewhere. It doesn't form inside the Uterus but a condition known as Adenomyosis will. It is often referred to as internal Endometriosis...the 2 carry different theories of causes tho.
Drs are discovering that not all Endo Implants look like the once-classic appearance of *powder-burns*...some that are not as familiar with this disease, can often miss the diagnosis. The previous discoveries made in the various types of lesions, has caused more suspicious lesions/area to be biopsied before determining their origin.
The symptoms you shared that you experience can be those of Endometriosis but it can be those of several other Female conditions & disease's <sigh> Why a Laparoscopy is the standard tool used in determining a positive dx. Hopefully, the BCP's can help assist in discovering the source as how your pain/symptoms react to them
I've found that researching & educating myself on my own conditions/symptoms, it can assist my Dr(s), by sharing any relevant info or findings that are similar to what I'm experiencing. This can also help in knowing any treatment options that may be available and any risks they may carry....Knowledge truly is power when it comes to our Health & the treatment of it It is *our* body and only we have to live with the pain or result of any treatment.

You will find many other ((Ladies)) here suffering with Endo. Unfortunately, there are some battling this Post-Hyst along with those awaiting this surgery or researching their options. Discussing and sharing with others who have suffered, or are suffering, similar complications can help in discovering new research or treatments, all of which may be of some benefit...
You can search the forums using the *SEARCH* function above. Several keywords can be used to locate their posts i.e. *Endo Diagnosis*/*Endometriosis Symptoms* ect..
We also have a Resource Directory that contains several pages of links to some great info. Here is the link that will take you to the Main can chose a sub-forum that pertains to the condition your in search of or you can also do a *Search* of all the Resources to locate specific links:

Here are a few other links I thot you might find helpful:

Recognition of Endometriosis is difficult

Endometriosis Information and Treatment

Recognition of endometriosis is difficult due to the different sizes and colors. Small lesions can be missed due to their size while larger lesions may be missed due to adhesions or deep position.
Although visualization is said to be the golden standard, gynecologists may see and note only 41% to 70% of the endometriosis that they remove. This wide range leads to the conclusion that confirmation of lesions in a general practice is not essential. In a general clinical practice, biopsies and histology may be more valuable to rule out cancer and other pathology than it is to confirm endometriosis. This appears particularly true with clear and opaque vesicles.
Here is one that discusses Microscopic Endo:
Microscopic Endometriosis:
A staggering 35% of laparoscopies done on patients with pelvic pain are considered "negative," giving no indication of any physical cause(s) for pain. If you've had a negative laparoscopy, does that mean you don't have Endometriosis? Not necessarily. You may be one of the many patients who have "microscopic" disease. Negative laparoscopy results do not always mean that patients have no Endometriosis.

Getting a negative dx can leave a patient feeling distraught. Not only has her pain been unresolved, but she has not even been afforded the benefit of knowing what caused the pain in the first place.
Even if no Endo is seen during a Lap, the surgeon should still get samples for biopsy. Pathology results often show evidence of disease in otherwise normal-appearing areas. A high prevalence of Endo - including microscopic-- exists in both fertile and infertile women; those with chronic pelvic pain and those who are asymptomatic.
Microscopic or small implants and adhesions are not well evaluated radiologically; therefore, laparoscopy remains the gold standard for diagnosis and staging.

Other researchers believe that diagnostic tests during a laparoscopy can determine the clinical sensitivity of pelvic surfaces and thereby indicate Endometriosis in areas that do not show evidence of disease.
Microscopic Endo can be a factor in persistent pelvic pain following a hyst. A hysterectomy is not a cure for Endo, some find post-hysterectomy pain and symptoms are discounted when repeat laparoscopy does not "show" any disease. Pathology reports may tell a different story and define the presence of Endo.
A specialist, who is trained to recognize implants in all forms, is imperative. If surgery does not help or "show" any reason for your pain, ask about microscopic disease. Request biopsies on all tissue samples.
Endometriosis could be hiding in plain sight
I hope this can be of some help to you in finding some answers & relief to your problems Pls keep us posted on how things are going...

Unread 03-21-2004, 11:15 AM
Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis.

I had endometriosis and fibroids in my uterus, I had very painfull periods some months and others were not as bad for a few years. I had a lot of blood clots that I passed, you did not mention clots, but I found I would have a lot less pain if I would use kotex instead of tampons, I know it is gross like waring a diaper but the clots would pass and I would not have the pain and cramps that I would have with tampons, you might want to try it. I hope the best for you. Please learn all you can about your symtoms please read all the posts on this sight they are very helpfull we have all been there.

Sponsored Links
Unread 03-21-2004, 11:09 PM
Gyn says its Endometriosis, but is it?!?! Please I need adive re: Endometriosis.

i had no symptoms of endo. i had a fibroid that was causing my periods to last forever. i also had a huge cyst which led me to surgery. they then found endo it was in my tubes and was cause of cyst. removed all. i am left with only one ovary now and to help wipe out any endo that may be there and to prevent my body from producing any more for a while i will be getting shots that will shut down my remaining ovary and put me into a temp. menapause

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
11 Replies, Last Reply 02-26-2007, Started By quailene
3 Replies, Last Reply 06-10-2006, Started By HistoryTooMe
9 Replies, Last Reply 10-01-2005, Started By kerryendostage3
20 Replies, Last Reply 06-30-2005, Started By Spaz417
9 Replies, Last Reply 04-06-2005, Started By jasmineT
2 Replies, Last Reply 11-09-2004, Started By Beaneee
11 Replies, Last Reply 01-06-2003, Started By kcee
6 Replies, Last Reply 09-18-2001, Started By BananaRama
2 Replies, Last Reply 04-25-2001, Started By DLee
11 Replies, Hormone and Menopause Central
4 Replies, Hysterectomy Recovery (post hysterectomy)
4 Replies, Preparing for Hysterectomy (pre hysterectomy)
1 Reply, The Road Less Traveled
10 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Preparing for Hysterectomy (pre hysterectomy)
7 Replies, Preparing for Hysterectomy (pre hysterectomy)
1 Reply, Preparing for Hysterectomy (pre hysterectomy)
9 Replies, Preparing for Hysterectomy (pre hysterectomy)
3 Replies, Preparing for Hysterectomy (pre hysterectomy)


Hysterectomy News

October 31,2020


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!