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Doctors Not Listening! Doctors Not Listening!

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Unread 03-29-2004, 11:54 PM
Doctors Not Listening!

Empresse - is there another hospital you can go to? I am appalled at the treatment you have received.
When you were in the hospital did the nurses do anything with your drainage tube? They were the ones who handled mine and showed me how to unclog it and flush it if there was a big clog.
Are you measuring how many CC's you are emptying? Mine was removed when I was down to 30cc per day.
I am so sorry you have to go through this. Do see if there is another clinic you can go to.
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Unread 03-30-2004, 10:39 AM
Doctors Not Listening!

Originally posted by Jads
Empresse - is there another hospital you can go to? I am appalled at the treatment you have received.
When you were in the hospital did the nurses do anything with your drainage tube? They were the ones who handled mine and showed me how to unclog it and flush it if there was a big clog.
Are you measuring how many CC's you are emptying? Mine was removed when I was down to 30cc per day.
I am so sorry you have to go through this. Do see if there is another clinic you can go to.
Dear Jan,
I, too, am appalled. I think the main problem is this Doctor Hu, combined with "too many cooks" (too many doctors, not seeing the same doctor when I want to, and being forced into seeing the one doctor I don't want to see. I am about to put a call in to the head of the department to register my complaints about Dr. Hu. I will never see that man again. The problem with teaching hospitals is that you get residents and fellows instead of the actual doctors. This is rated one of the top hospitals in the USA Today list, and it is the very best hospital in the area.

The one thing Dr. Hu did right was -- he gave me a syringe filled with normal saline to flush the tube. Then one of the nurses threw it away! I asked her, "Hey -- where's my syringe from Doctor Hu?????" so she filled another one and gave it to me. Another communications failure.

I've been measuring how many ccs I'm emptying. Before I clogged up, I was emptying 40 and 50 ccs. When it dropped suddenly to 20, I knew there was a chance I had a clog judging from the output amounts history. In the hospital, the only way any liquid got past the visible clog was due to the nurses and doctors continually milking the tube. From the time I got home yesterday afternoon until just now, mid-morning, my bag was almost totally empty, but I saw that a bit of fluid had gotten through. Luckily I had grabbed a smaller measuring cup from the hospital. My total was 7.5 cc

But no one has shown me how to flush the visible clogs. Common sense tells me that unscrewing the clear tubing from the red tubing (the red tubing is inside my body and connects to the clear tubing) and forcing water or saline or something down the clear tubing would flush the clogging debris into the bag.

Dr. Hu wants me to insert the syringe into the red tubing and put the saline into the lymphocele. When he did this at the hospital, he did not remove the dressing, and I could feel the saline on my skin instead of going inside my body. He refused to take the dressing off and have a look. He said it was impossible. I know it is not impossible, because it happened in the lab to two different doctors in the interventional radiology department.

So I'm going to do this saline flush when I am changing the dressing. That way I will be able to see if the saline is going into my body or just onto my skin.

I'm trying to decide whether to use my common sense to flush the visible gunk down into the bag or just be a good little patient and do only what I've been instructed to do. I asked Dr. Hu to flush the gunk out and he gave me a different bag instead. The tubing was still visibly clogged so changing the bag did nothing.

The past two times that the internal tube has been clogged, a bit of lymphatic fluid has still been able to get down into the bag. Dr. Hu says that means that it is not clogged. But the last doctor I saw in the lab started out not believing me, too, and quickly changed his tune when he couldn't get any contrast dye to go into the lymphocele. Then he said, "This stuff is like concrete! I'm going to have to put a whole new tube in. I can't unclog this one."

This is really a good hospital. I'm just having a terrible experience at a good hospital. From now on, I am going to insist that I will not allow the students to work on me without the staff doctor present. My cousin's wife explained the differences between the students and the doctors. Residents and Fellows may be MDs, but they don't have the experience yet to deal with what has been going on with me. Let them get their experience on someone who is a textbook case.

It's all I can do to keep this reply clean of swear words.

Thank you so much for your reply, Jan!
Unread 03-30-2004, 10:54 AM
Doctors Not Listening!

Hi Emp -

Good hospital or not I would switch. There are good Drs at most hospitals, and the communication at yours sounds scary. The womens cancer network has a find a Dr link that is helpful. You may also contact your local ACS branch to see if they know of any good GYN/ONCs in your area. Personally, I don't think I would go to a teaching hospital - with a serious problen it's better to have experienced Dr's handling your case. Of course that is my opinion. :-)
Can your regular GYN or MD help with referrals?
With regard to your saline tube the nurse was right to take it away if you had used it. Because of sterility needs, you should only use once. My hosp sent me home with a big handful of sterile sealed saline syringes. They should be explaining all this stuff to you.
Good luck - and I am so sorry things are continuing the way they are.
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Unread 03-30-2004, 11:52 AM
Doctors Not Listening!

I've been on the phone with my cousin's wife, the one who is nurse for another gyn/oncologist surgeon. She is going to talk with Dr. R. (my gyn/oncologist surgeon) about seeing to it that I only have attending physicians. The communications thing is scary.

The doctor for whom my cousin wife is a nurse is doing a cervical cancer study with the gyn/onc who is treating me. The two hospitals are about 3 hours or so away from each other.

I am also freaked out about that syringe. It is not in a sterile package. My cousin's wife is going to come over tonight -- I'm not using that non-sterile syringe.

I also just got off the phone with the nursing supervisor for interventional radiology. She said that Dr. Hu is not going to be there tomorrow, and she wants to talk to me -- she was sorry to hear that I had a bad experience with him and wants to hear the whole story. She said that he is one of the fellows on service there. I'm so glad I talked with my cousin's wife -- she's the one who told me to ask for the nursing supervisor in the department.
She will also talk to Dr. R (my gyn/onc/surgeon) when Dr. R gets back from her conference.
Unread 03-30-2004, 11:59 AM
Doctors Not Listening!

Well good! It sounds as if things are moving along.
Your cousins wife should know from experience if there is a problem with your drain.
Now bear in mind I was dealing with a very serious staph aureus infection so everything had to be super sterile - the nurses masked up before doing anything to me. I would think though that any syringes they send home with you are in a sterile plastic wrap. The saline and heparin syringes I used as part of my IV antibiotic therapy were individually wrapped - and same with the ones I took home from the hosp.
Keep us posted. You may still think about seeing another Dr.

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