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  #1  
Unread 03-26-2004, 03:29 PM
Update.

Hello, Hyster Sisters!

Some of you may remember me: last year at about this time I was diagnosed with a large ovarian tumour on my left ovary. My gyn onc thought that there was a 30% or so chance of this being cancerous. I had quite a long wait for surgery (I live in the U.K.) and derived enormous support here while waiting and afterwards until getting the all clear. (The tumour turned out to be very rare and benign.)

I haven't posted since as I felt I could no longer legitimately share your journey, but I have often checked in to read posts and have followed your stories, always thrilled to learn about the continuance of NED and the successful negotiation of difficult surgeries and treatments, sons doing bike rides for ovaca awareness, daughters arriving from Guatemala (yay!), a new boyfriend on the horizon, etc.! You are all so inspiring.

I opted for removal of the left ovary and fallopian tube plus tumour only, and kept everything else. Right up until this month I have had a wonderful year with infrequent but very normal (when they happen) periods, lots of energy, very good general health. Sadly, this month I have had weeks of bleeding, with this week very severe blood loss and cramping. I went to my G.P. on Thursday with very severe symptoms and was sent straight to hospital for a transvaginal ultrasound, endometrial biopsy, blood tests, etc. I am now on tranexamic acid to control the bleeding and waiting for an appointment with my gyn onc, which I am assured should come through soon. (There is a rule here that if cancer is suspected at all a referral to a specialist has to be made within two weeks.)

My symptoms are due to either menopause, benign polyps or cancer. I have a thickened endometrium with lumps on, basically. So, I am back on the roller coaster of investigations and treatment, with cancer as one of the options.

I think largely thanks to all the support I got here last year, I feel very calm on the whole, though I will be glad to get to the bottom of things. If I have any stage of cancer, even the earliest, or a pre-cancerous condition, I will be opting for a hysterectomy, and I feel okay about that, too.

We were approved to adopt again, and are now waiting for the conclusion of paperwork in London before going ahead. That is my only concern right now: I would be devastated if health problems prevented that adoption. Other than that, I just want to return to good health asap.

Good to talk to you again! Jane.
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  #2  
Unread 03-26-2004, 04:36 PM
Update.

Jane.

It is wonderful; to hear from you, but I am sorry it is for such a worrisome reason. I pray your symptoms have a benign source and that the adoption proceeds on schedule. The two week rule is very good. I had to wait a 2wo months before my insurance company would authorize an oncologist.
  #3  
Unread 03-26-2004, 04:39 PM
Update.

Hi Jane, and welcome back....not that anyone really wants to have a reason to be on CC, but still it's a great place to be, with some really valiant women.

Like yourself, I had a thickened endometrium, and it did turn out to be cancerous, but in an early stage. I had a TAHBSO, and have been fine, with no additional treatments beyond the surgery. "Celebrated" my fourth anniversary last month, and have been clear of all problems.

Keep us posted on your situation. We'll be here to support and encourage you, whatever the answers are. My own post-cancer life is much richer and more sane for having had the experience!

Blessings.
Marlene
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  #4  
Unread 03-26-2004, 07:03 PM
Update.

How nice to hear from you, Jane. Of course, I remember your postings and surgery.

I am sorry to hear of what you're going through now. I'm glad, though, that you'll be seeing a gyn onc soon. That's a wonderful rule.

Congratulations, too, on your approval to adopt again. I'll say a special prayer for you, tonight, Jane. Not only are we HysterSisters but we're adopting sisters, too!

Please post again and let us know how you're doing. Fingers are crossed for a totally benign situation.

God bless,
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