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anyone have surgery to "fix" adhesions after hyst? anyone have surgery to "fix" adhesions after hyst?

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  #1  
Unread 03-26-2004, 04:01 PM
anyone have surgery to "fix" adhesions after hyst?

Hi ladies,
I was wondering if anyone actually had surgery to fix adhesions??? My abdomen is still sooo sore at 8 months from a TAH/BSO that I'm afraid at this stage it will be this way for=ever. I also still get a "pinching" sensation inside, like were my ovaries were. I assume this is from adhesions, scar tissue. So i was wondering if anybody had them removed, and if so by whom, the GYN who did the original surgery?? That kind of scares me, or is it not possible to remove them??? I know from other replies that the feeling is if your prone to adhesions you will only get more, but I'd like to know if anyone had tried to have them removed. I really hate to think I will feel this way the rest of my like!!! And I wish this was something the DR'S told you about BEFORE surgery!!! Thanks
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  #2  
Unread 03-26-2004, 05:21 PM
anyone have surgery to "fix" adhesions after hyst?

Have you talked with your doctor about this? Have you been tested for other possibilities for your pain? Unfortunately the only way to know if it's adhesions is via surgery. And more surgery usually = more adhesions.

I would speak with my doctor and see about having further testing to make sure that nothing else is going on. Alot of people assumed that I had adhesions because tests were inconclusive, than I had a lap and the doc found NOTHING. Pain isn't always from adhesions. If I do have them, they are well hidden. I'm not having anyone go look for them either.

I have been diagnosed with nerve damage which I think contributes to some of my problems. More of my problems are caused by a bad , which in part may be caused by the nerve damage.

It's like a puzzle and you need to put the pieces together. But until you talk with your doctor about your symptoms you can't begin to put the pieces together.

  #3  
Unread 03-27-2004, 01:22 AM
anyone have surgery to "fix" adhesions after hyst?

There are indeed other things that can contribute to pelvic pain after hysterectomy. I just had my adhesions removed yesterday and am going through all that nasty gas trauma again. You know, I flew to CA to see a specialist, Dr.name and url removed per the HysterSister Guidelines because he is also experienced in the removal of endometriosis, and sure enough, mine had come back. I've learned so much about the endo it's amazing. He also looked inside my bladder and has diagnosed me with interstitial cystitis, and he provided me with a video of my surgery. He also removed my appendix, which some gals, though not commonly, can have chronic illness with, that is underlying and can also be a cause of the pain. I wouldn't hesitate to go back to your doc, but I'd consider seeing a specialist, too. My insurance actually covered my hospital stay and at least some of his bill! He also did some nerve blocking for me - it's temporary, but when your body gets used to pain like that for so long it needs to be retrained if there is nothing else truly going on. I hope you don't wait too long though - adhesions can be nasty and can wrap around the bowels!

Hugs,
Lisa
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  #4  
Unread 03-27-2004, 11:41 AM
HI

HI,
Thanks very much for responding so soon after your surgery!!! I sincerely hope that this takes care of things for you, and that you finally feel better. But do you mind a few questions please?? Like how did you know it was adhesions?? Did your primary GYN send you to a specialist??? Or were you blown off by him?? I keep being told "it will take time to heal" BUT, how much time is too much? Also, as with you I'm sure, it seems as if I've had some sort of problem for years now, first the lap to remove cycts & endo, then a "total" hyst, ovaries and all, since, "if you take out whats hurting you, you will feel better", and now this!!! I feel as if I'm stuck at the 3 month recovery period, and with all the tests and crap I had leading up to this, I don't want anymore!! I just want to feel like my old self again!! Is this too much to ask!!! Sorry I'm venting, and you were so kind to respond. I hope you feel better soon. Thanks!!
  #5  
Unread 03-27-2004, 12:39 PM
anyone have surgery to "fix" adhesions after hyst?

When I was diag with the endo, I did a common thing, and just assumed that a total hyst was the way to go. I was so focused on having the hyst that I didn't do much research on the endo. When I felt it coming back, I really started looking into everything on my own. I ordered copies of all my surgical notes and found out that they basically said nothing! They were documented terribly. I told my regular NP what was going on and I said I had found a specialist (by the way, his name is under the resource pages on here, not sure why I can't list him again, since I'm doing so in a positive manner, but whatever). I was concerned about insurance costs and my NP told me to look into it, that insurances often work with other states that are nearby. So I did and that's when I started researching those specialized in the removal of endo. I chose my person based on the fact that my "guy" didn't charge to review my paperwork and how awesome their website was. You can PM me to get the info if you like. Anyway, I could tell the difference between adhesions and endo because adhesions tug, pull, can cause sharp pains when my bowels are active or twisting around. Endo makes my back ache severely, makes me tired, and makes me feel like there is something just SICK inside me. Just this terrible feeling, like something icky. It also gives my intestines serious bloating. I'd had adhesions only prior with my ectopic years ago, so it was easy for me to tell the difference. However, not everyone feels the same thing, so I'm only giving you my experience, of course. I decided to take charge of my own destiny, too, because I was somewhat "abandoned" after my hyst. by my OB which I've always had a lot of trust in! I have a few whining stories out there, if you do a search for them you can read the drama I had just 8 months ago. Anyway, please, feel free to contact me - I know of others suffering with adhesions, too! My current doc put some sort of cloth type stuff in me that is supposed to help prevent the adhesions from returning. He is very experienced in minimally invasive surgery, and the technique they use can often help minimize the regrowth. From the first laparoscopy and laparotomy from my ectopic I had massive adhesions from the emerg room surgeon, and my reg OB went in and cleaned them up, and I had immense relief for a lot of years! It really helped a lot, and I'd only have that discomfort for a few days like maybe once every six months or so.

Okay, need to go lie down.

Hugs!!!
Lisa
  #6  
Unread 03-28-2004, 02:31 AM
lysis of adhesions

Yes I had surgery after hysterectomy-twice! During initial TAH, LSO was removed, the RSO looked good. 4 months later RSO was adhered to bowel, so out it came!5 weeks later pain returned.....in January of '04 I had laproscopic lysis of adhesions. I would love to say that I am pain free, but I'm not, however it is greatly improved! Research your options, find a doc who specializes in laproscopic surgery. I saw a gereral surgeon for my last lysis...he came recommended by my OB/GYN. IM me if you want to chat further.
Monica
TAH/LSO 3-3-03, RSO/Lysis of adhesions 7-25-03, Lysis of adhesions 1-15-04 Endo, Adeno, fibroids, never ending period.
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