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Concerned about cancer reoccurence Concerned about cancer reoccurence

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Unread 03-26-2004, 05:18 PM
Concerned about cancer reoccurence

Hi Ladies:

In December '03, I was diagnosed with endocervical adenocarcinoma in situ after a LEEP procedure. My gynecologist consulted with a gyn/oncologist about my case and they decided to do a cone biopsy prior to a TAH to insure that the cancer was confined and that lymph nodes, etc. were not affected. The cone biopsy did reveal clear margins , so I ended up with a regular abdominal hysterectomy in March '03, and was able to keep my ovaries. (I had adenomyosis also). I went for a 6 month check-up (pap smear) back in September '03 and all was fine. Now that another 6 months has gone by, it's that time again. I'm always paranoid that the cancer will re-appear. Has anyone out there had a similar experience?

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Unread 03-26-2004, 05:35 PM
Concerned about cancer reoccurence

Dear Sunny,

Although I had a different cancer than you, that old beast "cancerhead" certainly hits every so often--and probably more so in the beginning. After a while you get a little more used to the situation. But even now, after 4 yrs, I still get an occasional bout of "hmmm...why's that shoulder hurting? Could it be a rare metastasis of my cancer to the bone?"

One good thing to do is to learn as much as you can about the particular cancer that you had. Find out about its recurrence rates and so on. People can scare the heck out of you sometimes with well-meaning but thoughtless and even uninformed comments. Sometime last year a person said to me, as we were discussing a third party who'd had a cancer recurrence, "well, let's face it, once you have it, you know it's going to come back sooner or later." I'm sure she wasn't even thinking about the fact that I'd had endometrial cancer. But I knew the stats on it, and I knew what medical personnelhad said about my particular case and its excellent prognosis, so I just let it go.

Sometimes knowing the facts can be a real help.

I'm sure that other women will come along to post about endocervical cancer and their experiences with "cancerhead" post-op.

Hang in there, we're all on this road together.

Unread 03-26-2004, 05:44 PM
Concerned about cancer reoccurence

's Sunny!

It sounds like you are dealing with a case of Cancerhead It's very stressful for most women when the time comes for those follow-up exams. Even now, at 3 years post-op, I still have concerns when it's time for my PAP. But, it is much better. Instead of losing sleep every night for 2 weeks before hand, I'm only a little nervous the morning of. And I still have to psych myself up to make the call to get the results. But it's getting better.

Keep reminding yourself that recurrence of this condition is rare. Yes it happens, just not very often at all. And if it does recur, well, if it's caught early it is easily treated.

Good luck! I hope all goes well when you have your appointment.

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Unread 03-27-2004, 02:00 PM
Concerned about cancer reoccurence

Hi Sunny,

It is called CANCERHEAD and we have all had it at one time or another.

April 6th I see the oncologist and am panicking already.

I am sure all will be fine.

Unread 03-27-2004, 02:12 PM

It is perfectly normal. The closer to an appointment, the more it grows. All the "maybe" and "what if" stuff comes into play. I wish I knew how to get rid of cancerhead. There is no way. I just tell myself that I'm having cancerhead and try to refocus.
I have been known to be so tense with cancerhead that once the Dr. walked into the room and I just screeched, "What's the CA125? What's my number?" and he just stood there like he didn't know what hit him Another time the RN told me and it had dropped and I'm sure the whole clinic heard the "yahoo!" I let out.
Unread 03-27-2004, 06:33 PM
Thank you Marlene, Jeanine. Rosalie & Margaret

Hi Ladies: Yes, I think I have a case of "cancerhead". Thank you all for being so supportive. You are all amazing! I don't feel comfortable espressing my fears, etc. with friends/family, So it's very comforting to know that I have my wise Sisters here when I need someone to talk to. I'm glad I found this website!


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