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Questions for doctor-Need help Questions for doctor-Need help

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  #1  
Unread 03-30-2004, 04:45 PM
Questions for doctor-Need help

I finally had my CT Scan and Chest X-ray yesterday morning, no results yet. I did get an appointment scheduled with GYN/ONC for this Friday morning. My brain can't seem to think clearly and I need help with questions for him. According to my Gyn doctor the Gyn/Onc has said that I will need another surgery to remove ovaries/tubes and sample my lymph nodes which means abdominal surgery this time (I think).

Just had the vaginal hysterectomy on 2/25/04 and surgical pathology report came back invasive endocervical adenocarcinoma, Stage 1a. Does anyone know anything about this kind of cancer? Thank you in advance for sharing. The only question I have now for the specialist is how aggressive is this cancer. I thought if someone has been in my place in the past they will know exactly what I need to ask.

Donna
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  #2  
Unread 03-30-2004, 05:14 PM
Questions for doctor-Need help

Hi Donna,

I know how difficult this can be, hope you're hanging in there okay . I had endocervical adenocarcinoma stage IA. From what I've read in scientific journals, it used to be believed that this type of cervical cancer was more aggressive than the squamous cell flavor. However, as more studies are done, the results seem to show that adeno is about the same as squamous, except in cases of very rare types such as clear cell adenocarcinoma.

The thinking now is that adeno was thought to be more aggressive because it was (and is) more difficult to detect on a Pap. Therefore, by the time it was found it was usually at a later stage--although this is certainly not the case for you since your stage is so early.

Things I would ask:
1. His/her opinion on the aggressiveness (I'm a scientist, not a doctor )
2. What the follow-up plan is (i.e. paps, etc every 3 months, 6 months, or what)
3. What to expect from the coming surgery to sample lymph nodes--how many will they take, etc, whether they will be doing this laparoscopically, recovery time, etc.
4. Why they want to remove your ovaries--unless the cancer has spread there, which seems to me unlikely with such an early stage (again though, I'm not a doctor), cervical cancer is not related to risk of ovarian cancer.
5. If they do remove the ovaries, does the doc want you to do HRT? This is a giant can of worms that is out of my range of knowledge both personally and professionally.

Best of luck and keep us posted!

Beth
  #3  
Unread 03-30-2004, 06:32 PM
Questions for doctor-Need help

(((Donna)))

I'm so sorry to hear that you have cancer. What a shock it must have been for you!

Beth gave you an excellent list of questions. You might like to ask the gyn/onc what the benefits are of having the surgery versus having the PET scan in your particular situation. Also, you might like to ask if they will be using dye to help "illumine" the lymph nodes (if they "light up"--and I don't know much about this-- then they pull them for biopsy. If not, then no biopsy on that particular node).

You might like to consider getting the opinion of 2 gyn/onc's, too. Stage 1a is very, very early. Usually microscopic. And many gyn/onc's just go with the hysterectomy or radical hysterectomy and don't worry about lymph nodes or any additional treatment. And I agree with Beth--ask about the ovaries. At your age, you could still have many years of use from them, and better to have natural hormones in your system than HRT. As Beth said, there is no link between cervical and ovarian cancer, so as long as they are not concerned that any cells have moved past your cervix, then you might be able to keep them (if you have no family history of ovarian cancer, that is).

Good luck with everything! Let us know what you find out!

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  #4  
Unread 03-30-2004, 08:40 PM
Questions for doctor-Need help

Donna,
I completely agree with the others. Beth gave you a great list of questions. You might also try a search on google, although you will probably get a lot of 'junk' hits in addition to some good articles. The good news is that 1a is very, very, early, so your chances for a cure are well over 90%. You can ask your doctor about the odds, or find it on google.

Best wishes. It won't always be this overwhelming and scary. I promise! You'll be fine soon.

Hugs,
Janie
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