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9 weeks post Pre-sacral Neurectomy - problems 9 weeks post Pre-sacral Neurectomy - problems

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  #1  
Unread 04-06-2004, 11:53 AM
9 weeks post Pre-sacral Neurectomy - problems

Hi,

So it is 9 weeks ago tomorrow that I had the lap for the PSN and the endometriosis removal.... I had a catheter for 4 weeks because my bladder wouldn't empty all the way (an infrequent side affect of the PSN apparently).... it seemed like all was well for a while but now I am having problems again. I don't know why it would get worse this far out. I couldn't go to the bathroom at all in the middle of last night... then this morning the Gyn had me come in and he did a urinary retention test and I was retaining 375cc (YIKES!). I am scheduled to see the Uro this afternoon to learn how to self-cath... My bladder is really confused.

Well... just thought I would post about this side affect of the PSN. I did not realize this could happen... I knew about the constipation problems but not the bladder problems.... I had even asked the surgeon (Mayo) what the side affects of the surgery were and he said "We have done this surgery for a long time and we wouldn't still be doing it if there were bad side affects." Hopefully this is just a bump in the road for my bladder and it will get back on track.

s to my fellow road travelers....

Sarah
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  #2  
Unread 04-06-2004, 03:09 PM
9 weeks post Pre-sacral Neurectomy - problems

Oh, Sarah

s

I hope this is just a temporary bump in the Road for you.

Perhaps the Mayo surgeon really has had a low incidence of serious side effects from the PSN and that was where he was coming from with his comments. And, perhaps he will turn out to be right in the long run and your bladder will get back on track. You may consider informing his office of what is going on with you - perhaps the URO would send him a letter. He should know about it, even if it works itself out over time.

Take care!!!
  #3  
Unread 04-06-2004, 05:49 PM
(((( Sarah ))))

Oh no!!!! I'm so sorry you have this bump... I hope your self cathing is only temporary... I also hope it helps your bladder to get back into the swing of things. Once I got the hang of self cathing, it wasn't that bad... Just make sure you are careful about making sure things are clean! It is easy to get UTI's when you self cath...

Big Big Hugs Sweetie.... Susie
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  #4  
Unread 04-08-2004, 12:05 PM
9 weeks post Pre-sacral Neurectomy - problems

- I am so sorry to hear you are having more troubles Sarah!!!

Hopefully things will resolve and your bladder will get back on track. You are such an inspiration to all of us here on the "road" I hate it that you now are having troubles yourself.

Let us know how it works and hopefully this is only temporary!!!!!



jody
  #5  
Unread 04-09-2004, 03:49 AM
9 weeks post Pre-sacral Neurectomy - problems

Dearest Sarah,

s

My thoughts, prayers and are with you in this. I still have constipation which may or may not be from my PSN and also (painful) clitoral sensitivity, which is definately related to the PSN procedure. I am still hopeful that you will yet receive some of the positive benefits from the surgery ie: Less pain.

Love you,
Loretta
  #6  
Unread 04-09-2004, 07:14 AM
9 weeks post Pre-sacral Neurectomy - problems

Oh ((Sarah))
I'm so sorry that your still dealing with these bladder issues Perhaps, you have an extremely temperamental Bladder & it's still rebelling the surgery?!?
In any of your PSN Research, did you note anything like this at all? Even in one person?
Has anyone suggested you seeing a Uro-Gyn or even a Urologist? I think I'd be tempted to since the Surgeons have no definite answers. Perhaps, they could shine some more light unto your ongoing Bladder issues

I will pray that it is as you said & just a bump in the Road, my friend Pls keep us posted on how things are going with both you & your Bladder....May you find some permanent relief from this soon .....((((hugs))))
  #7  
Unread 04-20-2004, 04:18 PM
9 weeks post Pre-sacral Neurectomy - problems

sorry to hear about your difficulties after your PSN.....I had this done prehyst and have often wondered if it had anything to do with my bladder problems now.....I asked my uro and she said it was possible but nerve testing would have to be done and has since referred me on.....but no referral has come yet ???

hopefully like you say it's just a minor glitch along the road to recovery, hang in there and keep us posted! 's!
  #8  
Unread 04-20-2004, 05:29 PM
9 weeks post Pre-sacral Neurectomy - problems

Hi ((Gidge))

I saw the urologist and learned how to self-cath. He definately thinks this is due to the PSN. Urinary retention problems are one of the risks of the surgery.... however, he did say that over time the problem usually goes away.

I only have to self-cath when i think I have a problem... which is not very often and seems to be related to the day after I have attempted to exercise (which is just walking on the treadmill). One thing I have figured out is that my bigger problem is not that I am retaining, so much as that I have the urge to go when I am empty... this I had before the PSN and at that time the Uro thought it was a neuropathic response/referral from the pain I have.... and he thought it now made alot of sense since the major area where I had the endometriosis and endosalpingiosis was in the "Trigon" area to which the bladder is very sensitive....

I have started back on the low dose of Elavil which really helped my bladder symptoms previously... hopefully it won't take much longer to work... I think I must get up about 4-5 times to go to the bathroom during the process of getting to sleep ... but at least I don't wake up after that.

Thanks to everyone for you s and thoughts.



Sarah
  #9  
Unread 04-21-2004, 12:46 AM
Elavil

Dearest Sarah,

The way you describe the feeling of urinary urgency is exactly what I have felt post-PSN -- I have been calling it "over-sensitivity" both clitoral and bladder (with the associated feeling of urgency), but I did find that neuronitin helped, as did Effexor and trazadone, when I was able to take these medications -- which are all supposed to mediate nerve pain to some degree. I am very hopeful that the elavil will work for you!!!!!

Since I have been taking prescription anti-inflammatories and pain-relievers, I no longer feel these uncomfortable sensations, however I worry greatly that the uncomfortable sensations are lurking underneath my current awareness for the blessed day when I am no longer having arthritic pain and withdraw off my current medications. Please let me know how it works for you.

You are in my thoughts and prayers,
love and light,
Loretta
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