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Fibroids that might mean cancer Fibroids that might mean cancer

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  #1  
Unread 04-07-2004, 05:12 PM
Fibroids that might mean cancer

Because I will be 58 in May and not quite at a year past my last period, my gynecologist-oncologist looks at me strangely when I tell him I still get occasional menstrual cramps and experience fibrocystic breast changes.
A recent transvaginal pelvic ultrasound shows that my fibroids, although small, are growing slightly, and I've even gained a new one in the last two years. I maintain that I'm pumping out enough estrogen to support the fibroids.
The dr doesn't believe I have uterine sarcoma becuase I am not bleeding and there was no sign of necrosis (dead tissue) on the ultrasound and a pelvic CT. Still he's recommending a TAH/BSO to be sure.
When I asked about an MRI with gadolinium (contrast agent) and an LDH blood test, which I read about in one of this site's links and has proen to have a good track record in ruling out uterine sarcoma, he pooh-poohed the whole idea.
I know he has an excellent reputation as a surgeon, but his close-minded attitude leaves a bit to be desired.
Any of you have experience with these diagnostic tests?

Hopeful One
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  #2  
Unread 04-07-2004, 06:28 PM
Fibroids that might mean cancer

Hi Hopeful,

Sorry, I do not have any first hand experience with your diagnosis but I do know that it is very important to have a good relationship with your doctor.

Only you know your body better than anyone else and if you feel that he or she is really ignoring your symptoms or feelings, then it is definately time to get another opinion.

My original gyno misdiagnosed me when I first spoke to him about a hardness near my bellybutton. Unfortunately he did not take me seriously but I trusted his judgement. Boy were we both wrong. I am glad that I did seek another opinion because it saved my life.

Keep in touch.
Rosalie
  #3  
Unread 04-07-2004, 06:32 PM
Fibroids that might mean cancer

Hi Hopeful One, I don't have experience with the blood test but I did have an MRI with contrast. My fibroids were situated in such a way that they were unable to rule out ovarian masses with the ultrasound. They couldn't with the MRI either. The test is rather expensive, noisy and you have to hold still!! I had a stuffy nose that day and since I have a little belly, it would move when I breathed and that was a bit of an issue. I was so sick of it by the time it was done that I decided I would just have to be medicated to hold still if I ever had to do that again, or else they could just do surgery and find out what was in there! Really, if I'd used some nasal spray it might have been okay but I didn't know that at the time I went for it. I ended up with the hyst in January. I'm 45 and I can't say that I regret it.
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