4 Years Later Still In Pain And Angry | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

4 Years Later Still In Pain And Angry 4 Years Later Still In Pain And Angry

Thread Tools
  #1  
Unread 04-16-2004, 09:31 PM
4 Years Later Still In Pain And Angry

I HAD A VAGINAL HYSTERECTOMY, CYSTOCELE AND RECTOCELE. ALSO HAD TO HAVE THE CORRECTIVE SURGERY TO OPEN VAGINA. THE DOCTOR SEWED ME UP SO SMALL I WAS ONLY 1 CM IN SIZE. I ALSO HAVE PAIN IN THE VAGINAL AREA AND INSIDE MY LEG ALL THE TIME. HAD TO QUIT MY JOB. CAN'T SIT. I HAVE BEEN TO SEVERAL DOCTORS FOR TREATMENT. PAIN MANAGEMENT AND HAVE ANOTHER DOCTOR TO SEE IN JUNE. I HAVE BEEN LIVING THIS NIGHTMARE FOR THE PAST 4 YEARS. I WOULD NEVERHAVE HAD A VAGINAL HYST IF I KNEW WHAT I KNOW NOW. THIS DOCTOR WAS TRYING TO PLAY GOD. THERE ARE OTHERS I HAVE MET THAT HAVE THE SAME PROBLEMS I HAVE .THE SAME DOCTOR DID THEIR SURGERY ALSO. LADIES BEWARE OF DOCTORS. ASK A LOT OF QUESTIONS BEFORE YOU LET THEM DO SURGERY ON YOU. THIS DOCTOR ALSO MAKES COMMENTS THAT SHOULDN'T BE SAID. I HOPE WE CAN STOP HIME FROM HARMING ANYONE ELSE. I COULD GO ON AND ON BUT I'LL LEAVE IT AT THAT FOR NOW.
Sponsored Links
Advertisement
 
  #2  
Unread 04-16-2004, 09:44 PM
Re: Oh Dear !!

Looks like you got it !! That is a good start.....Post a new thread and see how many replys you will get....I am sure if you do this you will be amazed at how many may suffer fromm the same problem....If ya ever get bored read some omt old post...I had a time myself....still sufferening from lots of fatique. Some Doctores have no bed-side manner at all !! I found that one out the hard way...of course didnt help with no help or support from this PERSON THEY CALL MY DEAR HUUSBAND....WHICH ISNT HASNT BEEN SO DEAR SINCE MY SURGERY !!!

mAYSA
  #3  
Unread 04-16-2004, 10:06 PM
OUCH


Sorry for your pain,,,,& I pray that you'll get better........
Sponsored Links
Advertisement
 
  #4  
Unread 04-17-2004, 08:45 AM
4 Years Later Still In Pain And Angry

Hi (((Whitney))) I'm so sorry that you've had such a hard time since your TVH

I had a TVH in December 2000, along with Rectocele repairs and, fortunately, haven't had any dire complications arise from it. However, it is important to remember that a hyst, regardless of how it's performed, is always a major surgery. And that any surgery can entail some complications. One of those could be nerve damage.

Here's a link to our Resources Directory on Health Complications https://www.hystersisters.com/vb2/lin...n=browse&cid=4 In the Directory, you'll find links to website dealing with Pain Management and others explaining such issues as Pelvic Pain and Nerve Damage. One thing that is important, in order for you to move beyond this surgery, is to ensure that you try and find relief from the pain.

Sending lots of healing s your way. Please keep us posted.
  #5  
Unread 04-17-2004, 04:02 PM
4 Years Later Still In Pain And Angry

I m 2 1/2 years post op and still have pelvic and leg pains. I told my doctor. He said "you are just getting old". My my...I am only 38, it's not like I am 90 with one foot int he grave. Although because of cancer I always feel that way. I think I am going to go with anothers sister who said stand in front of the door and politely tell the doctor he is not going anywhere until I get answers.
  #6  
Unread 04-19-2004, 09:21 AM
Similar problems

I'm back at hystersisters again because I am 1.5 years post op, utterly fatigued, in pain, and cannot have intercourse.

I lead a healthy lifestyle: all natural home-cooked foods (whole wheat, variety of grains and veggies, plenty of tofu and other proteins, very little sugar, plus tons of water every day), more-than-adequate exercise, and a fullfilling and creative life. I have an unbelievably supportive husband and a great doctor whom I trust.

But I feel simply lousy almost all of the time. My back pain got worse after the surgery and has not eased up. The pain extends to my leg and ankle, and I have often fallen down. I have some arthritis, but this doesn't explain everything. I am currently in physiotherapy and under the care of a rehab specialist.

I have NO sex drive. Well, not exactly...sometimes I feel mild desire emotionally or "in my head" but it's as if a circuit is broken - the feelings do not turn into physical desire. I take natural hormone replacements and the balance is checked regularly via blood test. Everything checks out fine and as far as feeling like the same person I was before the surgery, I am okay. I just can't get any sort of sexual feeling at all, even when my testosterone levels are peaking.

I am also incredibly exhausted all of the time. I used to jump out of bed at 5:00 a.m., work out for an hour, sculpt for an hour, then head off to work and take courses in the evenings or play basketball. I always felt fine. Now my husband is frightened: he has to literally drag me out of bed. I doze off as soon as I sit down, and I am often so tired that I feel as if I can't catch my breath.

I am glad that I am no longer bleeding continuously for months on end and I am thrilled that I do not suffer from excruciating abdominal pain any longer. But I truly wonder if this hysterectomy was a big mistake or if I should have checked out other surgeons first.

I don't want to just blame everything on the surgery, so that's why I am asking to hear from other hysterectomized women regarding this. Who knows? Maybe I was just so worn out from all of the years and years of pain, hemorrhaging and other symptoms as well as the several prior surgeries I had for endometriosis, etc.? Maybe this last surgery was more than my body could handle? Perhaps the stress of this type of surgery can alter a person's immune system? I'd hate to think that, at 42 years of age, I am destined to a life of pain, sexlessness, and utter exhaustion.

My doctor is checking thoroughly into other possible problems: diabetes, thyroid, etc., but I just don't think he's going to find anything. I am not depressed and I'm actually pretty upbeat in spite of everything.

Sadly,

Sudarshan
  #7  
Unread 04-19-2004, 10:00 AM
Re:

I know how you feel, I feel that way alot myself !! Just havent felt the same since.


Maysa
  #8  
Unread 04-21-2004, 11:30 PM
4 Years Later Still In Pain And Angry

Whitney,

Your post sounds like something I could have written.

I had alot of the same repairs 9 months ago and am having a really hard time too.

The uro/gyn that did my surgery did more repairs than I needed and I now have a vagina I wouldn't wish on my worst enemy.

I am currently going to a pelvic physical therapist. Many hystersisters have said that it has helped them so I am hoping it will help me too. Have not seen much improvement yet but am trying not to get discouraged.

The surgeon who did my surgery turned out to be extremely insensitive and I am very unhappy about what he did to me.
I was too trusting and never thought a Doctor would actually do repairs that weren't necessary.

I just wanted to let you know that you are not alone in your struggle and that I hope you find a way to feel better. Maybe the physical therapy would work for you?

Jan
  #9  
Unread 04-22-2004, 06:54 AM
4 Years Later Still In Pain And Angry

Jandie:

The pelvic physiotherapist.....is he/she also an osteopath? I ask because one of the physiotherapists I see is an osteopath and claims that he can loosen up some of the scar tissue, fascia, ligaments, etc. in my pelvis. He wasn't able to do the treatment this week as we were focussing on other things (i.e., my throbbing neck, stiff hands, etc.) but I am very curious to see what happens when he gets around to treating my pelvis.

Yours,

Sudarshan
  #10  
Unread 04-22-2004, 03:54 PM
4 Years Later Still In Pain And Angry

Sudershan,

I'm not sure if she is an osteopath, I'll have to check that out at my next visit.

She did some gentle pressure massage inside the vagina, found the tender areas and works on those spots. Then a short plastic probe was inserted(not painful at all) that creates rhythmic electrical stimulation and I do kegels with the current.

I have only done that two times now so I think it is too soon to see if it will be very helpful, but I am going to keep it up for at least 9 weeks before I give up.

I would be interested in hearing how your sessions go.

Good luck!
Jan
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
3 Replies, Last Reply 02-02-2010, Started By Senji
10 Replies, Last Reply 01-14-2010, Started By calicass
5 Replies, Last Reply 04-29-2009, Started By ESNauceder
8 Replies, Last Reply 06-05-2006, Started By Lynnels
1 Reply, Last Reply 04-07-2006, Started By kann62
4 Replies, Last Reply 01-13-2005, Started By DJAKoala
1 Reply, Last Reply 12-05-2004, Started By JackieAnn
4 Replies, Last Reply 04-15-2004, Started By croxie
1 Reply, Last Reply 06-18-2003, Started By purplestar
6 Replies, Last Reply 05-21-2002, Started By clark790
7 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
2 Replies, Hormone and Menopause Central
20 Replies, Hysterectomy Recovery (post hysterectomy)
5 Replies, Endometriosis Support
11 Replies, Pelvic Floor and Bladder Issues
2 Replies, Endometriosis Support
2 Replies, Hysterectomy Recovery (post hysterectomy)
5 Replies, Preparing for Hysterectomy (pre hysterectomy)
21 Replies, Hysterectomy Recovery (post hysterectomy)
18 Replies, Preparing for Hysterectomy (pre hysterectomy)



Advertisement

Hysterectomy News

September 30,2020

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement


Advertisement