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I Didn't Waste a Good Panic...  :( I Didn't Waste a Good Panic... :(

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Unread 04-28-2004, 01:20 PM
I Didn't Waste a Good Panic... :(

...I was right to be nervous about my oncologist appointment today.

My CT scan from last week showed a new mass above the left side of the vaginal cuff. It is about 3.2 cm x 3.5 cm. It is very close to the location of my original tumor.

I finally got the history of my CA-125 levels. July 2003 (1 month post chemo) 3, October 2003 - 8, January 2004 - 15. I will have today's CA-125 in about a week. They seem to be doubling every 3 months. My onc said that if it went 3-15-8 he wouldn't worry, but since it has gone up each time, along with the findings, that this is something to be looked into.

The plans for now are this: colonoscopy this Friday morning, PET scan ASAP, and possible biopsy of the mass.

This was no surprise to me. I guess I knew when they took extra views during my CT that something was up!

We (my family and I) will deal with it one day at a time.

God Squads...I'm calling on you! I need some prayers, please!

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Unread 04-28-2004, 01:25 PM
I Didn't Waste a Good Panic... :(


I am really sorry to hear this, and hoping it is something benigh. There are many benign things it can be. You are in my payers. Hang in there
Unread 04-28-2004, 02:41 PM
I Didn't Waste a Good Panic... :(

Linda -

Hang in there. Before my second surgery in Feb the CT scan showed a 2.5 x 2.0cm 'nodule' that the radiologist suspected was a tumor - but it ended up being an adhesion. I am going to pray that yours is benign.
Keep your chin up. Try to think positive. We are all here for you.

Jan (a fellow quilter - and we quilting gals stick together!).
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Unread 04-28-2004, 02:55 PM
I Didn't Waste a Good Panic... :(


I so know how you are feeling. My CA125's are also slowly rising, doubling each time. I also have read and heard that after chemo, the steady rising is a sign of recurrance. But that is not a final decree.

May you be flooded with Hystersister Prayers 's.

Gather all your support, medical team, family, friends, and cyber friends and fight the good fight. We are pulling for you.


Ruth S
Unread 04-28-2004, 04:12 PM
I Didn't Waste a Good Panic... :(

Hang in there Linda....Hopefully it will nothing with nothing. Those lousy ca125 numbers really drive us crazy. I am the queen of that!!

Unread 04-28-2004, 04:54 PM

Don't know what to say except: Rats! Be assured you're on my prayer list. Perhaps the PET will tell another story or a more clear one. May your CA125 be steady. Rats.
Unread 04-28-2004, 05:56 PM
I Didn't Waste a Good Panic... :(


When I was having CA-125's done to monitor for recurrence of endometrial cancer, mine went from 8 to 14, which I wasn't happy about, but my gyn-onc was unconcerned. It's possible the "3" from your first test (which sounds unusually low to me) was not a true reading to begin with.

If the "mass" being picked up on the CT scan is near your original tumor site, I would think it could just as well be scar tissue as a regrowth of the tumor. I've also had test results state that there were nodules that turned out to be nothing of significance. And, of course, my infamous ultrasound said "probable fibroid," instead of the large tumor that was ultimately found on biopsy.

Try not to worry as you don't have enough evidence of what's going on at this point and these tests are far from perfect.

Best wishes for good results on your upcoming tests.

Unread 04-28-2004, 06:39 PM
I Didn't Waste a Good Panic... :(


I also hope it is scar tissue or adhesions. Your numbers still seem so low. I'm glad your doctor isn't taking any chances, and that he will do the best available tests.

It makes me so sad to read about possible recurrences. I hope hope hope yours is not. Really.

My prayers are with you.
Unread 04-28-2004, 06:45 PM
I Didn't Waste a Good Panic... :(

Well, drat, Linda!! It's great that your doctor is acting so quickly. Thank God there are so many tests available to help us out. You're in my thoughts and prayers. Let us know how you're doing.

God bless.
Unread 04-28-2004, 09:51 PM
I Didn't Waste a Good Panic... :(

Dear Linda,
I am going to just believe for you, that it is NOT a recurrence, and that it is scar tissue or the like... You hang in there and know that we are all praying for you!! You asked for the GodSquad...here we come!!!! We are here for you, Linda! Hope you hear soon that your number is LOW!!


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