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adenocarcinoma in situ adenocarcinoma in situ

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Unread 05-04-2004, 03:22 PM
adenocarcinoma in situ

In February I had my annual exam only to find out that my pap smear came back "atypical glandular cells, favoring neoplastic". I then went back in for a colposcopy/biopsy in which they found adenocarcinoma in situ in the cervix(although the endometrial biopsy was "normal"). I was referred to a gynocologist/oncologist and on March 19th, he performed a cold knife cone. A week later he gave me the results: there was one area of focus, but it wasn't as extensive as he thought - no invasive cancer but it was close to the outer margin. He said that for now I have no cancer but that I have two options for the future: 1)sit and wait approach - going back for frequent followups; or 2)have a hysterectomy (but this was not an absolute). I am returning to see him on May 10th and I am not sure which way I should turn. Some women around me say, "why have a hysterectomy if you don't need it?", I am thinking, "why worry about cancer if I am done having children?" Any advise would greatly be appreciated. I don't even know if what I had was even considered a particular stage. I guess any suggested questions to ask would be helpful.
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Unread 05-04-2004, 03:34 PM
adenocarcinoma in situ

I am so sorry you are going through this.

Not sure if my info. will help you decide but this was my experiance: I had a vaginal hysterectomy in Feb. 2004 for heavy periods and fibroids. My doctor and myself was in shock when the pathology report came back adenocarcinoma in situ 1A. My Gyn. thought I was cured but wanted to discuss my case with a Gyn/Onc. The Oncologist recommended I have further surgery (if I was his daughter or mother) to remove my ovaries, tubes and sample lymph nodes in groin area and abdomin area. Today I am one week post op and while I was still in the hospital he gave me the news negative no more cancer found. When I asked him what was the chance of recurrance he stated one percent. I am glad that I went for the second surgery since I too was done having babies.

You really need to find out the depth of your invasion, mine was 1.4. In my case I am glad I did everything possible to get the cancer out of me.

I will pray for you daily. Keep us updated.

Unread 05-04-2004, 05:58 PM
adenocarcinoma in situ

Hi, I had the same problem and did keep up with the frequent paps and procedures for many years until last May.... almost to the date I had my hyster. My problem was abnormal bleeding that could not be controlled and not the other, but since I had been treated so many times for abnormal paps and one cancer scare, I opted to have my cervix removed. It is your decision. This surgery is elective. My dr. actually sugested I first have an ablation. But, I didn't like the track record and study results. I felt like a walking time bomb with my hystery of abnormal paps and since I was done having babies I decided to have the hyster. My dr. actually sugested that I leave my cervix, since I had not had a reoccurance in 6 months, but I opted to have it out as well. I kept my ovaries though.

Have you been tested for HPV? This is the virus that can cause cervical cancer. There are over a hundred strains of it, some are invasive and some are not. It would be helpful to you if you new whether or not you tested positive for it and what type you have if you do. I have the virus, which was another reason I opted for the surgery. Having the virus does not mean that you will get cancer, however I read recently (I think in this month's Glamour Magazine) that the virus is responsible for virtually all occurances of cervical cancer. That was a great article, by the way. But one of the things that the article didn't point out was that even if you do have a hysterectomy and have your cervix removed, it does not mean that you are totally out of the woods. The HPV virus is also responsible for other types of cancer where it has come in contact with the skin.... such as the mouth, anus, and vagina. It is scary, but something to keep under consideration when you do have the virus.

Hope this helps.

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Unread 05-04-2004, 09:24 PM
adenocarcinoma in situ

since you adenocarcinoma is in situ there is no invasion, and most doctors say it is not yet cancer, just that the precancerous cells are definately more towards cancer, but on the outer surface of the cervix still. i had squamous cell carcinoma with a 1mm incasion 3 mm wide. stage 1a1 if that helps more. i also had AIS. ther eare many choices still for you. i had a LEEP procedure before hysterectomy (and how i found out it was cancer, the bioposy came back moderate/severe dyaplasia) the path report confirmed the LEEP had gotten all of the squamous cell, but could not confirm AIS, so she recommended another LEEP, i too am finsihed having children and said i would like to have a hysterectomy instead, i would rather be around for the 2 children we do have, we did not plan more anyway....anyway my path report from my hysterectomy was clean, the LEEP had gotten everything (is gotten a word, it is too late....LOL) and they sampled at each O'Clock around the cervix to be sure. i am still happy 3 weeks and 1 day later i had the hysterectomy, i do not have to owrry about cervical cancer again. but from ladies who still want a family, there is hope for them as well. i was fine after the LEEP, i personally think the hysterectomy was an easy to recover from surgery, i think it should be a choice for every woman who is finished carrying children!! everyone recovers different though, and i am sure it depends on which type you have as well. my doctor lifted all restrictions for me yesterday, including sex, of course my husband left this morning for a 7 week trip, but we did get to try one time, and he says sex is better than before, he cannot explain the difference, or even if there is one other than the no cancer relief, and i am still unsure, i was very nervous of course, not sure what to expect, but i would have to say it is still very very enjoyable, and this was some thing i really worried about. i was afraid to "move around" much becasue of stomach muscles, and everyone else saying it was too soon, even though the doctor said i was healed inside, and my incisions on the belly are completely healed as well. i wish you luck and feel free to ask questions if you want. after all i h ave been through lately i have no problem discussing it...LOL.
Unread 05-05-2004, 06:18 AM
I would do it

I had the same thing you did 7 years ago - after the colpo
they said nothing was there.

Then all clear paps for 7 years. I then had a watery discharge and my next pap said carcinoma in situ. I went for a cold knife cone and it was invasive.

My advise is to see a gyn/oncologist and get a second opinion.
A hysterectomy or radiation have over 95% cure rate. I really don't know why your doctor said what he did.

Go to an expert in this area - adeno carcinoma can be fast, and quick and it can be agressive.

Don't panic atleast you caught it early.

Good luck.
Unread 05-05-2004, 07:40 AM
adenocarcinoma in situ

Here is my story-
The colposcopy showed moderate dysplasia. 3 weeks later I had a LEEP which showed AIS with unclean margins. 6 weeks later I had a TVH which showed stage 1a adenocarcinoma. This was 2 and a half years ago. ( I am fine now) Hope this helps. I agree that you need another opinion.
Unread 05-05-2004, 11:07 AM
adenocarcinoma in situ

Thank you for all of your support and information. I have a little bit more information to bring with me on my followup - if anyone can think of any questions I should be asking please let me know.
My prayers go out to all of you.

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