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Unread 05-19-2004, 10:15 AM
Need Help/Sources for Advocacy Effort


Here's a link that discusses a recent study on the benefits of gynecologic oncologists in the care and treatment of women with endometrial cancer:

The actual study to which the above article refers is:

P.Y. Roland, F.J. Kelly, C.Y. Kulwicki, P. Blitzer, M. Curcio, and J.W. Orr, Jr.
The benefits of a gynecologic oncologist: a pattern of care study for endometrial cancer treatment
Gyn. Onc., April 2004, v. 93, p. 125-130

The abstract is available at

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Unread 05-20-2004, 12:57 PM
Need Help/Sources for Advocacy Effort

I believe Kaiser Permanente is the largest HMO in the US. The minute they found a tumor and elevated CA125, my doctor sent me off to the gyn/onc, and told me that he wouldn't be seeing me anymore, since he knew nothing about what I would be dealing with. I thus suspect that it is policy at Kaiser to immediately refer someone presenting with the right symptoms to the gyn/onc team. I can ask to see if there is some sort of written policy that I might be able to forward.
Unread 05-20-2004, 02:44 PM

If you would send anything that shows it's policy that'll help. I was able to get between 60-70 pages of stufies and recommendations and passed that along. I need more ammunition in case attempt #2 doesn't fly--I'll go to attempt #3.
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Unread 05-23-2004, 05:52 PM
Need Help/Sources for Advocacy Effort

Dear sisters,
I am from Canada, and my surgery for endometrial & endocervical cancer was performed by a regular ob/gyn. My GP was present during the surgery as well. I was never referred to a gynecological oncologist even though I asked for one after the surgery. My medical records were sent to the cancer clinic and reviewed and on that basis I received a letter informing me that no further treatment would be necessary.

I had complications with my surgery. My bladder ruptured because the bladder was damaged during the surgery because it was "stuck" to the uterus. Ten days later I needed an abdominal bladder repair surgery while I still had a chest tube in my back because of water on the lung. They had to drain 10 litres of fluid from my body. My hysterectomy nearly cost me my life.

I am humbly grateful that so far my all my 3-month checkups have found no further cancer and that I healed well from the surgeries. Next week I will be seeing a pelvic reconstruction specialist because I have had many bowel problems (prolapse) since my hysterectomy.

I am so glad that you sisters are trying to ensure that every woman who presents with gynecological cancer will be referred to a gynecological oncologist! I want every woman to receive the best care possible. Blessings to all you sisters!

TAH/BSO Dec.02
Unread 06-02-2004, 07:34 PM
Need Help/Sources for Advocacy Effort

Hi Ellen
I had my gyn for my surgery but he also had a gyn oncologist on standby when the frozen section of the pathology came back if my lymph nodes were involved the gyn oncologist would have taken over.

Have you tried the American Cancer Society or
Yale New Haven Cancer Center
800 Howard Avenue
New Haven, Connecticut

I'm with you if my doctor didn't mention it I would not have even known about gyn oncologist except from hystersisters

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