HELP....... 2+ years post op - vaginal bleeding | HysterSisters
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HELP....... 2+ years post op - vaginal bleeding HELP....... 2+ years post op - vaginal bleeding

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Unread 05-16-2004, 08:39 PM
HELP....... 2+ years post op - vaginal bleeding


Don't know if I'm posting in the right place or not, but thought I'd give it a try.

I had a TAH in Oct 2001 and then later on a rectocele repair. Haven't had a lot of complications sinces except for severe low libido (not taking any HRT).

Anyway, I had on and off been having a slight discharge, which I was told was probably due to the mucous lining of the vagina thinning after the hysterectomy, and that it is quite normal. Approximately 4 months ago, I had a spot of bleeding and went to a local clinic, where I was basically told that it was impossible for me to bleed after having a hysterectomy and "Was I sure". I was so annoyed that I couldn't be bothered going back to either the clinic or to my own GP. So, for the past few months I kept having intermittent vaginal bleeding (very red). I have no pain or discomfort anywhere that is of any significance. I went to my own GP 2 weeks ago, and he did a urine test and swab, which came back fine. I have been booked into seeing my gyno - can't get in till mid June though. I am a bit concerned as my father died from bladder cancer many years ago, and from what my mom tells me, was bleeding for quite some time prior to being diagnosed. I was wondering if anyone else had had these symptoms, or if anyone has any suggestions, ideas what it could be?


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Unread 05-16-2004, 09:07 PM
HELP....... 2+ years post op - vaginal bleeding

If I were you I'd call my doctor's office the first thing tomorrow morning. If he's not the one who did your surgery, explain that you've had abnormal bleeding and need to have it checked. Tell them also about your dad. Make them see you and trust me you can MAKE them. If nothing else, you can go to the office and wait to be worked in...just take a good book and be patient!!!
Post again and let us know how you are.
We'll keep you in our prayers
Unread 05-17-2004, 06:29 PM
HELP....... 2+ years post op - vaginal bleeding

((((June)))) I'm so sorry you're having these problems

I agree that you need to call your doctor and voice your concerns: do mention that you've had the hyst and have been having these bleeding episodes. And, most of all, mention your dad's experience and how concerned you are that you may be having similar problems. And, please, insist on having an earlier appointment.

Sending lots of s your way. Please don't worry too much: it may not be anything serious after all.
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Unread 05-17-2004, 09:29 PM
HELP....... 2+ years post op - vaginal bleeding

Yes, please call your dr.'s office again and re-explain to them your problem. You should NOT be having any bleeding at all after having a hyster...... unless, you kept your cervix....

Some ladies do experience mini periods after their hysters if they have kept their cervix. This is because the dr. can't always get all of the cells that slough off in a monthly cycle when they just remove your uterus. Your cervix is the opening to your uterus and not really separate. Your dr. may have gotten most of these cells, but not all.

If you HAVE had your cervix removed and you are bleeding, that is a different situation, and one that should be addressed right away. Tell your dr. about your family's history of cancer. Abnormal bleeding could be an early sign that you don't want to overlook.

Let us know what happens, ok?

Unread 05-18-2004, 06:46 PM
HELP....... 2+ years post op - vaginal bleeding

One more thing I wanted to add: you may want to journal your bleeding episodes. This would help to identify potential triggers (ie: having sex) or patterns (ie: once a month, every month).

If you have kept your other ovary you might be having mini periods. This sometimes happen even when the cervix is removed, when some cervical tissue is left behind.

Hang in there please let us know how you're doing
Unread 05-18-2004, 11:29 PM
HELP....... 2+ years post op - vaginal bleeding


Thanks for your responses. I am still trying to get my gyno to see me before mid June . I have been put on the cancellation list, so I've got my fingers crossed.

In response to Dany, I have had both ovaries removed and my cervix, so I don't think that it could be the mini period thing. I thought that at first, then realised that I don't think it could be physically possible. Unless it's a psychological thing? It doesn't seem to occur in any pattern, or after doing anything - sex, exercising etc, just spotting intermittently.

I will let you all know what happens when I finally get in to see my gyno.


Unread 05-19-2004, 12:16 AM
HELP....... 2+ years post op - vaginal bleeding

Have you had regular vaginal vault Pap smears? Unfortunately, cervical/ vaginal cancer (usually, though not always, due to HPV -- something that most of us carry) can happen even after a hyst.

I would be curious about whether you can feel anything different during sex? You say that you've had a "severely low libido" and certainly vaginal thinning, both from disuse and low estrogen, can cause bleeding just from tissue damage (presumably you're using lubricant when you do have sex??).

You do need to get in ASAP. If it is vaginal cancer (obviously I hope not, but what you describe is similar to its presentation), it can move quickly. I understand how the doctors' offices are these days -- my own doctor takes over a month to get into -- but time would be vital. You may want to see if you can get into an oncologist -- they are more accustomed to an "abnormal" appearance of the vagina, and would better be able to assess the tissue there in a post-hysterectomy situation. It sounds like your GP would be in over his head -- and if cancer IS found, your odds of an improved outcome lie with having a GYN-oncologist take a look at you.

Also, since you've had a LOT of surgery, they are far more expert in complex procedures, should they find anything in the vagina needing surgical attention.

I sure hope you get some answers SOON! Keep pushing your doctors to get attention. It's not an "emergency" -- but there should be some urgency to getting this evaluated. You may also want to post about this over in Cancer Concerns -- perhaps your symptoms will be familiar to someone there...

Unread 06-07-2004, 04:35 PM
HELP....... 2+ years post op - vaginal bleeding

Hi guys I have this posted in Cancer concerns also, but just thought maybe someone here might be able to shed some light!

Thanks for you posts. I got into see a oncologist gyno last week who did a pap smear and a biopsy, then sent me off for an scan. I went back today for the results. The pap smear and biopsy were ok except that I have a form of dermatitis of the vulva. However, the scan came back inconclusive. It appears that at the top of the vagina I have well "something" that he is not sure of. At first he thought that it was the cervical stump, but after he checked with the gyno that did the hysterectomy it was found that the cervix had been removed during surgery. (which is what I told him anyway). Whatever it is is quite vascular. He is not sure what it could be and is now quite concerned. He told me to book in with one of his colleagues who specialises in gyno ultrasound scans as soon as possible. I can't get in until next week, so am a bit stressed as it will then take another couple of days until I get the results.

Has anyone heard of anything like this before? Any suggestions?



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