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new mass found after hysterectomy new mass found after hysterectomy

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Unread 05-18-2004, 11:47 AM
new mass found after hysterectomy

I am new to this site. I went to the doctor on Friday because of right sided pain. I have no ovaries left. He found through vaginal ultrasound a small solid mass. I am waiting for bloodwork results. My doc is checking FSH and Estradiol levels. I'm scared that this might be cancer. Anyone else have this happen?
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Unread 05-18-2004, 08:42 PM
new mass found after hysterectomy

Dear Suziee,
I'm so glad you found this site! There are a lot of "sisters" here, and everyone is really supportive. I don't have any info for you, but surely someone will come along who has been through the same thing. I just wanted you to know that I hope the very, very best for you.

Unread 05-19-2004, 05:30 AM
Thank You

Thank you so much. I am feeling better since I have been to this site. I think this will help me get through.
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Unread 05-19-2004, 08:19 AM
I went through the same thing

I just had surgery for the same thing. Part of my problem was referred to as ovarian remnant syndrome. I believe they are probably doing blood tests for you to see if it is producing estrogen. I was unaware of this syndrome and thought after a TVH that I was done with this sort of problem. The growth had caused problems with my ureter and shut down my kidneys. It was not cancer, the surgery I had was and open proceedure and the healing is a little more tricky, but I am two weeks out and glad to have it over - hopefully for good. I had an ONC/GYN do the surgery and would recomend you consult with one. There are other types of problems you can have though, have they done a CA125 test? This is not a definitive tool, especially if you have endo or other problems. I went through that testing and the not knowing was hard. I hope you have good luck with yours. I also had a CT scan and a trans-vaginal ultrasounds to see if the tumor had a blood supply. I guess they can tell a great deal from that. I am crossing my fingers for you! Hang in there! By the way what was the reason for your TVH? Did you use HRT?
Unread 05-19-2004, 02:02 PM
new mass found after hysterectomy

Hi Majik:

Thank you so much. I had endometriosis back in 1993 and continual cysts forming and rupturing every month. I also had adhesions from all the surgeries. I have not had the CA-125 test yet. My doc didn't mention it. I did have the transvaginal ultrasound which is how my doc new there was a mass. I never used any HRT. I decided to see if I could handle it on my own. In the beginning I had some hot flashes but nothing horrible. If this is ORS, no wonder my "menapause" has been so easy. If I do have another surgery it will be #11. I have had several laparoscopies, 2 cystoscopies, 1 hysterectomy in 99, and the final oopherectomy in 2003. I have had about 1 surgery every year.
I should get the results of the FSH and Estradiol tomorrow. This is sad, but I am praying it is ORS. It's better than the alternative.
I am glad you are feeling better. How long do you have to take off for this surgery? Is it like a hysterectomy where you have to take 6 weeks? I have my own cleaning business and I don't know if my customers will stick with me since I just took 6 weeks off last year.

Unread 05-19-2004, 02:55 PM
new mass found after hysterectomy

Dear Suz:

I'm so sorry. This is a terrific site, full of compassion and insight. Stay with us and post often, ok?

I was diagnosed with Fibroids, but told the doctor I wanted a hyst and to please remove everything. I just had this weird feeling about the whole situation. When they removed my uterous, they discovered that I had cancer. After two agonizing days, found out the cancer had not spread to my lymph nodes.

I'm in Radiation therapy right now, looking at vaginal radiaiton in June.

I am staying positive and living each good day with gusto.

You can too. Honest.

Much love and hugs
Unread 05-19-2004, 07:38 PM
I hope it is ORS too...

I was put on HRT which fed the cysts and endo. I had 8 surgeries prior to this. I thought that the surgery was similar to a c-section recovery. No pushing, no pulling, pelvic rest for 4-6 wks. They said no driving for 2 wks and no housework for 6 wks. They keep the pain in check with moraphine in the hosp. and pills at home. I felt a little like a turtle at first because I had a hard time getting up and down and once on my back I had a hard time rolling over. I am doing OK now and am driving. I try to listen to the no lifting over 10 lbs. I think with your line of work that you will have to be careful. The waiting is the hard part. I will watch the site to check on you. Good luck.

PS. These ladies have great tips here so keep posting.
Unread 05-20-2004, 02:44 PM
Mass IS Ovary Remnant Not Cancer

Hi All:

Thanks to everyone for your support. I am greatful that this is not cancer. Unfortunately I still have to deal with this because it is causing me so much pain. I have 4 choices. BCP, Progesterone, Radiation or Surgery. I can't take BCP, bad sideeffects. I am trying the progesterone. Started it today. I don't want radiation. The doc told me the surgery is very difficult. I hope this works. Has anyone had to deal with this?



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