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Endometriosis after TAH/BSO Endometriosis after TAH/BSO

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  #1  
Unread 04-05-2000, 08:44 PM
Endometriosis after TAH/BSO

Has anyone had problems with endometriosis reoccuring after TAH/BSO? Now 9 weeks post op and seem to be having more problems with intermittent sharp pain, bowel difficulty etc. Would be interested in hearing from someone that has gone through this.

Due to the amount of endo found, HRT is not an option for at least a year according to OB/GYN. Any suggestions on how to handle the abrupt menopause without HRT? without stimulating the Endo?
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  #2  
Unread 04-06-2000, 06:14 AM
Endometriosis after TAH/BSO

HI have you tries SOY for menopause? doc suggested it for me yesterday have got the rx filled yet. should also post this on HORMONE JUNGLE they are alot of help. ((((((hugs))))))

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Pamela TAH/BSO 2/24/00
  #3  
Unread 04-06-2000, 07:04 AM
Endometriosis after TAH/BSO

I didn't have endometriosis, so I cannot relate to the pain you are having. But I had my surgery ten months ago, and I am not on any form of HRT. This is not by choice, it is because of a problem with blood clots. I suffer from all the symptoms of menopause -- hot flashes and night sweats being the worst. The only advice I can give you is to dress in layers, so that you can remove certain articles of clothing if you become too warm. At night, just cover in a light blanket. When it is possible, I keep a large glass of ice water with me. When I feel a hot flash starting I sip on the ice water. I also noticed that within ten or fifteen minutes after drinking coffee, the hot flashes are very intense so I have cut down drastically on the amount of coffee I drink. I hope I've helped a little. I agree with Pamela, too. It might help to head on over to the Hormone Jungle message board. I'm sure you'll get some great advice from the ladies there. Best wishes,

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Catherine, Rhode Island
TAH/BSO 5/25/99
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  #4  
Unread 04-06-2000, 07:07 PM
Endometriosis after TAH/BSO

Hi Masters1. I also had a severe case of stage iv endo. Occasionally I get a pain and sometimes I have trouble with bowel movements. I'm at this point chalking it up as normal. My doctor warned me that I'll be nervous about every pain - but don't blame them on recurring endo. If you wait to start hrt, the chance of recurrance is less than 1%. You are a better woman than me. I could not handle the hot flashes and started hrt at about 3 weeks. The chances are a little higher the endo will return - but I was not able to function. Good Luck with your recovery.

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Janie in Michigan
TAH/BSO with much repair 11/4/99
[email protected]

[This message has been edited by Janie (edited 04-06-2000).]
  #5  
Unread 04-07-2000, 08:16 AM
Endometriosis after TAH/BSO

I am also interested in this, as I also had endo. In fact still do. I posted this question on the main board but really didnt get any responses to it. I guess no one really knows much about it. I am 5 weeks postop from a Total LAVH. Still have ovaries(giving me a real problem)I dont understand why since as I understand that they feed the endo.( The hyst was done because of severe bleeding) By the way, I am curious, why do you have to wait a year for HRT? doesnt that also feed the endo? I know that there are natural HRT over the counter. I saw a commercial for on the tv for. Maybe those might help a bit.(just a suggestion) I hope that you get more responses to this question, and good luck. https://www.hystersisters.com/ubb/smile.gif

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C.L.
TLAVH
3/2/00 http://www.geocities.com/lisagraphics/angel01.gif
  #6  
Unread 04-07-2000, 06:10 PM
Endometriosis after TAH/BSO

Hi Cake Lady. This is info. from my doctor. He was quite renowned in the area of endometriosis and I really trusted him. He left the decision of hrt up to me but gave me the following statistics:

If you have a hysterectomy:

If you keep your ovaries, there is a 50-60% chance of endo. recurring.

If you take out your ovaries, but start hrt right away, there is about a 10% chance of endo. recurring.

If you take out your ovaries, but wait 6 months to start hrt, there is less that 1% chance of endo. recurring.

I chose to remove my ovaries, but after 3 weeks could not function with the hot flashes and started hrt.

The reason waiting to start hrt helps is because the endo implants need estrogen to live and grow. No matter how thorough your surgeon is, sometimes microscopic bits of endo. can be left behind. If you keep your ovaries, they continue to produce estrogen and can cause some left-behind implants to grow - same with starting estrogen replacement therapy. If you wait six months and can survive with zero estrogen, the implants can't survive and die out. While estrogen encourages the growth of endo. progesterone discourages the growth of endo. If you start on estrogen it is important to start progesterone also.

Hope this helped. Good Luck!
  #7  
Unread 04-08-2000, 12:04 PM
Endometriosis after TAH/BSO

Janie:
Wow! You are on the ball girlfriend. https://www.hystersisters.com/ubb/smile.gif What an interesting reply you posted! I think that now I really do need to talk to my gyn. about this. I had thought that if the ovaries were left in that there was a possibility that endo could come back. My only question is - how long could it take, could it be immediatly? I dont know if you read some of my other posts on the main board,but I am experiencing some problems with what we might think is my ovaries, (not sure yet). Thank you so much for the info. You are great!!!! https://www.hystersisters.com/ubb/wink.gif

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C.L.
TLAVH
3/2/00 http://www.geocities.com/lisagraphics/angel01.gif
  #8  
Unread 04-08-2000, 12:16 PM
Endometriosis after TAH/BSO

Hi again Cake Lady

Definitely talk to your gyn. As far as the timing goes - I don't think there is anything definite on that. Not only is everyone different, much also depends on the skill of the surgeon. The thing to remember is if you keep your ovaries, the chance of recurrance is there for the rest of your life (even after menopause, but the chance is much reduced). On the other had, giving up your ovaries sends you into immediate menopause - which has its whole set of problems. So the decision is a tough one, for sure.

What types of problems are your ovaries giving you? My doctor suggested being real careful about blaming endo. for pain initially. They really mess with things in there and it takes about a year to be fully healed. Pain can just be normal recovery pains and doctors don't like to jump the gun saying it may be endo. returning.

For young people (less than 40) my doctor usually recommends leaving the ovaries if they can be cleaned up enough and are not very damaged. But he ultimately leaves the decision up to the patient. I was lucky to have a very kind and gentle doctor who was very experienced with endometriosis. Most gynocologist are not.

Good Luck and talk to your doctor. I'll keep you in my prayers.


------------------
Janie in Michigan
TAH/BSO with much repair 11/4/99
[email protected]
  #9  
Unread 04-08-2000, 02:41 PM
Endometriosis after TAH/BSO

Thank you for all of the responses. It really helps to shed some light on things and remind me I am not alone. https://www.hystersisters.com/ubb/smile.gif
  #10  
Unread 04-18-2003, 01:29 PM
post-op (TBO) scar tissue riden pelvis with new cysts

Hi there,

Read all your postings with great interest about the post-op endo.

I went to the gyne yesterday and had real bad news. He said I was not imagining all the pain I was going through. The ultrasound revealed complex cysts ( yes again) on the right side where the ovary was ( though he claims to have removed it all) and it is lodged between the kidney, the bladder and the ovary.

I had started the Swiss formula HRT which worked wonders for my menopausal symptoms. I was so happy as I went back to the gym and was active and then bingo I am hit with this problem.

The right side where the ovaries were and no longer there seems to have complex cysts. So there is a lot of concern over this . the largest cyst is already 4 cmx4.2cmx4.3 and there are other smaller ones. The gyne was not too happy as he said that he has to take me off the hormone replacement stuff with the hope of shrinking the cysts.. so 14 days from yesterday i will have to go for a blood test which will show if I am still secreting estrogen and if so he will put me on LUPROn which will force me into menopause.

I have been warned ahead of time that the second option is going to put me through hell. The doc is hoping it is cysts that can be shrunk as he said he is not too keen on doing another major surgery on me as the last one had and was loaded with complications.

HE said it was a zoo and he will not do the surgey for me again as he will need two other surgeons ( a urologist and another lead gyne to help him with the next surgery) to perform the next one. He has said the next one ( surgery ) will leave me bed ridden as my right leg, my right kidney will have to be affected with the surgery as the cyst is right there. Also I wld need a colostomy ( which is where my arse gets plugged and my colon is connected to a bad outside of my body). So that is the long and short story.. Am I happy, NO!!

So we are going to see if the cyst can be shrunk naturally and make me take a rain check on the surgery.

It has drained me immensely and I was also told that these are gentic. . my first surgery is what caused this to happen. It had created major adhesions and major cuts and nicks and what not in my stomach.

The OB & Gyn or whatever they call them. She said MY LIFE STYLE WILL be ruined if my doc has mentioned there will be a colostomy as she says it is a dreadful thing.. over and above that , she said once they go in again there will be other major surgeries I will go .. So why do i need this constant harrassement.

If anyone has had post-op endo and also had two prior surgeries with real bad ahesions and scar tissues, did it warrant a surgery to remove the cysts or what was done. ANy information would be helpful. Thanks a lot Usha emister
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