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Back to the GYNO - maybe vulvodynia....... Back to the GYNO - maybe vulvodynia.......

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  #1  
Unread 06-03-2004, 08:19 PM
Back to the GYNO - maybe vulvodynia.....and I'm terrified!..

Hi girls,
Those who may be familiar with my story (long & heartbreaking for me) will know I've now had candida glabrata - was treated with GyneLotrimin - don't know if it's cleared up or not, the whole urogenital area is so inflamed and burning and irritated. Got the GP to do another swab yesterday to send away to see if thrush has gone. GYNO (2 hrs away) suggested if I still have all the discomfort I should see a specialist (mate of his) in vulvadynia - now I'm terrified I have something they can't fix! Burning entire urogenital area, irritation causing constant feeling want to wee........, no real pain, just burning. This has been ongoing since LAVH Novr.03 and reps. Feb. 04. At that time gyno was sure it was connected to imbalance of ph due to many, many, antibiotics, but have that OK now. I take probiotics, eat yoghurt, have cut out sugar, lost 3 stone since Novr. Just can't seem to stop crying - it's been going on and on and on, and my family, although very supportive, is getting tired of all this, so am I - all I want to do is get on with my life and enjoy my grandchildren. I'm so sad! and frustrated!
ADD ON: Have just phoned for appointments with gyno and vulva person - next Wednesday, 9th June. Please pray for me ladies! I am terrified..............
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  #2  
Unread 06-03-2004, 11:20 PM
Back to the GYNO - maybe vulvodynia.......

Hi Sis,

I'm so sorry, I thought you were on the road back. I'm going to do some research and get back to you. I'm Praying for you!
  #3  
Unread 01-11-2005, 03:44 PM
Back to the GYNO - maybe vulvodynia.......

I felt just the same as you, about 18 months ago Pre-op and because i always get thrush i thought i was starting with it again. Things just felt different to thrush and i spend a fortune on over the counter stuff to treat it, as i thought this was all it could be. itchy fairy = thrush (fairy is virgia in our house)
At the end of my tether i went to the doctorsafter trying to sort it out myself, and was told it sounded like a urinary track infection and left with antibiotics, i walked out on a high just the thought of it being something which could be treated which was not thrush....... well the med did the trick and i was so happy, lets hope you get sorted out soon as if you are not right down there it seams to be on your mind all the time and wears you down. i dont know what caused my infection but it has returned once since that first time!!! any advise would be helpful.
Debbie
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  #4  
Unread 01-22-2005, 06:10 PM
wow sounds sooooo much like me!

Wow! I was surpirsed to know that I am not alone with the THRUSH thing! I have also spent a fortune on this and have gotten no relief! I am 5 years post op and my doctor can't seem to get it straightened out either! (PLEASE READ MY POST on POSt op boards). I have explined my situation the best that I could on that board and it is quite lengthy. I am wondering what kinds of meds are out there to help oral thrush? My doctor (and dentist) have both given me Mycostatin and Diflucan. Neither of them worked. Well I was on heavy doses of Diflucan (200mg's a day for five weeks) and that was helpful while the medication was in my body. As soon as the meds wore off the thrush came back again. I am at wits end now and can honestly relate when you say you feel like this is going to continue for the rest of your life! It is soooo depressing too! I also have a very high needs child and have no help from family as I grew up without my biological family and have no support for this! There is just me and my son. I need all the advice I can get for this too! I relly wish you well. Maybe both of us can find a solution here. I am not too sure if I have had vag. thrush but it is more than like I did. Have you had oral thrush as well?
I haven't really cut out all of my sugar but have tried the yoghurt thing and did not really notice too much of a difference! If I do hear of any other solutions to this I will most certainly get back to you and let you know ok...
Again I wish you lotsa luck on yor road to recovery...
Sandee
  #5  
Unread 01-22-2005, 06:26 PM
Back to the GYNO - maybe vulvodynia.......

I am 5 months PO from SAH. I have dev. vulvadynia. I had several uti's pre-op and 7 since surgery. In Dec. dr. swabbed for yeast and it was neg. but my research for vulvadynia says the quick test will often turn up neg. and a culture will show positive.

The burning is so bad. I just finished 3 months of profalctic anitibiotics and again had a new uti. Tonight I can hardly walk from being SO irritated both inside and out.

My dr. prescribed nortritlyne because it is helping some with the nerve pain of vulvadynia. It's also an antidepressant in higher doses. The other day I had a fleeting thought that maybe the answer to months/yrs. of pain and suffering is in the bottom of that bottle. Then I got a grip. But this constant burning is so terrible tonight. I never had this before my hyst.

I also am pretty sure I have a rectocele and that is really bulging today and it hurts so bad and is kind of itchy.

I need a pelvic transplant I think. :-(

My GP made an appt. for me with a vulva pain specialist. I only have to wait 3 months for the appt.
  #6  
Unread 01-22-2005, 07:40 PM
Back to the GYNO - maybe vulvodynia.......

I really feel for you ladies. I'm having internal problems since the hyst, but not the external - it is so scary that we go from doctor to doctor and it just doesn't help. Last night I was actually beginning to believe it was in my head - and maybe psychoanalysis was the answer. There's also acupuncture. Has anyone tried that? Anyway - I read a story about a young woman with vulvadinia in a women's magazine a while back. She got it when she was a teenager, married a guy, and they couldn't even consummate her marriage. Finally, she got it under control when she was about 30 after trying many therapies. I wish you all the best of luck in your quest for answers.
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