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Very Bad News--Not Panicking Yet Very Bad News--Not Panicking Yet

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  #11  
Unread 06-04-2004, 08:17 PM
Very Bad News--Not Panicking Yet

s Ellen

You are sounding in complete control of the situation!!!
I agree, give that tamoxifen a try. If you fall in the 18 to 20% who respond well, you could have a very nice chemo break.
If not, there are lots of other drugs out there yet for you.
I have two friends in a similar situation right now.
Both ended back on taxol alone every threee weeks, with no carboplatin. Taxol alone has been fairly gentle as far as side effects and their ca 125's have plummeted.
Hang in there dear friend.
Time to make some plans for the OCNA conference in September.
I know you want to meet some acor ladies in person and vice versa.

karenann
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  #12  
Unread 06-04-2004, 10:06 PM
Very Bad News--Not Panicking Yet



Ellen, I was so sorry to read your news. But I am also always in awe of your determination to be clear on what you want and what you will do and your fighting spirit.

You know you're in our prayers.

  #13  
Unread 06-04-2004, 10:15 PM
Very Bad News--Not Panicking Yet

Dear Ellen,
I am sorry to hear that your numbers are rising, but glad that you are feeling well. I keep you in my prayers, Ellen. I am really praying that they find what will work for you , and that your CT scan is clear!! Let us know.


Rhonda
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  #14  
Unread 06-05-2004, 12:43 AM
Very Bad News--Not Panicking Yet

(((Ellen))):

You're in my prayers!

(((surferbabe))) has been writing about her experiences with DIM, since she can't tolerate Tamoxifen. If this is ER positive, any chance of trying that?

You know my thoughts are always with you!



Audrey
  #15  
Unread 06-05-2004, 04:55 AM
Very Bad News--Not Panicking Yet

Ellen,

Sorry to hear about the recent increase in your CA-125, but all your other "positives" are certainly a very encouraging sign. I would suspect that they will want to test your tumor for estrogen receptors first before starting you on the Tamoxifen or other hormone treatment such as Arimidex, no?

Best of luck and may you continue a very long journey with good health.

MoeKay
  #16  
Unread 06-05-2004, 06:30 AM
Very Bad News--Not Panicking Yet

Ellen -

I am so sorry to hear those numbers are moving up. I am praying that the chemo guru will find an easy coctail to stablize your numbers.

Good sign though, that you feel well. I hope the CT scan is clear or at least informs the process.

Dorrie
  #17  
Unread 06-05-2004, 06:53 AM
((((((Ellen)))))))))

I am so sorry to hear of your problems. May the Onc guru, find the right combination for you. I am glad that you are keeping your chin up and your spirits high.

I am sending you HUGE s and many many ers.


God Bless
  #18  
Unread 06-05-2004, 09:58 AM
Very Bad News--Not Panicking Yet

Dear Ellen.....Have the doctors ever suggested Hexalen? It is not just used for maintenance. The research studies looked great. It is no longer considered experimental. It is only used for OvCa now. There are so many new drugs coming out. They will find the right one for you I am certain. I will keep you in my thoughts and prayers.

Bertha
  #19  
Unread 06-05-2004, 10:06 AM
Bertha

Hexalen is my first choice of chemo if we don't try Tamoxifen or it doesn't work. There is a secondary concern with it, but...isn't there with everything.
  #20  
Unread 06-05-2004, 10:17 AM
Very Bad News--Not Panicking Yet

Dear Ellen....yes there seems to be concerns with everything in life. I hope your scan results are clear. You are in my thoughts and prayers always.

Bertha
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