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Very Bad News--Not Panicking Yet Very Bad News--Not Panicking Yet

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  #21  
Unread 06-05-2004, 06:32 PM
Very Bad News--Not Panicking Yet

Dear (((Ellen))) I am sorry to hear of your recent bad new but that positive, fight-um attitude of yours has got to help. You remain in my prayers and thoughts. s, peggiesue
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  #22  
Unread 06-05-2004, 07:14 PM
Very Bad News--Not Panicking Yet

Ellen,

Something else you might want to add into the mix is DIM, which helps the liver process estrogen into the "good" estrogen vs. the "bad" estrogen. It doesn't react negatively with chemo, and is a side-effect-free supplement.

Taxol seems to be working for me. I am just doing low-dose, but I'm not really having any side effects. My hair has come back (yay!) and my strength is still good.

My doctor recently told me, "I'm starting to be convinced that exercise and activity is the key to preventing recurrence." He hasn't shared any anecdotal evidence with me previously, so I took this statement to have some weight.

This may be a stupid question, but can a CA125 elevate without cancer being present? Or, if chemo doesn't seem to change an elevated CA125, can someone live a long time after their CA125 has elevated?

You know my heart and prayers are with you, dear Ellen. There's lots of stuff out there yet to try. I'm glad you have doctors who are willing to keep moving forward with you. :-)

s!
  #23  
Unread 06-05-2004, 08:45 PM
Very Bad News--Not Panicking Yet

Ellen,

I am so sorry to hear about your elevated CA-125 numbers but it sounds like your holding up in spite of it!

I will be saying many ers that you slay this :dragon: for once and for all. You have dealt with more than your share and you are an inspiration to us all.

s
Linda
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  #24  
Unread 06-06-2004, 12:10 AM
Very Bad News--Not Panicking Yet

Dear Ellen:

I am sending you lots of love and thoughts of roses in bloom, peaceful nights with glittering stars and miles and miles of open, beckoning roads.

We were just discussing Tamoxifen in my support group this week. It really helped one lady. Her Chemo stopped working too and she found Tamoxifen to be a great help. Hope it is the same for you.

Becky
  #25  
Unread 06-06-2004, 04:32 AM
Very Bad News--Not Panicking Yet

Ellen,

You are so pro-active, which is to be admired. I was so impressed with the fact that you gave your doctor a plan of what you would consider and what you would not consider.

Like all our other 'sisters' here, I wish you the best results with the scan and the future treatment.

And a big
  #26  
Unread 06-06-2004, 10:04 AM
Very Bad News--Not Panicking Yet

Ellen,
sorry your numbers are on the rise. Will keep you in my prayers.
Andrea
  #27  
Unread 06-06-2004, 10:11 PM
Very Bad News--Not Panicking Yet

Ellen, I am so sorry to hear about your increasing numbers.
I'll keep you in my prayers that you find the right combination
to help you. You have been such a friend on the prayer board.
I'm sure you have sisters over there who would like to pray for you if you feel like posting a request. I hope your special
nuns are ready to help you fight the battle!!! Between your sisters and the hystersisters, you are bound to have good news!!
  #28  
Unread 06-07-2004, 03:47 AM
Very Bad News--Not Panicking Yet

hey! don't worry!

i know i can't talk about this subject much but all i know is that there are HEAPS of different treatments and your doctor should discuss them with you.

i knew this woman (still alive, lost contact) who had come back after her first 6 cycles of chemo hadn't worked. she was on a diferent chemo, and i was told that there are at least 3 more different types you can do if the other chemo doesn't work.
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