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Newly diagnosed with cervical cancer 1a1 Newly diagnosed with cervical cancer 1a1

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Unread 06-11-2004, 09:51 PM
Newly diagnosed with cervical cancer 1a1

I am sorry to hear of your diagnosis. i was diagnosed in March with squamous cell 1a1 and AIS. This was afrer a LEEP procedure. my margins were clear on the cancer, but not the AIS, since i was 25 at the time my ONC recommended another LEEP to determine clear margins, i however have 2 children, have been married 9 years, and no plans of having more, so i choose to have a hysterectomy. my pathology report came back that my cervix was perfectly healthy, the LEEP worked for me. i am curious if you have not had children why are they not trying alternatives for you? this is something you should check into if you do want to consider having a child. there is always a chance the LEEP could work for you. i would recommend a hysterectomy still once you have your children, but you could possible preserve fertility until then. if you have any questions or want to talk, feel free to ask!!!
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Unread 06-11-2004, 10:33 PM
Newly diagnosed with cervical cancer 1a1

Hi Connie. I have no idea if they are going to check out the lymph nodes when they do the surgery. It wasn't a question I thought to ask but I will be sure to mention it before the surgery.

Hi dagiffen. I think a hysterectomy is the standard recommendation for a cervical cancer diagnosis in this province. I was not surprised when the recommendation came back because I had been doing some research on the BC Cancer Agency website. But they made it very clear that it was still my choice and that's the decision I've made. We can always adopt if we decide down the road that we want children. I would rather be "cured" than try to preserve my fertility when I may never use it.
Unread 06-15-2004, 02:02 PM
Newly diagnosed with cervical cancer 1a1

Hi Fay---

Sorry to hear about your troubles. I agree that waiting is the worst. I am so thankful that my ob-gyn oncologist is 30 minutes away.

I think you should take your trip. I had a hysterectomy for endometrial cancer --stage 1b last July17, 2003.
I was lucky enough that my surgeon relased me to ride in a car to Florida with my 3 other friends---had to get out of the car every hour which made for a long trip from Missouri to Florida.
Sometimes you just need the sanity and a change of scenery.
I pray to God a lot and that seems to help me with my waiting.
I waited from my d & c on July 3 until the next week after the holiday to find out it was cancer ---the worst 7 days of my life.
Also try to listen to soothing music---seemed to help pass the time too.

I wish you the best.
Ro ro the sub

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Unread 06-15-2004, 05:01 PM
Newly diagnosed with cervical cancer 1a1

Hi Fay,

I am sorry to hear that the diagnosis was cancer and that a hysterectomy is in your future.

Being a mom of two grown sons I can certainly empathize with all of the emotions you must be having. However, there are lots of children out there needing wonderful loving homes with healthy energetic moms to love them.

Please take good care of yourself. Your health and wellbeing is very important.

Unread 06-15-2004, 05:26 PM
Newly diagnosed with cervical cancer 1a1

Hi Fay, Seems like I was just in your same shoes. I am fortunate enough to live 10min from Stanford University Cancer Center which is where I had my TAH on 5/25 diagnosed with stage 1a
as well. 90% of the time that stage is so contained surgery is the only treatment needed. They did take 14 nodes as well as part of the vagina, cervix, uterous and sourounding tissues all to be sent to pathology. In my case the tumor was within 4mm and path came back normal, but as you can see they were very aggresive with the surgery. I am recovering well. So if you can get past the waiting it will go better than you think. Just think of it as a few months set back from your life which you will have back in no time. Be positive and know you will be saved. Good luck on the surgery!
Unread 06-15-2004, 06:17 PM
Newly diagnosed with cervical cancer 1a1

you sound quite level headed. I commend you. I will also pray you have a full recovery.
Unread 06-18-2004, 06:03 PM
Newly diagnosed with cervical cancer 1a1

Hi Fay,
I have been having abnormal paps since August 2002 (Mild Dysplasia Stage1). I have had 9 biopsies, 2 leep's and 2 cryo's. The doctor could not understand why these procedures would not work and what confused me was, after the leep, he takes a biopsy of your cervix and sends if to the lab to see if abnormal cells are present. Both times, the biopsy came back normal. I thought I was out of the woods. So, after all this, my doctor suggested a hysterectomy. I asked him about the cone biopsy but he said it was similiar to the leep, they just take out a larger piece of your cervix. He said if I wanted to go see a GYN/ONC I could. He said there are some creams that work like Chemo that sometimes take care of abnormal cells. As much as I had been through already, I just decided to go ahead with the surgery. Have you had any kinds of different procedures yet? Ask the doctor about the Leep and Cryotherapy. He said the Cryotherapy is usually 99 percent affective. I am a smoker and he says smoking will keep your immune system from fighting off the infection so that could be what my problem is so I intend to be smoke free after surgery. There are other alternatives you can take and as long as you are having this treated, it shouldnt escalate to the next stage. My last procedure was in November and when I went for my pap 4 months after that, it was still stage 1. Good luck and keep us posted!!!!!!I hope this has helped you....

Unread 06-19-2004, 03:34 PM
Newly diagnosed with cervical cancer 1a1

Hi Ladies. Michelle, my first abnormal pap test was in December 01 or January 02 (can't quite remember because I was in the middle of a move from Vancouver to Thunder Bay). I have always been on time with my paps, got them annually because I always needed my birth control pill prescription. They always came back normal but when they called with the results from this pap in February of 2002 they said I had severe cervical dysplasia. They referred me to a gynecologist who did a colopscopy and cryotherapy in March or April. Over the course of two years I had 3 rounds of cryotherapy and 4 colopscopies. I moved back to B.C. last fall and the new gynecologist recommended a cone biopsy. Had that in April, then the diagnosis of cervical cancer, and now here I am waiting for my hysterectomy. I questioned my new gynecologist on how I could go for 12 years with no abnormal paps and then suddenly have severe cervical dysplasia. He said that the pap is a crude test and all these years they may not have been "normal", just not abnormal enough for follow-up. Maybe if I hadn't been moving around all these years and the same lab had been looking at my pap every year they may have noticed changes sooner? Who knows. But we can't go backwards, just forwards, so I have to live with the hand I have been dealt. I'm just thankful that it is an early stage and that I had been getting my paps every year. It's scary to think how far this might have gotten if I had been neglecting my annual check-ups.
Unread 06-19-2004, 06:03 PM
Newly diagnosed with cervical cancer 1a1


I had close (because I only had CIS) to the same thing happen - I had been with my husband for a number of years (8+) and had always had normal pap smears. I'm 32 and I started paps at 19. I went from normal to CIS in 11 months. Personally, I'll never trust a pap again. I'm going to insist that my Dr. do a HPV test at every pap. I read somewhere that a pap + HPV test is as accurate or more accurate than a colposcopy. I try not to think about what could have happened if I hadn't needed to go in every year for that BCP prescription. Especially because I think I was in the group where some Drs. suggest paps only every couple of years.

I had a LEEP cone in Feb. and go in for my first post-LEEP pap on Wednesday. I'm scared to death. I suppose that if I still have the CIS (or if it's worse) I will have to have a hysterectomy. I also don't have any children. My margins were clear from my LEEP so I'm hoping that I have this thing licked (for at least long enough to start and finish a family). To tell you the truth, I wasn't sure I wanted kids before this whole thing but I'm pretty sure I want them now. But I guess that losing your fertility isn't so bad compared to losing your life but the last few months have been pretty hard. It is especially hard to go from thinking you are completely healthy to having major health issues, all before the age of 35. My heart goes out to you. Although I'm usually a lurker because I don't "officially" belong because I'm trying to avoid a hysterectomy, I felt that I needed to wish you luck especially because we are close to the same age, married, no children plus I'm from Washington State and my husband is Canadian.

On a separate note, I have a question for anyone out there that tried to treat their dysplasia before the hysterectomy. I've noticed since my LEEP that my periods have changed. I don't have any cramping and they have all been within the normal time for me but they seem to have gotten lighter. I went off the pill the same time I found out about the CIS (just too many studies showing a correlation) so maybe that is why they changed. Also, and sorry to be so descriptive, but I no longer have "red" blood. It appears that everything that comes out now is oxidized. I'll ask my Dr. about it when I go in next week but I just wanted to see if this had happened to anyone else.
Unread 06-19-2004, 07:50 PM
Newly diagnosed with cervical cancer 1a1

Hi chelily. I'm with you on not trusting paps. After the cancer (and for you the CIS), I'm sure we will never quite trust any results again. But it's better than nothing as a diagnostic tool and it sure saves a lot of lives.

In the past few months while I've been wondering and waiting for results, I wondered if maybe I would want children if push came to shove and it was now or never. But after the diagnosis I realized that my feelings hadn't changed and there is no way I want children at this stage in my life. And I'm not willing to take the chance that I might further down the road and wait to have a hysterectomy. There's always adoption if we change our minds. The fact that I didn't want kids really hit home last week when I missed my period! I have never missed a period before but I guess it must have been from the stress. So I took a pregancy test and it came back negative (thank God!). But it was another sign that I don't want kids. The stress of thinking I was pregnant for a few days was almost as bad as what I've been going through for the past 6 weeks with the cancer and the upcoming hysterectomy (I say almost, because nothing is as bad as cancer!).

Good luck with your pap on Wednesday. I hope you won't have to wait too long for the results. The waiting is absolutely the worst! Hopefully you can start your family soon just in case the CIS or worse pops up down the road. Let me know how things go. I'll be thinking about you.

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