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Brain surgery Brain surgery

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Unread 06-06-2004, 09:19 AM
Brain surgery

ok here it is getting close to meeting with my neurosuegeon..been kinda brave up until now..I have a brain tumor and wow..I know it has to come out and won't be done until I am recoverd from my hysterectomy ( this recovery has been great) But brain surgery! That's a big one. I am so scared I won't be the same afterwards..I try to keep positive thoughts and will get it done as soon as possible,figure the smaller it is the easier it will be. I'm back to the waiting period with all kinds of thoughts just running and running through my mind.
Get this the type of tumor I have is hard to distinguish from a fibroid under a micro scope. it has estrogen and progestrogen was brought on they think by my sever hormonal inbalances I sufferd with .Oh the joy of being a woman. I found out about it the day after I was told I needed the hysterectomy..that's when the CAT scan was done.
Like I said I am trying very hard to stay positive..but some nights I look at my two kids sleeping..such little angel faces and I just cry they will need a whole mom..and what if I'm not that when I am finished? what will happen to them..that's really the scarey part for me. they have a week end dad but cry when they have to go to him..can't blame them for that either..he's a control freak and a bit rough with them. but the court systems here just give warnings until someone really gets hurt....would you gals please say a prayer for us? sorry to ramble..just needed the vent time.
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Unread 06-06-2004, 10:01 AM
Brain surgery

Hi Arlene,
I know how scary this is. I had a brain tumour 14 years ago and it was the most terrifying time of my life. I was sick with fear.
It was the first time I really had to think about my own mortality.

I know that there are many kinds of tumours, and they can appear in different locations - mine was in the right frontal lobe, (directly over my right eye), the size of a plum. It was an astro cytoma.... but I don't know why I got it--- only that they called it begnin and that they were able to remove all of it.

I hope you noticed in my first sentence ...14 YEARS AGO. and I am doing fine.

I know that we are all different but I wanted to offer you a positive outcome story.

It took me a long long time to recovery from that surgery - both emotionally and physically. In some ways you never really get over it, but over all you can and do.

I really had to be careful with bending and lifting, any kind of physicla strain for a long time - and I would tire very very easily for months. I was off work for 6 weeks, but that really wasn't long enough and after 1 week of part time hours I was off again for 2 more.
You will need to have some help -especially with your kids- believe me, you will not be able to do everything you are used to doing.

I pray that your surgery goes really well and that your recovery is quick and thorough ---

If you have any questions I might be able to answer, please don't hesitate to ask.
Unread 06-06-2004, 10:12 AM
Brain surgery

Thank you for the reply..mine is also in the right frontal lobe. It is being call a meningeoma ( benign). I was hoping to have gamma knife surgery but am told due to location it will probably be invasive.
Your story has helped me feel better. 14 years ago that's great!..I just want to see my little ones grown and well on there way safely from the nest.
you gave me hope of that. Thank you again.
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Unread 06-06-2004, 10:51 AM
Brain surgery


I just want to let you know that you and your children are in my 's.

Unread 06-06-2004, 11:11 AM
Brain surgery

{{{{{{{Arlene}}}}}}} My prayers and thoughts go with you! Place your faith in God..........He brought you to this and He will get you through this. Keep your chin up! God bless.........

Emily s
Unread 06-06-2004, 12:17 PM
Brain surgery

Thank you ...It truely is in Gods hands..and he also brought me to the right place to get support when I get weak..he gave me my Hyster sisters!
Unread 06-06-2004, 12:20 PM
Brain surgery

Arlene,... here's another piece of comfort.. on the technical side!... my dr told me before surgery that this part of the brain is the only one where all the functions are duplicated, so that means that we really don't lose any "brain power" after this surgery.

I know that I had a wonderful recovery --- I pray that yours will be just as good!

May God watch over you and keep you calm as you wait for your surgery (surgeries!!).
Unread 06-06-2004, 02:29 PM
Brain surgery

OH THANK YOU Cas..that was the major concern..I want to be there for my babies..I adopted them and my daughter was shuffled around sooo much before I got her that she had a real problem bonding..I stoped working for two years after I got her so we would bond..I'm proud to say it was worth the time. I just don't want them to have to go through all that again.
Unread 06-07-2004, 04:38 AM
Brain surgery

I just read your post an I just wanted you to know that you and your children are in my prayers and have faith in God.
Unread 06-08-2004, 04:03 PM
Brain surgery

thank you all for the prayers..I go see the nuerosurgeon next week. keeping my eyes and heart raised to God.

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