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new cancer diagnosis new cancer diagnosis

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  #1  
Unread 06-06-2004, 04:57 PM
new cancer diagnosis

I've just been diagnosed with Stage I Uterine Cancer. (I still have a hard time saying it) I've done a fair amount of research online and have more questions than answers. Have been trying to reach my Gyno doc since he called me 5 days ago - but you know HMOs!!! My hysterectomy is scheduled for June 28. I will see the Gyno doc for a pre-op on the 15th. I recently found this board but not being much of a computer geek this is the only part of the site I've been able to access. I will continue to try to master the site. Of course I have many questions about Uterine Cancer, but also what I should expect pre and post op. Unfortunately, I've had a number of unrelated surgeries in the past few years so being in a hospital, per se, hold little fear for me. Just feels good to touch base with others in the same boat.
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  #2  
Unread 06-06-2004, 05:30 PM
new cancer diagnosis

Hi Annakarenina! (great name, I guess you liked the book huh?)

Sorry to hear about your cancer situation. It's always a scary thing to hear about yourself.

But stage 1 uterine cancer can be pretty treatable and if it's caught in time, it has a good track record for not recurring. Naturally there are all sorts of variables, but hopefully yours will be in that category.

When you say uterine cancer, I assume you mean endometrial cancer (affecting the endometrium which is the lining of the uterus)? Many of us here have had that and done very well. My own cancer was endometrial stage 1B, I had the hysterectomy four years ago, and have been cancer free ever since. And the doctor doesn't expect to see any recurrence. The only treatment that I needed was the surgery itself. Afterwards, I had frequent check-ups, but in time they got more spaced out, and now I just go twice a year, am back to a pap smear just once a year, and for five years have a followup CT scan around the anniversary of the surgery--hopefully the 2005 CT scan will the the last one.

I know how hard it is to hear that you have cancer, but as they say, "cancer is a word, not a sentence." For many of us, life after cancer has been more normal than life before it--more focused, more balanced, better priorities.

Keep on posting here, learn as much as you can about your particular cancer, use the Resources area of this site to get more information, and don't let people frighten you. (Sometimes they act as if they're going to "catch" cancer from you, or they act like you must be dying). Here at Cancer Concerns we have lots of women who've fought valiant battles with cancer, others who have had minimal struggles with it, and all of us are here to support and encourage you!

Blessings.
Marlene
  #3  
Unread 06-06-2004, 08:57 PM
Cancer also

Hi there,

I was recently told that I have cancer also, the gyn told me endometrial but when I saw the gyn oncologist she said uterine. I do not know the staging yet it was caught during a D & C. Thru a routine cat scan they found a tumor on my kidney. The urologist is planing on taking about a third of my kidney at the time of my hysterectomy which will be mid line due to other surgeries but it will be total radical, everything which I guess if fine with me since I have been menopausal since 1999. I have never taken HRT and the symptoms (nite sweats, insomnia, hot flashes) were horrible but I was afraid of cancer, Isn't that a joke now.... I know I am lucky that it was caught early and reading other sisters stories I know I am I just do not feel it.

I try to look on the bright side and think I will be home all summer long with my children. Just hope I can recup on the beach...

Loraine
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  #4  
Unread 06-07-2004, 06:09 AM
new cancer diagnosis

Annakarenina,

Is your surgery being performed by a gynecologic oncologist? You indicated in your post that you've done a lot of research on uterine cancer. You've most likely read that women with known or suspected gynecologic cancer have the best chances for an optimal outcome if they are treated by gynecologic oncologists.

I was treated for uterine (endometrial) cancer five years ago by an experienced, board-certified gyn-onc, and although my cancer was more advanced than many, I have enjoyed excellent health and minimal treatment side effects over the years. If you have not seen a gyn-onc, please ask to be referred to one.

Loraine,

Endometrial cancer is the most common form of uterine cancer arising in the uterine lining, or endometrium (thus the name). All endometrial cancer is uterine cancer, but not all uterine cancer is endometrial cancer. There are other types of uterine cancer, uncluding uterine sarcomas.

Best regards,

MoeKay
  #5  
Unread 06-07-2004, 08:01 AM
new cancer diagnosis

Hi and Welcome:

This site has been such a valuable source of information and kinship, I hope that you will have a similar experience.

I am a current cancer patient, in my final week of Radiation and Brachytherapy. I would be happy to discuss any procedure in a friendly non threatening way with you any time you wish! I look forward to ending my treatments and professing my Cancer SURVIVOR status!

We're here for you!

Becky
  #6  
Unread 06-07-2004, 11:25 AM
new cancer diagnosis

Hi, I am sorry to learn about your dx but so glad you found this site. As others have mentioned early stage endo cancer is very treatable and often surgery alone can be the cure. I actually had stage 1b endo cancer and had a TAH/BSO last summer; I now need more frequent checkups and yearly CAT scans but no chemo or radiation. I strongly recommend as others have suggested that a gyn/onc at least assist your gyn since they are the one who are the experts in cancer. In fact my gyn was the one who told me a gyn/onc had to be present when a D&C showed very probably cancer. The gyn/onc was the one who explained about my cancer staging and what extra things he had done during the surgery to insure the all the cancer had been removed, etc.
Re some help in navigating this site, since you appear interested in researching your dx, please go to the top of this page and just under the hystersister logo you will see two lines of items, the first item listed is "register". I suggest you click on "message boards" to see all the other boards you may find of possibe interest and for researching your dx just click on "research. Hope this helps a little.
Please let us know how you are doing including if you have checked things out with a gyn/onc.
s and blessings, peggiesue
  #7  
Unread 06-07-2004, 08:47 PM
messages

Thank you all for your good wishes and helpful information. My Gyno Doc just said it was Stage I Uterine cancer.
He gave me no other information. I will see him on June 15 for a pre-op consultation (surgery June 28) and hope
that I can get all my many questions answered then.
Several of you mentioned CT scans. About 6 months ago I had a CT scan for stomach problems. The result was
a hiatial hernia and uterine fibroids. So when I started to spot ( I'm 3 years post-menopausal) I thought it was just
because of the fibroids. I'm going to have to ask why the CT scan didn't pick up the tumor at that time
Again, I really appreciate all the feedback and information and I will keep you apprised of my condition.

Marl - I too am a Jersey Girl even though I've lived in CA for 35 years. You can take the girl out of Newark....
We're tough broads. Just ask The Boss or Tony! What would Carmela do?
  #8  
Unread 06-08-2004, 01:00 AM
new cancer diagnosis

Hi,

I just read your post and was glad to see it was only at stage one. You didn't mention if your ob/gyn was also a cancer specialist. I am having a d&c on the 16th of June. I am postmenopausal and I thought my last period in February was still menopause. It was approximately one year after my last one. I went in for annual pap and my doctor wanted an ultra sound. I also have one large fibroid. IT showed my uterus to be 10mm thick. I'm trying not to freak out, but I guess I am abit. Do you remember how thick your uterus was.

I read there are several methods for a hysterectomy, be sure to ask them which procedure they are going to do.

I just joined this site and I too am having slight problems navigating, but having this dialog and reading of stories is helping me, I hope it is helping you. Knowing your results I think is better than not knowing.

Be well
  #9  
Unread 06-08-2004, 06:12 AM
new cancer diagnosis

Annakarenina,

Glad you are at stage 1 (if it has to be cancer, at least it's early) and hopefully your surgery will take care of the problem. Sometimes even at stage 1 they will see a need for follow-up treatment, depending on what they path report shows about the cancer. Either way, your cancer is being attacked at an early stage.

Try to get as many questions as you can written down (don't trust your memory, because nervousness sabotages the memory) for your Dr. They should tell you exactly what kind of operation will be done, what will be removed, etc.

You're right , we Jersey Girls are tough....glad you're keeping Jersey alive out there on the West Coast! I'm in Elizabeth, right on the Hillside city line and about a minute or two from the Newark city line. In fact I was there yesterday to pick up someone at Beth Israel Hospital.

Blessings.
Marlene
  #10  
Unread 06-09-2004, 09:40 PM
new cancer diagnosis

To Maggie Maye et al - Many on this site have asked, as you have, whether I'll have a cancer Gyno do the surgery. As you are from CA you're probably familiar with Kaiser. My understanding is the the Gyno that did my biopsy will also do my surgery.
I'm counting on the "supposition" that this Doc has done a number of these surgeries and will know what he's doing
and there will be a procedure in place to do biopsy on any suspicious tissue he finds while I'm being operated on. I know. Never assume. My good faith rests on the fact that, unfortunatley, I've had several unrelated surgeries at Kaiser in the past several years and I've been pleased with the level of professionalism and attention to detail they've exhibited. I just hope it continues in this instance.
To Marl - I was born at Beth Isreal. Didn't know it was still around!!
To all Sisters: I just finished reading Fran Dresher's ( The Nannny on TV) book "Cancer Schmancer". (It's out in paperback). It took her 2 1/2 years to get diagnosed with uterine cancer. It was interesting and scary but I'm glad I read it. The parts that disturbed me the most:
*being in the hospital right after the surgery sounds very scary- all the PAIN and the possibilty of complications.
*how long it took her to recover - the constant fatigue and lack of energy many months after surgery. I'm an
active person and physical activity is one of my main stress relievers. The thought of having to lay around
housebound for so long really depresses me.
* there seemed to never be a time when anyone just pronounced her cancer free. Always seemed to be
another test she had to go through. So much for peace of mind.
I guess what I'm asking is if anyone has gone though this and has a different or more postive perspective on all there concerns? Or do you just have to suck it up and go on.
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