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good grief its not GERD now what good grief its not GERD now what

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Unread 06-08-2004, 07:05 AM
good grief its not GERD now what

I just got back from my check up at the hospital . Im currently under the care of the surgical team .Its both good news and bad news . During this past week I had run out of anti emetics and the nausea slowly built up to a point where I knew that if I did not do something I would be back in on an IV . I saw the neighbourhood GP for some meds to tide over till Tuesday the 8th of June.The ph motility test ( a tube is threaded through your nose into the stomach and left there for 24 hours attached to a monitor ) results showed something surprising .

It wasnt GERD despite my GERD like symptoms . That day , just before I saw the Dr I threw up my lunch . The good news is that because its not GERD / acid reflux despite the symptoms , I dont need the stomach wrap surgery . WHICH IS A BIG RELIEF . Had I needed it , it would have been my 6th abdominal procedure .The bad news is Im due for more testing because they need to exclude any possibility no matter how remote , of a physical / mechanical cause for my being sick .

The next thing on the cards is the small bowel loops series . I gather I have to drink something nasty to make my insides glow in the dark while they trace it via X rays . If after scraping the bottom of the barrel they still dont find anything I will probably get referred to the GI specialists for a 2nd opinion .On one hand Im relieved I dont need surgery as yet .. Im also frustrated that I have nothing to blame for my so called 'distress' ... and treatment is not targeting at the root cause because we dont know what the root cause is.

Im currently on Ondansetron/Zofran to curb my nausea . I was voicing out my thoughts to the Doctor and thought it might even be my hormones because I still have my ovaries and I have always had Bad PMS .Its tiring running to and from the hospital but I guess it could be worse.My guts started to run into trouble because of my endometriosis . Thats when the lining of the womb over flows to the abdominal cavity . Monthly these spots go through the same mini cycle as the menses inside the womb . SO the guts get bled on and stuck together because of scarring from endo and previous surgeries

Im sorely tempted to back out of everything even though I know its probably in my best interests to go though with it .

umm if anyone has gone through the small bowel loops series test I would be interested in finding out details : like how it felt ? what the team did etc etc .. thanks

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Unread 06-08-2004, 04:42 PM
good grief its not GERD now what

I'm sorry you don't have answers yet, but am relieved that you won't have to have another abdominal surgery. I've had most of the GI tests, I think they really are necessary to rule things out and try to find out what is going on.

I had the small bowel series test several times. Not sure if that's the same as the *loop* series. If it is the same that I had plan on spending some time at the clinic. I had to drink several glasses of barium and than they take xrays at various intervals. They are watching for how quickly the barium moves thru your intestines and if there are any blockages.

You drink, wait about 15 minutes and they take a pic. Than you go back into the waiting room for a bit and they call you back in to take more pics. This is repeated until the barium gets to the point that they're satisfied with. They do recommend not just sitting while you're waiting. Walking around *might* help the procedure to go quicker. At least that's what they told me, didn't always work for me. The last time I had the test I was at the clinic for over 4 hours.

Good luck! Do let us know how the test goes.
Unread 06-08-2004, 10:53 PM
good grief its not GERD now what

The clinic said I would be asked to drink something ( i called ) .. my Dr friend said they might thread a tube through my nose and pour the barium in ( is he jesting ?) ... but he also said that the procedure might vary from hospital to hospital .

I dont know who to believe . IM petrified that I have to go through another stick it into your nose thingy . Likely the results are going to be normal . Im banking it might even be hormones that are causing my problems because when I was on lucrin in pseudo menopause I dont as now remember any nausea .

A friend of mine works as a Dr in another hospital He told me some time back what would happen and what tests the hospital would most likely conduct in what sequence . What worries me is if after going through all these tests they dont find anyting .. hmm Im torn here on one hand I should be glad it isnt anything yet it grates not to have anything to blame . He said That they might then presume its psychological . Now thAT gartes too . I cant be going through all this nausea and such and blame it on my mind. Its been going on for too long .

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Unread 06-09-2004, 06:59 AM
is it normal ?

isnt it normal for most women to haave nausea ? I mean we have cycles

How much nausea is too much and when is it time to go to the hospital.This might sound daft but I have nausea on and off 80% of the time

Maybe thats why the Drs are testing me for lal they can think of . Yet some days I want to just give up on further tests and just lket it be . Im tired . Guess im just whining

Unread 06-09-2004, 02:06 PM
good grief its not GERD now what

I just had what was called a small bowel follow through. I had to drink the barium and then they do xrays every 15 minutes until it reaches the large intestine. Mine took about 45 minutes, things go through me quickly! Make sure you drink alot of water afterwards to help wash it through your system. It was not bad at all except afterwards I was very gassy and had to stay very close to the bathroom for about 24 hours after.
I have the opposite problem. I had an endoscopy which showed I have a hiatal hernia and alot of damage to my esophogus from reflux but I dont have any nausea or heartburn.
Unread 06-09-2004, 08:31 PM
good grief its not GERD now what

did you have diarrhoea later or did the poo keep coming after the procedure .

Im wary ..

Unread 06-10-2004, 01:31 AM
good grief its not GERD now what

If your problem is a delay in emptying, it may take up to a day or so. Sometimes I've had problems, other times not. It's so variable with me -- and with the brand of contrast they use.

They can also give you a meal "tagged" with a radio-isotope and follow that on through your system. Delayed emptying is a problem with me as well sometimes (then I reflux up into my sinuses -- gross, I know!). For me, they've thought that I have intermittent small bowel obstructions, and of course, when I have my testing, it isn't bothering me AT THAT TIME, very frustrating.

I know you're struggling to get some answers. In a way, it's good that it is NOT reflux. Long-term reflux can result in Barrett's esophagus, and even esophageal cancer, something I wouldn't wish on anyone!

The thing that I've found helps more than anything, t hough it's not totally foolproof, is to chew all my food just as thoroughly as possible. This of course means that it takes me twice as long to eat as anyone else in my family, but it's the only thing that really helps, that and digestive enzymes to break up the food that my lack of saliva prevents.

Good luck, and I'm glad you're keeping in touch with us on this. So many of us are also dealing with GI problems, it seems!

Unread 06-10-2004, 08:22 AM
good grief its not GERD now what

yes audrey .. Im telling my story in the hope that someone somewhere will know they arent alone ...

UNTIL I found this forum I felt ver alone because I only knew afew who had such issues ... its easy for someone to dismiss you and say tis all in your head

I think our endo or female problems have something to do with the GI problems ..

Unread 06-11-2004, 02:03 AM
good grief its not GERD now what

got a min ? have u ever tasted barium ? I have a glo in the dark test coming up next week

Unread 06-11-2004, 05:39 AM
good grief its not GERD now what


I just want to let you know my thoughts and are with you. I sure hope they are able to find out what is going on and help you. I understand how fustrating stumach / GERD issuse can be. I have IBS (which I feel is related to my endo) / GERD / and Barrett's esophagus. I was just diganosed with Barrett's esophagus last Dec. Now I have to have test done every year my gastro doctor says to keep an eye on the cells to make sure their are no changes. I had heartburn on & off since I was about 18 at times it was really bad, but never lasted usually more then a week or so & then it would get better. I want for about a 2yr months streach with very little problems just an ocassional few days here and a few days their where I would be up all night because of the stuff coming up into my month and throwing up. I just did not think it was that bad. Well durring that time frame my mom had two surgerys for acid reflex and I always that to my self mine can't be that bad. When I started having all the stomach problems after my LAVH in October my GP sent me to a gastro doctor and he diagnosed me with IBS/Gerd/ Barrett's esophagus/ and as lactose intolarnet.

I wish you all the luck with your test and I pray that every thing will go okay with your test and they will have a diagnoses to help you feel better.


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