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Unread 06-08-2004, 05:10 PM
Latest News on OVCA

I subscribe to google news on ovarian cancer.
This is just out:

It was on local news this evening coming from Phila and Good Morning America is doing promos for sharing this info in the morning. It is quite interesting as to the big three symptoms.
Perhaps doctors will listen better now!!!!
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Unread 06-08-2004, 09:23 PM
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Thanks for your post, Karenann. I experienced bloating less than 1 week before I saw my doctor. Isn't that something?! Of course, my other symptoms were occuring for some time before I saw my doctor...

Nevertheless, the bloating reminded me of a commercial that I'm seeing lately for a drug for women which is specifically for bloating. I think this is such irresponsible advertising. I guess because I never experienced bloating on a regular basis, I always think that someone watching that ad will ignore the symptoms and just take some drugs rather than paying attention to unusual symptoms.
Unread 06-09-2004, 01:20 AM
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(((Maureen))): Those ads bug me too. Most of us who've dealt with significant endo consider the bloating "par for the course" and are often not further screened for cancer. CA-125 can be elevated with us, too.

The thing about that medication that concerns me is that they say it is contraindicated if you have adhesions. Well, how does the average woman, who's never had surgery, going to know? Endo and infections can cause some pretty severe adhesions that mimic IBS or cause intermittent bowel obstructions (I deal with that from time to time). I had a doctor suggest that medication to me about 8 months after my hyst. Every surgery I've ever had has commented on my "dense" adhesions and "severely increased" vascularity. Lots of reasons for intestinal symptoms, but these are NOT IBS. However, because I was female, and in my forties, his assumption was "IBS." After all, "it couldn't be endo, since you've had a hyst."

(((Karen))): It's not just the doctors who have to listen! Women have to believe themselves that this isn't normal, hard to do when there are possible confounding factors like endo going on. I went two years ignoring my symptoms. I'd lost 20 lbs (well, OK, ten of them needed to go ), looked six months pregnant, and had constant pain. It was always attributed to my known endo, and unless I was willing to take Lupron, no further treatments or diagnostics were offered to me. Since endo or adhesions don't show up on ultrasound or C-T, we often don't get investigated until it's too late.

It's hard enough for women to listen to their own bodies -- I sure hope this new research helps them to not only listen, but to speak up in time.

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Unread 06-09-2004, 03:55 AM

Thats a very interesting post Karenann. I think i will print it and send it to my GP's practice. I had all three symptoms and was told i had a kidney infection by the GP :burning: I thought b----- to that and rang my gyne and the rest is history as they say!


stage 1a grade 1 ovca
Unread 06-09-2004, 07:05 AM
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Hello Everyone...

Hate to be the "Been there, done that" person but how very very true these articles are. Wish some of them had actually been there for me.

Ladies, I too agree with the somewhat false advertising of that commercial. It leads you to believe that that pill is a cureall for bloating when actually, we all know, that there are other causes to be looked into.

Another thing in our paper yesterday was an article about the ovarian cancer detection blood test. They say that it is 99% effective but some people are complaining that 99% is not good enough. How foolish,,, those numbers seem pretty good to me!!

Unread 06-09-2004, 08:45 AM
Article Made front Page in Our Paper Today

I was shocked it was on the front page and not relegated to an obscure part of the paper. I have e-mailed a letter to the editor referring to the OCNA and NOCC websites and adding more information. Hooray--we are being heard. Too late for a lot of wonderful women, but we are being heard.
Unread 06-09-2004, 05:22 PM
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I saw this in our local paper today, though buried in the paper not on the front page of the first or any other section. Makes me mad -- any time there is any little blurb out about prostate cancer it makes the front page.
Unread 06-11-2004, 01:52 PM
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I think prostate cancer (and breast cancer, for that matter) getsmore play because the stats are much worse. Isn't it 1 in 2 men and 1 in 8 women for those cancers, respectively?

I'm not saying ours isn't important. Heck, I had it, so I know it's important. But 1 in 55 isn't ever going to get as much play as 1 in 8, simply because of the numbers.

Still, we're making progress! Yay to Karenann and Ellen for so tirelessly fighting for our cause!

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