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Adhesion surgery- help!!!!!!!!!!!!!!! Adhesion surgery- help!!!!!!!!!!!!!!!

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  #11  
Unread 06-15-2004, 08:13 AM
Adhesion surgery- help!!!!!!!!!!!!!!!

I guess I am luckier in the doc department than I sometimes realize. When I had my laparoscopy in January, my doc said it could go into a full blown laparotomy and he was prepared for that and wanted to make sure I was.

I don't get this closing you up and rescheduling you another day for another surgery thing. It seems like a complete waste of resources, time, etc. and something that could be avoided completely with proper planning by your doctor. If he/she is not qualified to perform intricate abdominal surgery, then you should have be referred to someone who is qualified. Period.

This just set me off. I just hate to see anyone go through unnecessary hassle. I hope you all find great doctors who truly care about you and put your interests first.

Lots of s in the meantime!
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  #12  
Unread 06-15-2004, 11:31 AM
Update

Well, just left the dr's office and I am scheduled for my next surgery on the 8th of July. What joy!

I will keep everybody posted on what happens.

Michelle, I knew that the Dr. would close me up if he could not get everything done laproscopically and reschedule. I just never expected this or that there would be any problem.

I mean, I knew something was wrong, but you would think that the Dr's and all the testing would confirm how you feel instead of making you think it is "normal" to feel that way. Kinda makes you feel like a big baby.

The new Doctor has been great and he did not try to force through with the laproscopy. He thought it would be too risky and that I should be made aware of everything before he proceeded. I would have rathered just to have it done and over with. But I understand his points on the issue.

Now I am ready for the real thing, at least I am as ready as I will ever be. I just want it over. I want my life back!
  #13  
Unread 06-16-2004, 08:10 AM
Adhesion surgery- help!!!!!!!!!!!!!!!

Good Morning Sisters,
I was looking through posts this morning and just found this forum. So Howdy! I had a Radical TAH when I was 20 years old. But before that I had a ectopic pregnancy that required surgery, plus 4 other surgeries for cysts and the like. 3 weeks before my TAH my surgeon went in (Lap) to remove adhesions. That went o.k. and I had my hysterectomy 3 weeks later. Then 1 year later I had my appendix removed. Now 7 years after all of that I started having abdominal pain and problems with small bowel obstruction. I went back to my surgeon and after a few test, he told me that my intestines had adhered to the abdominal wall , the adhesions had attached to my bladder, sigmoid colon, and vaginal cuff. He proceeded to inform me that if he opened me up, he would not be able to do anything because he could not get all the adhesions without nicking the bowel, and that can cause a variety of other problems. So basically what he told me is that I will have to live with the adhesions and the pain until it becomes life threatening, (major bowell obstruction, or fistula). He also told me that adhesions are normal to a point, and that after numerous surgeries it takes the body years to heal, and the body will continue to produce adhesions until the healing process is done. I have never understood though why I had all those surgeries to relieve pain, just to live in pain the rest of my life. I have lost alot of faith in the medical profession, with all of the technology there has to be a cure for the monster they call ADHESIONS! I am only 28 and can't bend to shave, or pick up something off the floor, and intercourse is out of the question.
Hoping you all find the answers you seek,
hugs,
kari
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  #14  
Unread 06-16-2004, 08:19 AM
I'm sorry

((((Kari))))

I would request a second opinion if I were you... my adhesions were also attached to my bowels, bladder and everything but my dr was able to not only remove them but with his expertise he was able to do it LAP... Now I know every case if different but if the adhesions are causing you bowel problems I would think that seeing a specialist would be necessary.

Please know that there are things that they can do to try to prevent further adhesion. They are not 100% guaranteed but when I was facing the surgery I felt that any benefit would be better than what I was dealing with... My life revolved around my pain, I couldn't play with my kids, keep house or just plain do the normal things a wife should.. Now after surgery, yes I still have some pain in my back (where the adhesions have caused permanent damage).. But I am seeing a pain mgt dr who has been wonderful.. I do not regret having the third surgery to remove my ovaries, and adhesions... I am hoping for at least a couple of years, with the minimized pain... I still have some adhesions and do still have some pain ( mostly with bm)I will not lie to you... But compared to what I used to deal with I will take it...

Please feel free to PM me if you want to talk... I know how much it has helped me to have friends to talk to.... Especially to know I am not alone...

Take care
Jeni
  #15  
Unread 06-16-2004, 08:53 AM
Adhesion surgery- help!!!!!!!!!!!!!!!

Kari

My goodness! You really need to get a second opinion. There are lots of options out there, you just need to find someone experienced in doing it.

All of my insides are stuck together. My doctor felt it was too risky for the laproscopic surgery, now he is going to do the laprotomy. I believe that I will be so much better after this. I have to have faith.

We are all going through this, some early than others, but we can help each other to deal with it. This is a hard surgery for any doctor and it is better that your won't do it, cause it is probably too involved for him. This is good for you that he did not attempt it. Bad that he did not refer you to someone else, but good still. Now you have the chance to take control and find someone who can help you.

Good Luck!
  #16  
Unread 06-17-2004, 10:30 PM
Adhesion surgery- help!!!!!!!!!!!!!!!

Hi Minnie,

We have the same upcoming surgery date. My DR is going to try mine laproscopically but she told me that if it didn't work or there was a problem she would then do a laporotomy. I too have adhesions/scar tissue THEY think. My PT and acupuncturist think that maybe something was left inside from hyst surgery in December. My doc thinks there might be some remnent from right ovary. I was told I could end up in worse shape then I am right now. I am going to take my chances, I don't think it can hurt much worse. I can't take any pain meds so this whole thing has been a real pain in the rear also. Good Luck with your surgery, 3 weeks and counting!
  #17  
Unread 06-26-2004, 07:58 AM
3 days in the castle

Good Morning!
Well I went for that second opinon last Tuesday, and this surgeon seemed concerned and admitted me to the hospital. He ran about 50 test and told me that it was adhesions, but I was not obstructed so he chose not to operate. He did keep me for three days though and gave me i.v. pain meds , but as soon as I got home the pain was back. Since my TAH I have seen probably 20 different surgeons, and not one of them will operate for adhesions unless it is a major obstruction. I think adhesions is just another one of those medical mysteries. A pain I will learn to live with as I will not continue to allow it to control my life. I hope all of you are well and happy this morning,
hugs,
Kari
  #18  
Unread 06-28-2004, 02:45 PM
I never knew this was "normal"

Hello everyone.

I'm new to this site, as of today. I can tell you that this is really a blessing to me. I'm 36 years old and have had both a partial (5/23/03) and then the complete abdominal hysterectomy (1/19/04). I've also had an apendectomy (1998) and several years ago had a laproscopic tubal ligation (1990).

It all started with fibroids - BIG ONES, I was hemorraging on a monthly basis according to the nurse I spoke with. They put me on hormones in an effort to reduce the size of the fibroids (14" in diameter). I couldn't take the double dose of birth control pills, I was losing my mind - - becoming psycho woman and went through five doctors to finally find one who agreed to remove them. The doctor decided to take everything but the ovaries. He thought that I was TOOO YOUNG to remove them.

Well, that surgery didn't go well. My blood wouldn't clot/coagulate and the doctor told me, " YOU SCARED ME IN THERE" I ended up having to have a blood transfusion. But they pulled me through it. The recovery went ok except for a small issue, I'm allergic to Morphine and didn't know it. Being put on it post-op was not a fun way to find out - TRUST ME. I'll spare you the gory details.

After surgery #1, a few months down the road - PAIN AGAIN. I went in to see the doctor and he sent me for tests, WAA LAA - a "mass" about 6" in diameter. So, back to the operating room, with a history of cancer in my background, we couldn't take any chances. It turned out to be a hematoma wrapped in scar tissue.

After my second surgery, they gave me the usual routine about "normal activities" and my husband and I eventually attempted to resume the routine. Much to my surprise - UNBELIEVABLE PAIN. I thought I was just healing more slowly and told him we needed to hold off longer. Well, after 4 months, I really thought things should be ok, but they weren't. I made an appointment and went back in to the doc. He said that I might just still be swollen, take 2 Ibuprofen daily and see what that does. I'll tell you what that did - NOTHING. So, about two weeks ago, I went back in for another fabuous exam.
:run3:

The doctor said that he THINKS that I have adhesions. So, he ordered an ultrasound and that's been done. That was another pleasant experience (NOT) it was a translabial exam. If you've never had that one, trust me, it's a shocker. Doesn't hurt, it's just really embarrassing and uncomfortable!!! The lady doing the ultrasound said that if it is adhesions, they won't be able to see anything. So I guess the are just trying to rule out anything else. My appointment to get the scoop from my doctor is tomorrow morning. I'm a nervous wreck.

The specialist shared some really interesting information with me after the last surgery that would have been nice to know before I went in. Each time you go into the abdomen, you risk adhesions and can even end up with lovely BOWEL obstructions if you have too many abdominal surgeries. I'm at 3 plus one laproscopic. The doc said that many people get them at 4 procedures. Great, I hope they don't have to do whatever they do for these adhesions abdominally. I don't see the point. It's just going to get worse. I'm so frustrated and anxious and scared. I just want them to perform an abdominectomy - my term for just taking everything from my belly button down to the top of my thighs. I'm OVER IT.....

If anyone can share something that might relieve my fears....I would appreciate it beyond your wildest dreams. I know that God is in control, but I just don't understand where he's taking me and I'm tired of this journey. I want His will, but that doesn't mean I like it. I'm praying, but I'm frustrated!!

Whatever you can share will really be appreciated, because I've learned that I have an easier time dealing with things when I UNDERSTAND them. My imagination gets me into trouble and then comes the beast.....fear!!

SORRY IT'S SO LONG!! I just don't know how to tell it shorter...



  #19  
Unread 06-28-2004, 04:09 PM
Adhesion surgery- help!!!!!!!!!!!!!!!

You have had a rough time too!

Well you are not alone.

I have be doing so much reading on adhesions and the like, my eyes hurt.

I have received advice from a lot of well wishers, who have never gone through this and I am still looking for solid information.

I believe that I have found a doctor that can help me and I guess that is the most important thing.

I too have had a few abdominal surgeries, not all were done lap. I have had even more surgeries that had nothing to do with my abdomen at all. I have always been able to tolerate the pain pretty well.

So after the hyst, I knew something was not right. I went back to my first doctor over and over again and felt like I was going crazy. You know how you are supposed to feel and living with the pain is not an option. Not when there is something that can be done about it. We are talking quality of life here. I want my quality of life back, no ifs, ands, or buts. I want it back.

I know that everything is "stuck" together cause I cannot move like normal. I feel like I am a hundred years old. It just made sense when they said adhesions. Finally, an answer.

I am scared to go back under the knife, but I see no other way. I have to believe that I will be better without the pain and that this will take the pain away.

I have exhausted all my research avenues on my doctor as well. I wanted to be sure that he could handle this and so far, I am confident that he can. They are even going to allow my husband to watch the surgery and tape it for us. I think this is great. Makes me feel good knowing that someone else will be watching too. Although, I am not sure how long hubby will last before getting queasy.

I am on the countdown now and getting ready. I wish it was over then I would not have to worry any longer.

Hope everyone else is doing well and keep updating, this has been great!

Kelly
  #20  
Unread 06-28-2004, 04:23 PM
Thanks a million!

I was going to start this email with....you can't imagine how good it feels to know that you are not alone....BUT, I guess that's not true. I'm sure you do know how it feels to know there are others out there that understand what you're going through. It stinks to be 36 and feel 96. I don't think my adhesions are as severe as yours, but I've been told that I have an EXTREMELY HIGH tolerance to pain, so who knows. All I know is that I'm with you - I want the QUALITY of my life back. I trust my doctor and hope that he's going to have some good news for me tomorrow, but I'm not expecting it.

I will keep you in my prayers and will keep my saga updated, as I hope you will. Data is our friend. Or at least it's mine!

Thanks for being there just to know that I'm not alone....
:hair:
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