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Adhesion surgery- help!!!!!!!!!!!!!!! Adhesion surgery- help!!!!!!!!!!!!!!!

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  #21  
Unread 06-28-2004, 06:38 PM
Adhesion surgery- help!!!!!!!!!!!!!!!

I know the feeling of wanting your life back. I too am getting closer to my surgery date. Kelly, you and I have the same date. My Internal med dr thinks it is the best thing. I sure hope it works. I too have a very high tolerance to pain and when I can't handle this I know it has to be bad. I have my pre op appointment thursday of this week and will have all the blood work done. This should be fun. I just hope that the sniffles I have are allergies and not a cold. I can't wait for a reschedule. I will do the vit. c and get plenty of rest and stay away from all people. Ya right. I don't know if I would want to see the tape of the surgery. It may be cool to look at later. I just hope I am doing the right thing. I was told I could end up in worse shape. I am going to take my chances. I want my life Back!!!!!This will be surgery no. 4 done by lap. I have so many little scars you can play dot to dot. Good luck Kelly. We will need to compare surgeries after next thursday.
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  #22  
Unread 06-30-2004, 04:49 AM
Adhesions

I too have to say this website is a GODSEND!!! It is so nice to not feel crazy.
I am 1 month post-lap for removal of my last ovary(everything else went 5 years ago) My DR removed "TONS" of adhesion, well if I knew then what I know now, I think I may have researched more. The pain is not better, it is actually worse in different ways. I have that wierd, tell tail, pulling all over my belly button area. I knew nothing about the adhesion mesh, sprays, etc that doctors are using now(either did doc, I guess). My suggestion to all is inform yourself with knowledge, BEFORE surgery. Thanks to this website, this is possible!
  #23  
Unread 07-01-2004, 09:26 AM
I think I have adhesions too.

Hi everyone, I have been reading your adhesion posts with great interest. I am wondering if I have them. Yesterday I saw a
surgeon for a 2nd opinion on fibroids in my uterus. I have 6 of them and wanted to know about ALL options. The gyns I've been to wouldn't even discuss some. The up-shot of all this, is that the
surgeon was looking at an MRI that was taken of my hips in Feb.
and showed me all this bright white spidery looking stuff coming
off both sides of my uterus. When he did the pelvic exam he could
see that I felt pain when he "inserted" and when he pressed low
on my abdomen I was soooo sore. He truly believes that it's not
the fibroids causing my pain, bloating and tenderness but the bright white areas he saw on the MRI. Can you tell me if that's
how adhesions appear on an MRI? I have noticed that my bowel
also feel obstructed. Nothing "firm" is coming out and the rectal
exam hurt (sorry for being graphic) . Do adhesions cause this?
The surgeon was very helpful with info but he couldn't tell or
explain what these white areas were.. He simply said that something "highly vascular was going on."

So what do you guys think?

Oh also, is there a certain specialist I should be talking to about
this? I've never had any type of surgery.

I thank you sooo much. Sue
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  #24  
Unread 07-03-2004, 09:26 PM
Adhesion surgery- help!!!!!!!!!!!!!!!

Sue,

I have severe endometriosis/adhesions, fibroids, etc. Unfortunately, the severity of the endo/adhesions was not known until the gyn and general surgeon attempted a hysterectomy in April and were unable proceed with the surgery after they opened me up because it would be life threatening. They closed up and referred me to a gynocologic oncologist. My next surgery is August 10.

I would suggest that you get an opinion from a highly recommended gyn/onc surgeon. These guys don't just treat cancer, they are skilled surgeons that are able to deal with those more difficult cases. From what I understand, the only way to difinitively diagnose adhesions and their extent is by visual examination. I do know that they are not usually vascular but more like bands of scar tissue connecting organs.

Hope this helps, feel free to email me if you wish.

Kellyn
  #25  
Unread 07-04-2004, 12:35 AM
Adhesion surgery- help!!!!!!!!!!!!!!!

Sue, you may be dealing with pelvic congestion, or varicose veins in the pelvis. That's often common in severe endo, since it creates its own blood supply, and can be pretty painful all by itself!

I can't recommend enough Kellyn's advice about a GYN-oncologist. They have three more years of surgical training, and their expertise is in the more complex types of surgery, which endo can be.

Hope this helps -- and good luck, whatever you decide!



Audrey
  #26  
Unread 07-11-2004, 12:57 PM
Home finally

I am home from the castle. Yippee! Seems like everything went just fine. I am in more pain than I anticipated and have a hard time moving around, so I am taking it easy for a change. Just wanted to let everyone know I made it through and I will post again later.

Kelly
  #27  
Unread 07-11-2004, 01:58 PM
Adhesion surgery- help!!!!!!!!!!!!!!!

Welcome Home Kelly,

I am glad everything went well. Mine went well also. I do have to go back or call in tomorrow because of a sore throat and fever but I can finally stand up straight with out hurting. My dr was surprised at what she found. She took pictures and after looking at them I now know why I hurt so bad. I can't take pain meds so I am a little uncomfrotable but will be up and a round in no time. I miss the gym and know I can't get in to the pool yet but it is looking better everyday. I should be able to swim and whirlpool after the 21st I hope. I am also hoping that my sore throat is only from the intibation tube and notheing else. My nurse friend doesn't think so though. If I don't call my dr tomorrow she will walk down to her office and let her know. I get no respect, lol and can't get away with anything.

Get better and don't over do. I am glad things went well. s We can compare notes later!
  #28  
Unread 07-13-2004, 02:39 PM
Same with me - Adhesions, that is.

Hi, all.

It's been a long time since I've posted. I'm reading with great interest about all of the adhesion stuff. I had my hyst in Jan '03 and it was three weeks later that I realized something was very wrong, what with the pulling pain in my left side. Well, let me back up and say that my hysterectomy certainly didn't go as planned since I had an internal bleed from my incision and my pelvis sat in blood for a while. I looked like a truck ran over my middle! Anyway, my gyn said that blood is an irritant to tissues and they will quickly try to "defend" themselves and begin overhealing with scar tissue or adhesions. In July '03, I just couldn't take it any more. Never having had pelvic pain before, I just wanted to end it so my gyn went back in for what we hoped would be a laparoscopic lysis of adhesions. No such luck - - she had to convert to open incision which in many ways has made my situation worse. I don't feel the pull to the left anymore but now - - a year out - - I feel the tightness and burning all across my belly. It almost feels like an "anchor" shape - - a big smile about an inch or a little more above my low incision line with another line going right up the middle to my navel. Some days it doesn't bother me as much and other days it's just plain uncomfortable. Someone said they were 36 but feel like 96. I understand that! I'm 43 and some days I move like I'm 103!! But I will tell you this - - I've educated myself as much as I possibly can about adhesions. I'm not going to have any more surgery (if I can help it) until I can get to a doctor who focuses on difficult adhesion cases. In the meantime, I'm trying to concentrate on alternative means that help minimize the discomfort level. Stretching helps. Even though it's uncomfortable at times, it really does help. There is also a type of massage called Rolfing. Rolfing works with connective tissues and it focuses on your area of pain. For instance, the therapist that is working with me only concentrates on the hips, pelvic area, and lower back. She works with the tissues all around the area and pulls and kneads to a point that is right on the edge of hurting. It really does help. Finally, I sit a lot at work so I have to get up and walk and stretch every 30 minutes or so - otherwise, it's like I draw up in my belly area!! I'm so glad to have found this post - - I got so frustrated for a while after my hysterectomy that I just quit posting because no one seemed to be having the adhesion issue. It's good to know you're not alone and there are others who refuse to give in to this! Thanks, ladies!
  #29  
Unread 07-14-2004, 12:50 PM
possible shared symptoms

Hello,
Please share you original symptoms with me. I had my hystomretomy a year ago this last April. Since then I have had kidney stones (no surgery needed), gull bladder removed.
More importantly, upon my 6 wk check up I shared my complaint with my gyno of feeling that I still had stiches left inside. My hubby and I felt this. Between 4 visits that followed she removed stiches each time. I had right sided pain even after she removed all she could find. She said the only way to get anymore would be to go back in. She felt the rest of the stiches would dissolve on their own. Off and on I had experienced right sided pain.
Constipation joined the symptoms severly in February. I now had severe cramping night after night. Upper pain joined in and my gall bladder surgery. After the gb surgery, the doctors felt I may have IBS. Treatment followed with this thinking.
My right sided pain has not left me and is getting worse. After switching doctors and seeing a great doctor at the cleveland clinic more tests were repeated but done correctly this time. My small intestine is narrowing and the search in on to find the reason for this.
That is my story to date. I responded to your post because it has been in the back of my mind that something from my hystorectomy has been the culprit.
I wondered if adhesions could be involved. I will know more in time.
Let me know if any of this sound familar. I skimmed quickly over my past year in hope that you may possibly relate.
  #30  
Unread 07-14-2004, 01:29 PM
My history

Hi, C. Mcalli.

I responded to your question about my history with a PM. Just let me know if you don't get it - - my server was acting up. I just didn't want to take up space with all the details. They may be helpful to you, though. Thanks!

Anita
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