CA 125 test results | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > Cancer Concerns - GYN is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

CA 125 test results CA 125 test results

Thread Tools
Unread 06-12-2004, 06:57 PM
CA 125 test results

I am looking for any one who has information on a CA 125 marker test. My sisters has just come back and is over 1100! She has a cyst between 6 and 7 cm that is a solid mass on the inside surrounded by fluid. The cyst also seems to be fed by some sort of blood supply??? She has all the symptoms associated with ovarian cancer. She has a Drs. appointment this week but I'm trying to prepare for what ever lies ahead. Does anyone have any history with the marker test coming back so high.
Thank you.
Sponsored Links
Unread 06-12-2004, 07:24 PM
CA 125 test results

Hi Boos

Although ca125 numbers can be high for a variety of reasons, that number is rather high especially when 35 and under is considered within the normal range.

Right after my hysterectomy my number was 454. I also had surgery for a large tumor on my ovary that did turn out to be cancerous.

I had 6 treatments of taxol and carboplatin and my number dropped after each treatment.

I am two years post op and almost two years since finishing chemo. Thankfully I tolerated everything very well with NO problems or reoccurances. I was diagnosed at stage 3 ovarian cancer.

Please let us know how your sisters doctors appointment goes and please make sure that she sees an oncologist/gynocologist. They are the only experts in this field and that is who you want to see.

Unread 06-12-2004, 07:35 PM
Thanks for your response.

Hi Rosalie,
Thank you for responding. My sister is seeing an oncologist, who does specialize in this surgery at our Cancer Clinic. Both her family Dr. and regular OB/Gyn have expressed concerns that it is the highest CA125 test result they have ever seen in there practice. We are fairly freaked out at this point! I've been all over the internet trying to find info on what stage of cancer this number might possibly indicate. (To date I'm not very reassured) I can only be thankful my sister does not have access to the internet. She'd be going crazy.............I'd rather do that for her right now till we know for sure. I guess I'm hoping for the best and planning for the worst on Tuesday. My sister is only 38, 3 young children and in the middle of a divorce. No stress!
Sponsored Links
Unread 06-12-2004, 07:38 PM

Be sure your sister sees a gynecologic oncologist. That's a must. Are they also going to do a CT scan or MRI? That would be helpful in seeing what's going on. Best wishes to her--that number is very high.
Unread 06-12-2004, 07:47 PM

Boo Bear (My sisters nick name) is seeing the gyn/ocncologist specialist. Her original surgery was for July 15 but she was having pain again(on and off for over a year). They put her in touch with the cancer clinic and they ordered the CA125 test. They will be discussing the tests and perhaps doing a Cat scan or MRI before surgery. We'll know more Tuesday. I'm sure they will be bumping up the date on surgery. From there I'm in new territory. We are a small feisty family, but this has just blind sided us. Cancer is not in our family history at all.
Unread 06-12-2004, 07:57 PM
CA 125 test results

I understand your panic but it's too early to know much. A woman in my support group had CA125 of 12,000. It's come down steadily with surgery and chemo and now it's under 200 with 2 more chemos to go. Another ovarian cancer survivor had a CA125 of 1,300, she had surgery and chemo and finished last September. Her last CA was 4, yes FOUR.

Most cancers are not familial. No one in my family has had cancer either, other than a one Aunt and cousin who are 40+ year survivors. So I can understand your shock.

Why was your sister scheduled for surgery? Not for any kind of cancer?

Ask all the questions you have. Most likely someone here will have the answers or know how to help you find them.

Hugs and comfort,
Unread 06-12-2004, 08:13 PM
CA 125 test results

Hi Jane,

She was scheduled for surgery because ultra sound had found a cyst but her first ob/gyn thought it was nothing and didn't bother to follow up with a CA125 test to see if it was potentially cancerous.(I've done the reading and know that this is not a test that you can base a diagnosis on, but I still don't know why he didn't do it) This Dr. then said if she had any further pain she was to go to the emergency room and try and get the surgery bumped up. His original date was July the soonest he could get her on to his surgery rotation!! Any ways she got a second opinion thank goodness and now is with our Cancer Clinic which is one of the best in Canada. From everything I have read and pieced together I think she may be looking at stage 3 cancer. It frightens me because I know that means Chemo and radiation etc. I guess we take small comfort in that the Chemo won't do any harm to her hair. Silly I know but she has a condition that makes her hair fall out(Alapica) and right now she is already wearing a wig. We joke about going through chemo..........what's the worst it could do............make her hair fall out!!! Bring it on!!!!! No disrespect meant to those who have had to deal with such an experience. We tend to have a very off color sense of humor in my family when dealing with any type of stress!

Unread 06-12-2004, 08:58 PM
CA 125 test results

You aren't the first family to deal with this nasty stuff with humor. I was in the gyn/onc waiting room one day with a whole family and they were laughing the whole time, all 6 of them, really yucking it up. I am sure it helped them to lower their anxiety. No one can be THAT happy waiting to see a gyn/onc! Whatever helps you all to get through this, just do it, and don't worry about the reaction of anyone else.

If your sister was having surgery for an ovarian cyst, her doctor must have had some clue that there was a problem. If it was nothing, he wouldnt be doing surgery, which makes it rather surprising that he didn't explore it further, with an MRI and/or blood tests.

From my limited experience with ovarian cancer patients in the infusion (chemo) room and my gyn cancer support group, most women with ovarian seem to be diagnosed at stage III. None of the women I've met had any pain with their cancer. Most had chemo and surgery, but no radiation.
What makes you think that it's a stage III? Without surgery, it's difficult to know the stage. One of my friends had an 8 inch tumor that was stage I, perhaps II, according to the doctor, but he could find no spread at all when he did the surgery.
She had surgery, chemo, and now almost a year cancer free and no further problems. It's possible that your sister could be like her and be fine in a few months.

I know it's very, very, difficult, but try to take it one step at a time, one day at a time.

What a great sister you are!

Unread 06-12-2004, 09:14 PM
CA 125 test results

Stage III seems to be associated with some of the higher CA125 numbers that I have been able to find info about on the net. I think in my mind if I can deal with that stage, anything less than Stage III is a relief!! I'm very positve, I just work it from a different angle. Quite honestly I've got nothin! I'm grappling with a bunch of what ifs until Tuesday. I know the staging can only be done at the time of surgery. They will be doing a biopsy during the surgery so they know what, how much, etc. that will need to be removed.

Thank you for your concern.
Unread 06-12-2004, 09:42 PM
CA 125 test results

My oncologist told me there was no way to diagnois or to even make a speculation about the ovaries until surgery. The CA125 levels could be high for all sorts of reasons. Tell your sister that on January 29 I had surgery and everyone except my oncologist told me I had ovarian cancer. I was scared to death. I thought my onc. was just being professional and did not want to scare me with the truth. I had masses on both ovaries --the left one was 15 cm and the right one was 21cm. I came out of it with border line cancer in one ovary only with no futher treatment needed. I do realize I was one of the lucky ones, but no matter how much research you do there is just no way of knowing for sure until the surgery. Tell your sister to keep a positive attitude while preparing for all outcomes, at least that worked for me.


Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
8 Replies, Last Reply 12-12-2007, Started By BerthaC
14 Replies, Last Reply 12-11-2007, Started By Cricketchair
5 Replies, Last Reply 12-22-2006, Started By JessicaG
3 Replies, Last Reply 05-04-2005, Started By KDHsam
6 Replies, Last Reply 04-21-2005, Started By notalone
4 Replies, Last Reply 12-13-2004, Started By nascarcrazy
1 Reply, Last Reply 06-10-2004, Started By ZeeZee
12 Replies, Last Reply 12-11-2003, Started By Mary G
7 Replies, Last Reply 07-30-2001, Started By VickiA
2 Replies, Last Reply 12-22-2000, Started By maggiew
1 Reply, Hysterectomy Options and Alternatives
9 Replies, Natural Meno Post Hysterectomy - Kept Ovaries
1 Reply, Hysterectomy Recovery (post hysterectomy)
13 Replies, Separate Surgeries
5 Replies, Prayer Requests for Hyster Sisters
7 Replies, The Road Less Traveled
3 Replies, Prayer Requests for Hyster Sisters
6 Replies, The Road Less Traveled
4 Replies, The Road Less Traveled
3 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause


Hysterectomy News

June 18,2021


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!