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Inguinal nerve pain 4 yrs post op Inguinal nerve pain 4 yrs post op

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  #1  
Unread 06-15-2004, 11:12 AM
Pelvic pain 4 yrs post op

I have been experiencing 4 years of constant sharp pulling pain in my mid rt pelvic area. I have been to many different doctors but most agree that it is an entrapped or damaged nerve (done during my hysterectomy). I am on neurontin right now, but tho it helps, nothing takes the pain away completely. I had a laparoscopy done last year and I don't have adhesions, also I've tried cryoablation to freeze the nerve, but no luck. Has anyone out there had a similar experience?
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  #2  
Unread 06-15-2004, 06:24 PM
Inguinal nerve pain 4 yrs post op

Hi there

Your heading struck a cord. I havent had major abdominal surgery but my husband has, and he has the same problem, and that was 25 years ago.

He finds it worse after lack of exercise, or the wrong exercise, after standing around (eg at a party) or sitting on hard wood!

He exercises regularly, and does selective stretching. He finds the gym equipment where your body hangs by its weight works really well to stretch it out.

But it does annoy him!
  #3  
Unread 06-16-2004, 05:42 AM
Inguinal nerve pain 4 yrs post op

Sorry to hear your having so much pain. I just recently had my surgery so can't help you there, but can pray for you and hope the pain comes to an end soon.
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  #4  
Unread 06-16-2004, 08:44 AM
Inguinal nerve pain 4 yrs post op

Hi ((Linda)),
I'm sorry your still suffering pain, unfortunately, you will find several other gals here, in this forum, that are suffering Chronic pain from Nerve damage Post-Hyst
I experience quite abit of pain in my Vaginal cuff area < its a stabbing/burning type pain > that is said to be caused by Nerve damage. I am on Neurontin as well and also find it helpful but it never quite takes away the pain completely <sigh>

There is some excellent info here on this subject along with treatments in helping to alleviate some of the pain, some have found relief thru Nerve blocks, injections...I've had a few different ones unfortunately none provided me with any lasting relief.

In our Resources Directory you will find several sources of info that might be able to provide you with some additional insight on this along with options available perhaps you could discuss with your Dr

Specifically this forum in the Resources:

Road Less Traveled - Health Complications

Also, here is a link to a search of this forum for *Nerve Damage*; it has quite a few threads & replies from others who are also suffering this:

Thread Results

Good Luck ((Linda)) in finding some answers & most of all some relief to your ongoing pain I do hope you will continue to post & share how things are going for you

(((hugs)))
  #5  
Unread 06-16-2004, 09:33 AM
Inguinal nerve pain 4 yrs post op

Hi Lindamar

I was diagnosed not long ago with illioinguinal nerve entrapment. I would get shooting pains down the left side and into my groin/vaginal area. I would sometimes feel like I had knives sticking in my gut, or a burning sensation there. I went to a pain clinic and they did a nerve block that is supposed to help release the nerve (or something like that). It seems to have helped. My pain is very much reduced and doesn't happen as often. I go back on the 24th for a follow up. They say that sometimes they have to do it more than once. We'll see how it goes.

Shelley
  #6  
Unread 06-17-2004, 07:41 AM
Inguinal nerve pain 4 yrs post op

Hi, I just wanted to share that I have nerve entrapment/damage too. I'm so sorry that so many others have it too.
I have throbing - someimes burning - pain in both sides of my lower front pelvis - in my groin I guess would be the way to describe it. I'm getting costisone injections every 6-8 weeks near my laparotomy scar area - the injectios seem to work for 2-4 weeks then wear off, but getting better overall bit by bit as I can now sit through a movie, whereas I couldn't do so 6 months ago. The pain gets made worse or triggered off especially by too much sitting down - and driving my car makes it worse too. Shelley, I'm glad to hear that you're finding some relief. Can I ask, please - is that an injection in your spine or at the front? - I'm kind of confused and might like to raise the option with my pain doc.
Thankyou.
  #7  
Unread 06-17-2004, 05:18 PM
Inguinal nerve pain 4 yrs post op

Linda,
I was diagnosed with nerve damage a few years ago. As a last resort I even had the damaged nerves removed. While it helped for a while, the nerve pain came back. My doc said that you can't really remove the whole nerve, just the damaged area and that the ends of the nerves can continue to misfire and send off signals.

I too had tried various nerve meds and none of them helped me. The doc did say with the neurontin that it can take several months and that you may have to continue to build the doseage.

I started acupuncture several months ago and that has brought me some relief from the nerve pain.

  #8  
Unread 06-17-2004, 05:35 PM
Inguinal nerve pain 4 yrs post op

I had nerve pain in the past and a low dose of amitriptylene was very effective. I took it for 7 years but now I rarely need it.

It's unclear why I had the nerve pain. I had it before I had a lap myomectomy and I still had the pain afterwards.

It took me 3 years to find a doctor that suggested and then prescribed amitriptylene.

Iphie
  #9  
Unread 06-19-2004, 07:04 AM
Inguinal nerve pain 4 yrs post op

Toady

My injection was at the front - about an inch or so away from my left hip bone. I think the location would be different depending on the nerve that is entrapped. For me it was the left illio inguinal nerve. It sends shooting pain down the left side, and sometimes burning in the lower left pelvic area. I go again next week, probably for another injection. I'm not sure exactly what she injected, but it was a steroid, and she said it usually takes 4-7 days for the effects of it to start working - that is a different experience than other ladies here have had, so maybe it is something different. I will find out more the next time I go.


Shelley
  #10  
Unread 06-20-2004, 08:47 PM
Inguinal nerve pain 4 yrs post op

Shelley, can you please tell me how they pinpointed exactly which nerve to inject? I have had injections many times in my mid pelvic area by 3 different pain drs and except for a little relief, I don't think they are hitting the right nerve. I noticed that Toady is receiving cortisone injections, and I thought I might see if my dr could try that....I'll TRY ANYTHING! I was getting lidocaine injections before, so I don't know if it would make a difference or not, but it's worth a try. I am totally surprised....and happy, to have found some sisters who can understand and sympathize with this chronic pain. Yesterday, I had a really bad day with the pain so I increased my neurontin (like my doc said) but I woke up with a throbbing headache.... can't win for losin... lol
Anyway, thanks for all the info. I am sorry that we are all suffering this needless pain from an operation which was supposed to make us all better, but I try to put it in perspective by thinking of others who are completely disabled, then I don't feel quite so sorry for myself.
(((HUGS)))
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