AIS questions

I had a cold knife cone on March 19th for AIS. I had a followup with my onc/gyn in May - he said the margins were okay and that for now everything "looks good" but that I should think about having a hysterectomy. I will be returning to see him in August for a full exam and to tell him my decision. As it stands right now, I am having it done - I don't want to worry anymore. Also, I have heard that abnormal glandular cells (AIS) can be in different places - so what's to say that it's not further up into my uterus? Also, If I don't do anything but have regular exams, what are the odds that it comes back worse? Can anyone help me. I am also going to be meeting with my regular gyn before I go back to the onc/gyn just for my own sake.

Thanks

's and

I really don't have any answers for you. But I do wish that there was some test that they could do to catch endocervical cancer. Being that the cells are higher up in the cervical canal it seems as though normal pap screaning misses AIS. I am one that it was missed on. Although I didn't have regular paps (hate doctors and going for checkups) every one that I did have was normal, except for my last one before my hyst (done for other reasons) and we didn't get the results of that one until after my surgery.

I wish you the best of luck and

God Bless

Hi,

I have the same problem but my laser cone did not catch all bad cells - margins came back possitive. I requested a Hysterectomy this week and the surgery will be done on July 19th. I am ONLY 28, single, with no kids. Imagine that......

AIS is scary. That is the main reason I wanted to do a Hyster. Plus, my parents are very supportive in helping me making this decision. They want me to live rather than giving them a grand child.

I wish you well. Keep me posted.

Kim

Best of luck to both of you. I know that having the hysterectomy is probably the best decision and knowing that others are making the same choice is reassuring. There just seems to be a lot of ???'s as to how and why AIS happens - and they can't stop it. By the way, what is a fistule? Is this something that can occur with AIS?

Paula