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Unread 06-24-2004, 01:23 PM

Hi I just joined the group today as I was reading some of the stories and I to have been dealing with abnormal paps for over 10 years now off and on. In the beginning and until about 2 years ago they always would do repeat paps and biopsies and follow the case. In Sept. 2002 I had an abnormal pap that started to be CIN3 and I was pregnant at the time so they mainly followed it during the preganancy at my request. Once that was over I have had several biopsies, a leep and still abnormal paps. They recently on May 20 2004 did a cone biopsy to get a better pathology and the margins came back positive for CIN3 and in the endocervical canal. My Dr. recommends a hysterectomy but leave in the ovaries. I was really having a hard time deciding on what to do because I am only 31 and felt I was on the young side for this procedure and that I may not really need it. I was wondering if the dr. didn't know I wasn't planning to have any more kids would the recommendation have been different. I went to another dr. for a second opinion and he said he would recommend the same thing 60/40 unless I wanted to wait 3 mons. and have the repeat pap done and see if it comes back normal. I went back to my regular dr. and told them and they said they really feel it would be hard to follow me from the outside because I have the cells high up into the endocervical canal and that a pap could come back normal but it may not really be up high enough and the fact that I have a really high cervix its hard to see. I have been reading and it appears that some people they recommend hysteretomy for and some they don't for this same issue (cin3). I have also read that cin3 is the same as CIS but other places say they are not the same does anyone really know? How worried should I really be about this? I asked the dr. if I was diagnosed with cervical cancer what treatment would they do and they indicated a hysterectomy so some people say maybe play the odds because either way its the same treatment. I'm afraid that possibly it could be worse further up in my cervix than the test have detected. I am scheduled for the surgery 7/30 and was wanted to hear from people what to expect? Do you feel different, what is the down time associated with the surgery, side effects, pain, any helpful tips. This is all really confusing. Thanks for any comments back sorry for so long.
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Unread 06-24-2004, 02:58 PM

I was diagnosised with endocervical adenocarcinoma, but it was after my hyst (due to other reasons). All my paps (although infrequent) were always normal except for the last one just before my surgery (but didn't get results till after surgery). Are you having a hyst on 7/30 or cone or LEEP. I couldn't tell. If you are having a hyst, the 'normal' down time is 3 to 6 weeks. I started feeling normal around the 3rd or 4th week, but everyone is different. As far as a cone or LEEP, I cant tell you because I never had one.

Either way I wish you the best of luck, and I do hope that you do well either way.

God Bless
Unread 06-24-2004, 03:08 PM

Yes I am scheduled to have the hyst on 7/30 I have had the leep last year and been followed and due to CIN3 had a cone on 5/20 with postive margins and also in the endocervical canal thus the recommendation for the hyst as they feel it will be hard to follow from the outside. Part of your response was very interesting because I was told that sometime they can't diagnose everything until after the surgery when they can perform path test on the stuff which is scary because it could be something worse than CIN3 and you not know it. Will you have to have any follow up treatment due to what they found after your surgery?

Thanks for your response.
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Unread 06-24-2004, 03:32 PM

Yes I have to go every three months to my gyn/onc. Are you with a gyn/onc or just a obgyn? Gyn/onc's are the best when it comes to female cancers of any kind. I would urge you to see if you could at least see one before your surgery, and if nothing else have them assist on the surgery or be avaliable.

God Bless
Unread 06-24-2004, 03:36 PM

Yes I see a gyn/onc dr. I'm hoping that this will take care of the issue and the path report will not show anything I wasn't expecting. I imagine that the wait on that report will be the longest wait ever. Good luck with your treatments!
Unread 06-24-2004, 04:43 PM

My first bad pap was in 1999 and since then I've had 1 laser and 2 leeps. When another pap came back abnormal in March a hysterectomy was recommended. The thinking was that after 2 leeps my cervix was somewhat shortened and follow up, particularly of the endocervical component, would be difficult if not impossible.

I asked my doctor if perhaps a hyst was like killing a bug with a sledgehammer and he said, "Somewhat." But the particular bug is question, while slow moving, is potentially deadly. Waiting and watching wasn't for me.

I had a vaginal hyst, no other repairs, 5 weeks ago. I know some people have quite a hard time but for me the whole thing has barely been a blip on my screen. Felt pretty good 2 hours after surgery, mighty fine the next day and sometime last week the minimal discomfort I'd felt vanished. Oh, I did have one morning of killer gas pains but other than that.......I have two very young children (no family nearby, husband only does what he's asked to do) so my load at home hasn't been light and I still say its been no problem.

If you go ahead with the hyst I hope you have a similar experience.

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