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Mid Pelvic Nerve Pain Mid Pelvic Nerve Pain

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  #1  
Unread 06-24-2004, 07:25 PM
Mid Pelvic Nerve Pain

Hi Sisters:

I recently posted under Inguinal Pain 4 yrs post op, but the more I heard about others describing that pain, I am really doubtful if I've even been diagnosed correctly. If anyone is out there who has had nerve pain in the area about 3 " to the right or left of the belly button and radiating to the area above the hipbone, I would really love to hear from you.

I am about to go back to the pain management dr. again. This will be my 4th try with 3 different pain clinics to get get SOME RELIEF. I am on neurontin am and pm and that does help some (along with Aleve) but it makes me so sleepy and tired all the time. Other than trying injections again, in hopes of the dr. hitting the right area, I have no other options.

I've had 2 cryoablations, (attempts to freeze the nerve)but neither one worked. Unfortunately, my experience with pain clinics isn't too positive, but I am going to try one more time, just out of frustration to see if they can kill this blankety, blank nerve causing me 4 years of never-ending pain.

I am so glad to have found this forum to share with others experiencing the same type of pain, at least I don't feel so alone. I know my husband sure doesn't want hear about it any more (even though he has been pretty patient and is dealing with serious medical problems himself).

I will really look forward to finding another person with these same symptoms. (((HUGS))) to all in any pain. Linda
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  #2  
Unread 06-24-2004, 08:16 PM
Mid Pelvic Nerve Pain

LINDAMAR,

I also have nerve damage. My pain is a little lower than yours but it does go to the hip and down the inside of my right leg. My surgeons dx was ilioinguial nerve entrapment. It is more common in men who have had hernia surgery. I am currently on Neurontin 3x a day (600 mg) and a Lidoderm pain patches (2 per day from the time I get up until I go to bed). My Dr. at the pain clinic said that the shots usually don't last very long IF they do work at all. I am not sure where I will go from here, if my Dr. will want to try something new or just stay with the meds he has me on now.

I hope you can get some relief! I know how you feel.



Take care!

Katie1938
  #3  
Unread 06-24-2004, 09:12 PM
Mid Pelvic Nerve Pain

Hi Katie:

Thanks for the info. I am so sorry that you, too, are going through this same kind of pain. I noticed that you said you are taking 600 mg of Neurontin. Is that 200 mg 3 x's a day or 600 mg 3 x's a day? When I take 600 mg. at one time, my head feels floaty and it makes me really tired. Does it have that same effect on you?

Do you think the Lidoderm patch brings you any relief? If so, I may ask the pain dr. to let me try it.

Hang in there, maybe one of us will find a cure, and then we can help each other.

In the meantime prayer and (((HUGS))) REALLY HELP .......... thanks so much.

Linda :-)
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  #4  
Unread 06-25-2004, 05:16 AM
Mid Pelvic Nerve Pain

Linda,

When I first started the Neurontin I did make me sleepy and my head fuzzy, but now I am getting used to it and I hardly notice any effects.

I take 200mg 3x a day, 6 am. 2 pm. and 10 pm, so I don't get to sleep in or go to bed early Oh well.

About the Lidoderm patches, Yes I think they make a big difference! I have tried to go without them to see if things are getting better, or if they are working and it just proves that they are working!!

I hope some of this will help you in your journey to a pain free life!

Take care!

Katie
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