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Diet and endometriosis Diet and endometriosis

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Unread 06-25-2004, 07:32 PM
Diet and endometriosis

I am about to lose it! I had my hysterectomy 2 years ago today and I am still having pain....I kept my ovaries and they are causing problems. The only thing the hysterectomy helped me with was the 3 weeks of bleeding that I had each month and the cramps that came along with it! I still have that same old sharp, stabbing pain on my sides. There's still a pattern to it and it seems to come on with other pms symptoms like acne and breast tenderness.

My doctor is at a loss right now and doesn't know what to do. He wants to take out my ovaries, but there's so many risks with that....Things would be more simple except for the fact that I had bilateral pulmonary emboli in September. The culprit? Probably surgery and BCP's combined. So now I'm afraid of surgery and I'm afraid to take any hormones. My gyn suggests I get a second opinion.

So, finally to my question about diet.......have any of you with endometriosis experimented with your diet? Do certain foods seem to make your symptoms worse? I've heard of the endometriosis diet, but have not really looked into it yet. The reason why I thought of this was because 3 years ago when I was on Lupron, my pain went away. It was great.....except for the horrid Lupron side effects.....I was almost pain free, until I went on Premarin for add-back therapy. That's when my pain started coming back. Then when I went off Lupron, the pain came back full force.

While I was on Lupron, I also was doing weight watchers and eating very healthfully. The pain coincidentally came back when I started going back to my old eating habits. I'm wondering if diet played a part in relieving my pain or if it was just the Lupron. That also makes me wonder if my pain is GI related???? The one thing that makes me think that it's not is that it is cyclical.

Just curious
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Unread 06-26-2004, 07:11 AM
Diet and endometriosis


First, let me say how sorry I am that you are still dealing with the Endo monster. Even though I had my ovaries removed during my hyst over 3 1/2 years ago, I too still have Endo. It was confirmed following a lap, and I am still symptomatic. Many things have shown up on U/S and my docs believe I have an OR and / or more Endo. I won't know until I have another lap, and my newest Gyn is heading on maternity leave very soon, so I guess I'll put it off yet again My dr's are also (me too) hesitant to do anymore surgery due to nerve damage, but I think it needs to be done so they can have a really thorough look in there. Enough about me

One of the top Endo specialists I saw up here in Toronto (apparently he is one of the best in Canada) said that I should try the "Cancer Diet." He said that there is definitely a link between Endo and what we eat. I haven't brought myself to do this yet. I don't eat very much, and the odd treat does give me a lot of joy in an otherwise painful existence. I've promised myself that if, after the impending lap I end up with more 'endo like pain' that I will go on this diet.

I don't think we're supposed to post links here but if you do a search on one of the good internet search sites, many links will pop up. Please PM me if you need any assistance.

Good Luck and let us know how you are doing...S
Unread 06-26-2004, 11:37 AM
Diet and endometriosis

There is a book about the "Anti-Inflammatory Diet" that I found illuminating. For example, it said that tomatoes and other "nightshade-type" plants (such as eggplant) can contribute to inflammation. For me, too, wheat is a definite trigger, and I try not to eat much of it.

Since endo is "promoted" by inflammatory changes in the pelvis (and causes its own), I figured that diet was worth a try. And the Endometriosis Association has a diet on their website, I think, that follows many of the same principles. It's a low-gluten, no refined sugar, caffeine, etc. diet that does help me with my intestinal problems and pain/bloating!

Good luck with this. I'm in line for another surgery too, but I figure that, as long as I'm "functional" (which I am!), it can wait!

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Unread 07-01-2004, 04:00 PM
Diet and endometriosis

I have experimented with diet for long-term endo and was very successful prior to my TVH. I saw a naturopath several years ago and she had me stay away from (within reason) alot of animal by-products. Animals produce natural estrogen which adds to what we already have in our body which makes it much easier for endo to be bothersome.

Red Meats
Chicken, Pork etc.

However, it is not forbidden to eat this stuff just control the intake. We used to live on a ranch where we had as much beef as we wanted and that is what we ate and I drant lots of milk. I cut back on how much I had each week and almost eliminated milk completely and it worked wonders for pain and bloating. Additionally, she had me on the following which also helped tremendously:

B6 & B12 - very high doses
Vit. A, C, E and Selenium
Flax Seed capsules 2 x per day

It is most definately worth a try to manipulate your eating habits. Exercise also helps me. I walk and do pilates daily. A lifesaver.

Good Luck.
Unread 07-16-2004, 12:02 PM
Diet and endometriosis

This week, Italian scientists have discovered a dietary link with endo. red meat is a definite no-no, and lots of green veg is the way to go. I would imagine that following an anti oxidant cancer diet would also be beneficial.
I haven't suffered with endo, but my SIL does, and I can only imagine the pain that goes with it.
Unread 07-18-2004, 06:45 PM
Diet and endometriosis

Unread 07-19-2004, 08:06 AM
diet and endo

Dear pasdechat:

Hi! My name is Susan and I am relatively new to this site. I am also scheduled to have a TAH on July 29th, 2004 and I'm nervous as heck. Thank GOD for this site and the women who created it!

I do not know how many reponses you recieved in regards to your post, but I thought I'd put in my $0.02.

I have stage IV endometriosis. I suspect I've had it my whole life, however I wasn't officially diagnosed until I was 34 years old (I'm 37 now). Once I got over the shock of the diagnoses and the fact that I am unable to get pregnant with out the assistance of IVF, I began doing as much research as possible about endo. Every month I suffer from severe heavy bleeding, cramps, bloating, vomitting etc... and I am guaranteed to miss a day or two of work as a result -- or-- I miss out on social engagements. I am unable to use tampons and sex over the past couple of years has been very painful (thank goodness I have a patient loving husband). On my quest to gain as much knowledge about endo as I could, I found one book, yes ONE BOOK that answered all of my questions about endo and diet. That book is: "Endometriosis: A Key To Healing Through Nutrition" by Dian Mills. Out of everything I had read (hardcover and on line) this book proved to be the most useful. Now I should add that I have been a vegan for many many years, but this book opened my eyes to foods I had been eating that were upsetting my endo, like Wheat and Soy. As soon as I eliminated all wheat and soy from my diet as well as added fish and fish oil pills into my diet, I noticed a marked improvement in the color of my bleeding (sorry if too graphic) and I had less bloating. Although, nothing holistic can be be done about the volume of flow I have, at least the color was bright red vs. dark brown. I also noticed I was less bloated (before I had this chronic pooch) and I also dropped 7 lbs w/out even trying since elminating all wheat. Thankfully, there are many wheat subsitutes available like wheat free breads, pasta, crackers, and so on so I don't really miss wheat, except for when my husband orderes a pizza (and before I found out about wheat, I would order pizza w/out cheese) other times I miss wheat when I see my co-workers are indulging in KrispyKremes or a muffin.

Currently I am in the middle of my last and final period and knowing my surgery is around the corner I decided to indulge is some foods I no longer eat, i.e., like pizza and pastries and man did I pay the price. I bloated up something awful and my period was more painful than it ever was... I regretted my decision to indulge in these foods because the pain I experienced wasn't worth it. Now don't get me wrong, following the principals in Dian Mills book never elminated my endo pain, it did, however alleviated a lot of the other symptoms I experienced during and before my period. But I am still dependent on my pain meds.

I also exericse and have my whole life and as one girl on this site wrote, "I'm no Cindy Crawford Body" I am fairly fit, so even though I was vegan and I exercised, I never ever found 100% relief from my endo.

I also realize a hyst will not cure my endo pain, but I'm willing to deal with that because it will put and end to my heavy painful periods. But with all that said, diet most definitely made a difference in how I felt over all, before, during and after my period. I am hoping that once my uterus is removed, I can focus on managing my endo via diet and supplements and not have to worry about the bleeding, cramps and missing work.

I'm sorry to read you are still having endo pain after enduring a hyst. Maybe if you try elminating all wheat and soy (if you eat soy) as well as adding some supplements to your diet maybe you will see some benefit? I would definitely buy the book, it's very very informative. Also, everything I eat, I try and buy organic, if possible. According to Dian Mills, we endo sufferers must avoid as many chemicles as possible as it can affect our endo. I would give you my copy of the book if it wasn't like a bible to me. It pains me to see so many women suffering as a result of endo and the fact that in this century there is still no cure, which leaves many of us opting to have a hyst as a last ditch effort to find relief from our periods.

I wish you the best and I hope you find relief soon. Life is too short to have to suffer in pain. If there is anything I can do, please let me know...

Best wishes!!
Warm Regards,
TAH scheduled for 7/29, keeping ovaries.
Animal lover with 4 cats: Seti, Tut, Lucy and Samwise
Unread 07-30-2004, 07:20 PM
diet and endometrosis

Hi Pasdechat,
Read your post and you asked about diet. Diet plays a tremendous role in health...more than you could ever imagine.First and foremost, meat and dairy should be totally out of your diet. These products are full of hormones that upset our delicate systems. Also, its important to eat lots of green leafy veggies and cruciferous veggies like brocolli, cauliflower, lots of clean water.Eating whole grains products( no refined or processed foods like white rice, white rice, white sugar, salt) Whole grains include brown rice, quinoa (which is like a rice but looks a little different and is very high in protein. Aslo, juicing green drinks like putting kale, collards, (dark leafy greens) through a juicer and adding a little carrot juice will also help. Just dilute it half with water to start and gradually work your way to drinking it full strength. In addition take your vitamins but dont take iron unless you are definitely iron deficient. Add kelp to your diet ( you can get all this stuff at a health food store). Also if you go to which is Physicians Committee for Responsible Medicine has some good recipes and information on diet and disease. Also, has lots of good ideas for eating healthy with many recipes. Read John Robbins book Diet for a New America and his newest book Food Revolution. It angered me and exposed the lies that the food industry tells us everyday. Its sick!! and it makes people sick!! all for profit. Also, Ruth Heidrich has a website.. She's an amazing cancer survivor and her diet is rich in fruits and veggies. Check out her website too just to get and idea about diet. Also, John McDougall has a website about diet..Just type those names in the search engine and their sites will come up.
Most people in this country consume the SAD diet which stands for the Standard American Diet and its killing people. So I hope that helps some. Go with what God put on this earth and the way he put it here................without pesticides, herbicides, antibiotics, harmful chemicals. He put food here that was organic without all those poisons on it. So eat organic if you can. Also, eat as much raw food as a very very large salad everyday with lots of green lettuces (no iceberg lettuce please) but you can eat all green veggies just cut them up or slice them on a salad and eat it everyday. Then have a lot of different fruits during the day when you get hungry..there's mango, watermelon, grapes, oranges..blueberries( really healthy) and all the different berries.. God gave all of these to us and people would rather go and get some nasty fat laden chips out of the vending machine with a coke for a snack...Not a good idea.
Get rid of the sugar in your diet... if you have to have something sweet then use pure maple syrup just a little. So get started.. You can do this and let me know how you do.
Peace and Veggies

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