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Back with 3 cm cyst lasting 14 months Back with 3 cm cyst lasting 14 months

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  #1  
Unread 06-25-2004, 07:20 PM
Back with 3 cm cyst lasting 14 months

Well I am back. I still have the cyst on my right ovary. I was hurting worse than normal on Wed so I called my OB in the afternoon. I was told by the nurse that they would have to get my chart and then call me the next day (no biggie, I called late in the day). Well I did not get a call back on Thursday. I did get a call today, Friday AM and was finally told that I had to go see my regular doc. I was fuming!!! If I had known that I needed to see another doc I would have called him. But nobody at that office bothered to tell me. My OB was too busy to call me yesterday. I dont know how many times he has told me that a 3 cm cyst "does not hurt" , well I know he is wrong. It has been there ever since they put me on hormones to stop the bleeding which led to my hyster. I am pretty sure that the hormones in such large doses caused it. I was able to get a hold of the on call doc that was filling in for my reg doc since it was his day off. All I wanted and had been asking for was a simple ultrasound. It was nice, sounded like someone was listening. I did not even need to see him he just ordered it at 4pm. Then at 5pm I am told that it is actually SMALLER now instead of 3cm it is 2.99cm and to schedule a recheck u/s in 2 months!! I was confused and angry. I scheduled an appoint with my reg doc for Monday afternoon then left. I dont know how I made it home I was a wreck, crying and angry and feeling pretty ignored. I'm surprised I did not cause a wreck. On top of all this my husbands insurance through work is going up again. We cant change to a private plan because of me. No one will cover my "preexisting" condition. It should have been taken care of a long time ago. I kept asking for a recheck u/s on this, but my ob just claimed that there was nothing he could do, because nothing was there. The he refered my to a gastro guy. The gastro did a CT and that was how the cyst finally got found, or at least I was told about it. The pain is the same, just worse, as it always has been all this time.

I knew in my heart it was a cyst. I tried to tell my doc to look for it. Now I dont know how to FIRE him. Do I write him a letter? OR book an appointment with him and tell him how I feel?

Right now I am so stressed with the Insurance stuff and finding out for sure that the thing is still there, it seems to make it hurt more. It may be that I am focused on it right now, but I dont know what to do until I see my doc.

What are the ways something like this treated? I need to be informed before my reg doc appt on Monday.

Any advice or insight is greatly appreciated.

Sorry to make you read so much,

Linda
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  #2  
Unread 06-26-2004, 10:51 AM
Back with 3 cm cyst lasting 14 months

((((Linda)))) I'm so sorry you've been in so much pain for such a long time

I've been having pains, off and on, in my lower right abs, just where my ovary now resides, ever since my ovaries went back to work, at 3 months post-op. And, especially since the pains tend to be cyclic, I was absolutely sure that the pains were caused by my right ovary.

It got to be so bad, along with a few other issues, that I ended up in my OB/GYN's office, at 5 months post-op. At that time, he examined me and I was absolutely dumbfounded when he claimed that the pains weren't caused by my ovary but were due to a spastic colon

This went on for a while and, starting at about 10 months post-op, the pains weren't appearing quite as often, so I ignored it for a while. Then, about 18 months after my hyst, I started having intense, stabbing pains in my lower right abs, in exactly the same spot. The pains were about the same as the pains I'd been getting all along, but more intense and would irradiate all the way to my back. So I went back to my OB/GYN's office and, at that time, he confirmed that this intense pain (which had by then relented a little) had been caused by a burst ovarian cyst. And he also mentionned, again, that I had a spastic colon that was causing pain the rest of the time.

I've since found out that PMS can cause IBS flare-ups and that the spastic colon is most likely caused by the IBS or a side effect of that condition. This is all very frustrating, because the pain was, basically, the same and it was the same locations... and occurring at about the same time Makes it all soooo confusing, to the point that you don't even know what type of specialist you need consult!!!

This goes to show that your pain might only be caused, in part, by the ovarian cyst and that another underlying condition could be causing most of your pain. That's probably why your GYN recommended that you consult with your GP: so that the GP can evaluate the situation and decide what specialist is best indicated for you.

Sending lots of s your way and hoping that you'll feel better real soon. Please, do keep us posted.

ps: I've learned that it's important to follow up on the calls you've left for your doctor. You see, most receptionists/nurses will give both messages to the doctor, but will indicate that the second message is a call back, signalling the urgency of the situation to your doctor.
  #3  
Unread 06-26-2004, 01:50 PM
Back with 3 cm cyst lasting 14 months

I have done the colon thing to no avail. The only thing he found was the cyst. Nothing else. I even had a colonoscopy done. I think my OB just did not want to deal with the fact that I am having pain and that a "small" cyst might "is" be causing it. I am still so angry even now and it has been a day. I did not sleep for squat last night and I am wiped out emotionally and physically. Oh, and from watching the U/S it looked as if my Left side has many different clear black spots. Im only guessing, but they may me multiple small cyts. Which would explain the occasional pressure type of pain I get on the left side at times. I have not been complaining about it, because I want to get attention on the right side.

Has anyone else had small cysts that have been such a problem? Mine is 3 cm.

Thanks
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