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Results of GYN/ONC appt Results of GYN/ONC appt

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Unread 06-29-2004, 05:12 PM
Results of GYN/ONC appt

Hello sisters

Well, I had my gyn/onc appointment today after cancelling surgery yesterday with the gyn and regular surgeon. Again, I cannot thank all of you enough who urged me to hold out for a gyn/onc.

She spent over and hour with my DH and I doing a complete history, then to the exam room.

Pelvic exam kind of hurt today. She said there was some "fluid". Then the rectal exam, also she said some "fluid". By now, I'm really uncomfortable, with this softball size tumor on on my right ovary.

Reviewed the CT scan results done locally. Have a 4.0 cm. lesion on my liver. She said some people have liver lesions there whole life and never now it. Wasn't too concerned, but called over to diagnostics and asked them to ultrasound the liver too with my others.

Over to the hospital for chest xray, pelvic and vaginal ultrasound along with the liver. Back to her office, the Dr. was gone, by the nurse went over all of my paperwork for surgery. It will be this friday at 8:00.

Then the news......i asked the nurse if my gyn had faxed over my CA125 yet. She said yes, that it was high, and I asked her how high ..................2067 !!! She tried to reasure me by saying, that it can sometimes be just a number, and that they have seen higher.....

Help !!!! I'm so stressed over everything and this skyrocketed CA125....and the liver stuff.....and the fluid (also have moderate fluid in the abdomen which along with the tumor is why i'm so uncomfortable).

I really like this doc....but I am so scaired....I could have waited around for her to get out of surgery I guess, but I just wanted to get out of there and get home.....we had been there since 9:30 and didn't leave till almost 4:00....

Anyone else have that high of a CA125, liver lesions, or fluid accumulation ????????? Help !!!!!!!!!!
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Unread 06-29-2004, 05:31 PM
Results of GYN/ONC appt

s Lori

Take a deep slow breath and try to relax a little.
So many people have odd cysts and various other things show on CT scans. Many times they are absolutely nothing! Don't stress over this fact.
The fluid you describe is called ascites. And unfortunately it is often found along with an ovarian cancer diagnosis. And ascites can cause much discomfort. You are right about that.
My own ca 125 was in the 900s before surgery. I have seen some ladies with ca 125s in the five figures. The higher reading is not indicative of a worse case scenario.
I am just soooo thankful that you went to a gyn oncologist, and I feel much more confident with this specialist performing your surgery. With an 8am start, your doctor will be fresh, rested and ready to do the best job.
All that said, it still takes surgery to have a definite diagnosis.
Hang in there.

Unread 06-29-2004, 05:34 PM
Results of GYN/ONC appt

It is very good that you were able to have all these tests today and will be having surgery soon. 4 extra days was definitely worth the wait to have a gyn/onc. Many women have CA125 numbers that high before surgery and it can be elevated for reasons other than cancer. I had a spot on my liver that showed up on a scan , but has not been seen since. I know that sometimes fluid builds up called ascites, but this can be treated.
My tumor was 8 1/2 cm's. and many have much larger ones.
You won't have any real answers until after the surgery, and I am praying for a good outcome.
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Unread 06-29-2004, 05:42 PM
Never Waste a Good Panic

This is my stock advice, sometimes quoted by others. Karenann gave you excellent information as did Debbie. The definitive moment is the surgery and then they'll know what truly is going on. Nerves are normal at this time. You have done the right thing by going to that gyn/onc. Be nervous, cry, get ready for surgery, but don't panic. Never waste a good panic. You're in the best hands and most importantly you have knowledge of what's going on, and that gives you power. And yes, CT's do pick up odds and ends people have had forever. I have one part of my colon that is slightly thicker than the rest and a knot of blood vessels in my liver, a hemangioma. Never would've known either. Keep asking questions and check out pre-op and post-op too. Don't waste a good panic on me.
Unread 06-29-2004, 06:12 PM
Results of GYN/ONC appt

Hi, Basket!

I am SO glad to hear that you held out for a gyn/onc and that they are getting you in on FRIDAY! WOW! Terrific!

You must be very nervous at this point. Try to relax. There's absolutley nothing you can do about it at this point until you have some more information.

You can rest easy knowing that you are in the best hands in the event that they DO find something, the right folks will be on hand to deal with it.

Please let us know how everything turns out for you!!

Unread 06-29-2004, 06:35 PM
Results of GYN/ONC appt


I agree with the other women who posted above. They have given you good advice.

I, too, have a lesion on my liver. On my CT scan post chemo, it was unchanged from pre-op CT scan. My GYN oncologist is not concerned about this lesion.

Please take time to focus on the positive. You liked the doctor. She is a specialist. She knows what biopsies to do so that if it is cancer, you will have the correct treatment. You are doing everything you can do.

If you attend a church, ask the pastor to come see you at the hospital before the surgery. My pastor (a woman in her late 20's) came to see me in the pre-op area at 5 am before my surgery and said a prayer with me and my parents. This was very comforting to me.

Also, I had a morphine pump for pain after surgery-you press a button and you get morphine through an IV. It helped a lot. The first time I walked after surgery did not hurt as much as I thought it would.

Please let us know how you are doing after surgery.
I will be praying for you on Friday.

Stephanie age 36 in Orlando, FL
Stage 3a ovca 9/26/03
10/15/03- 3/23/04-chemo
4/12/04 CA-125 17
now in remission
Unread 06-29-2004, 06:37 PM
Results of GYN/ONC appt

Hi Lori,

You have been very busy and I am sooo soooo glad that you took all of our advise.

We all know that this is easier said than done, but please try and relax a little. Take some deep breaths and all concerns one at a time.

My ca125 before surgery was 454 but I know of people whose number was even higher than yours and they are doing fantastically!!

I also had fluid in my abdomen caused by the tumor which was pushing up on my lungs making breathing uncomfortable. Actually that was my first clue. I thought that my asthma was acting up. Boy was I wrong.

Friday will be here before you know it and hopefully by Monday morning you will be home. I had my hysterectomy on a Thursday, late afternoon, and went home on Sunday morning.

We will be waiting to hear from you with lots of good news.
Unread 06-29-2004, 06:41 PM
Results of GYN/ONC appt

Thanks so much for all of the words of encourgement sisters!!

It really helps so much......

Going to likely have a vertical incision so that the doc can see everything really well. Also, a CLP (S)? line in my neck. Dr. says she does this to keep a better eye on her patients.

Haven't had bikini wearing days in many who cares?

Thanks again !
Unread 06-29-2004, 06:44 PM
Results of GYN/ONC appt

Hi again,

I also had that thing in my neck. It does not hurt and I did not even know that it was there until they said that they were going to take it out.

I am cut up and down but my battle scare has faded alot and only dull memories are left.

Unread 06-29-2004, 07:44 PM
Results of GYN/ONC appt

I am sooo glad you went to a gyn onc! Many people have "spots" of one sort or another on their livers and these preliminary scans are very useful so the gyn onc surgeon can check out any areas that might be a problem, and the scans can then be used for comparison.

Friday is not so far away - and the surgery will be all done and you will be home again by this time next week. Did the doc ask for a full bowel prep? That is not uncommon for gyn oncs.

Try to pamper yourself tomorrow and as much as you can on Thursday. Your surgery is Friday the 2nd, right? When during the day - we'll all say a prayer for you


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