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Pain and fatigue are back! Pain and fatigue are back!

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Unread 07-03-2004, 01:20 PM
Pain and fatigue are back!

Hello everyone,

I am new here. I just had to find someone to talk to about my problem.

My drama started in 1999 with heavy bleeding and pain on my left side. The diagnosis was a large cyst on the left ovary and two smaller ones on the right. I was treated with birth control pills and pain meds. After almost a year my md recommended laproscopic surgery. My sister was diagnosed with endo many years ago, so it was no surprise when he found that my whole abdominal cavity was filled with the stuff. He lost count of the cysts he found.

I went on 6 months of Lupron. I was horrible. I had such severe joint pain, especially in my fingers and toes, and the mood swings were outrageous. It held it off for about a year. I went back on birth control pills for a while too. In 2002 I went in for another laproscopic surgery. Needless to say, it didn't go well. The adhesions were severe, and my bladder and uterus were stuck together. While trying to separate them, my md cut my bladder. So he opened me up completely to repair my bladder and get the rest of the endo, adhesions, and scar tissue. I spent three days in the hospital and went home with a catheter. Fortunately, my dh is an RN. He noticed the next day that my urine was cloudy and my incision was turning red. By that night I was running a high fever. He called the md who prescribed an antibiotic, which I threw up immediately after taking it. This was on a weekend, so I had to wait until Monday to get in to the md. The night before I truly thought I was dying. I was sick to my stomach, in horrible pain, had a high fever, and the smell from my incision was sickening.

Anyway, he had to take out my staples, and my dh had to stuff my incision twice a day for three weeks. It was the most painful thing I have ever experienced. He called it a staph infection, but no one really knows for sure what it was. A week after the staple removal I came down with a bladder infection.

Last December, about a year later, I was once again in unbearable pain. I had had enough. I had a TAH/BSO. I felt good for a while, but the pain is back again. I am about 7 months out from surgery. This is so frustrating. The fatigue is also back. I've put on some weight, so I know that isn't helping matters, but I'm on Estratest and I've heard of weight gain being a big (no pun intended) problem with HRT.

Is this never going to end? I don't know if it's adhesions, scar tissue, remnants of the endo.....Thoughts??

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Unread 07-03-2004, 09:08 PM
Pain and fatigue are back!

Oh ((((Sweetie)))) I'm so sorry you've been having such a hard time And I can only imagine how frustrating it is that the pain and fatigue is now back, months after your hyst

While I'm fortunate enough to not have to deal with either of the Endo and Adhesions monsters, I know that far too many of our Road Dwellers have been their victims... Hopefully, they'll be around soon to share their insight.

One thing that seems to be a must-do, is to contact your doctor (I know: that's probably the last thing you want to do ) and mention that the symptoms are back. And do mention how the Estratest is affecting you: there might be other options for you.

Sending lots of s your way, and hoping that this is only a temporary set-back and that you'll be feeling good again, real soon. Please be sure to keep us posted.

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