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Want to get pregnant but have high grade precncer Want to get pregnant but have high grade precncer

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  #1  
Unread 07-05-2004, 07:13 AM
Want to get pregnant but have high grade precncer

Hi all. I am new to this site and unfortunatley for me, my Dr. has been no help! In fact, since I originally went to see him through the EDP Program (early detection) the day he gave me my biopsy results, he told me that he could no longer treat me through this program...So...while I am looking for yet another Dr. to shed some light on my situation, I would really like to have a baby before they decide to do surgery (diagnosed with high grade orecancer with no clear margins) At this point, I am completely freaking out, fnially had a melt down with a fit of crying, and really not sure what to do. I am only 33, I have one child (12) and am recently married. Any advice or help would really be appreciated.
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  #2  
Unread 07-05-2004, 10:00 AM
Want to get pregnant but have high grade precncer

s

I can understand why you're so stressed. I had precancer too, and had a hyst because of it ( pathology was benign ). I was already menopausal so having children wasn't an issue for me.

I think that if I were you , I'd try to find a dr quickly and make an appointment to discuss what my options are. Discuss the pros and cans of all your options and then with your dr, make the decision that is best for YOU.

Best wishes.

s
  #3  
Unread 07-05-2004, 03:39 PM
Want to get pregnant but have high grade precncer

's

I do hope that you are looking for a gyn/onc. They are the specialist that deal with female cancer/precancers. There are some fine girls on this board that can help you find out what options that are avaliable.

I wish you the best of luck in what ever you choose and will pray for you.

God Bless
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  #4  
Unread 07-05-2004, 03:55 PM
welcome

Hi Kemp,

Sorry you are going through this right now. I would definitely get an appointment with a gyn/onc, as the others have suggested. There are treatments for pre-cancer that can preserve fertility.

Did you have a cone biopsy already? If not, that procedure can be used to remove the cells but your still have your cervix. Also, I had a relatively new surgery called a trachelectomy where the cervix is removed but the uterus is left in place, leaving the option for fertility.

Beth
  #5  
Unread 07-05-2004, 04:18 PM
Want to get pregnant but have high grade precncer



I'm so sorry you are going through this right now. Absolutely seek the advice of a gynecologic oncologist. They can give you some ideas on the best approach to treatment so that your fertility can be preserved.

Good luck! Let us know how things are going.

  #6  
Unread 07-05-2004, 05:29 PM
Want to get pregnant but have high grade precncer

Thank you all so much!!! I have gotten more out of this site than out of thr DR. I am working on my quest for a Dr. that is not a quack tomorrow...I'll let you know how it works out.
KEMP
  #7  
Unread 07-05-2004, 09:37 PM
gyn oncologist

kemp,
I can understand what you are going through.

I hope for you to see a gynecologist oncologist -- or at a minimum a gynecologist.

Whatever decisions you make, please find a good doctor to guide you along....

  #8  
Unread 07-06-2004, 06:53 AM
Want to get pregnant but have high grade precncer

Hello ladies...me again. Well, I am still on the hunt for a Dr. I called my original Dr. about my results and of course, no return call. I am quite unnerved about how the results read (Leep/Cone) It says CIN III at the endocervical remargin. Extension into the endocervical glands, Chronic inflammation and fragments of cervical stroma at the endocervix with CIN III at the margin. I am still freaking out, but I will try not to have a total meltdown until I can see a real Dr. Any insight into these results would of course be most appreciated.
  #9  
Unread 07-06-2004, 09:18 AM
suggestion

kemp,
I would suggest that you send a private message to Denton56. She was a huge help to me and posts a fair bit on hystersisters -- but I haven't seen her post recently.

When I was first diagnosed, she gave me a web-site on cervical cancer diagnosis and staging etc. It was really helpful. She is also quite knowledgeable and could probably give you some good advice.

I went from "unable to exclude high grade abnormalities" on my pap to cancer when they did the colposcopy in a heartbeat (less than 1 month). From there they thought they'd be able to remove it all with a cone because it was so small -- to everyone's surprise and shock they found that the cancer had spread following the radical hysterectomy.

The moral of my story is that you need to get yourself a new doctor FAST and preferably a gynecologist oncologist.

If your doctor won't return your calls, then make an appointment to see him/her -- they can't ignore you when you are face-to-face.

Good luck, I'll be thinking about you -- and do PM Denton56-- she really is awesome and I'm sure wouldn't mind one bit.
  #10  
Unread 07-06-2004, 09:38 AM
Hi Kemp

Hi Kemp,

to you! It is totally understandable that you are freaking out, hearing that you have high-grade CIN can be very frightening. The good news is that your pathology report does not have a diagnosis of cancer; the slightly less good news is that it sounds as if the cone did not remove all of the pre-cancerous dysplasia. However, you still have treatment options that can preserve your fertility (another cone, trachelectomy for two examples).

I would recommend writing down all of your questions and concerns, and making an appointment with your doctor today. If you can't get through, call your insurance company and ask who their gyn/oncs are, and then you may be able to ask for a referral from your primary care doctor or else DEMAND one from your gyn.

Good luck to you and keep posting with your questions.

Beth
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