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Hi everyone.... been a while since I've posted anything. Hi everyone.... been a while since I've posted anything.

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Unread 07-12-2004, 11:08 AM
Hi everyone.... been a while since I've posted anything.

It's been crazy because I've been having tests, switched to a 2nd line of defense chemo and having needles in my arms every time I turn around.

Sounds like a lot of you have had similar situations and I'm so sorry!

I was taken off Carbo and Etoposide because my CA-125 markers were in the normal range even though my small cell uterine/lung cancer was busy cranking out new mets. I'm on an "angioplastic" type of chemo now that doesn't try to kill the cancer. It effects it's ability to reproduce. I had a CT scan a week ago when my ONC and I were looking at all my numbers. All looked well but my CA markers, 19-9, CEA, CA-125 where are trending upwards! The CT scan shows a visible reduction in all mets that formed on Carbo and Etoposide so we thing we're on the right track. Has anyone heard of cancer cells emitting proteins in the throes of being killed off or confused to death? This is something my ONC said could happen on the angioplastic medicine. He also said it would take a while to show up. I've only been on the new medicine 1 time per week. It does require me to give myself shots of Neupogen and a red blood cell booster (not Procrit) each week. The red blood and platelet medecine comes pre-packaged so no need to measure, etc. However the needle is 27 gage and I've been used to using 33.5! The larger the number the finer and smaller the needle. Imagine my shock trying to give myself that first shot of the Anespic (spelling?). I had to push harder and make sure I jabbed it in faster but it didn't hurt.

The doctor is talking about this being a good long-term solution until some of the new trials finish. I'm hoping that it keeps shrinking my mets into oblivion and I can get off chemo for a good long remission. It was quite significant how small the tumors shrunk within just 5 weeks of 1 time per week. It's a newer age chemo. Some of the small cell cancers can grow faster that the chemo can kill them so they require extra care in treating. I just can't believe that I had to get small cancer on top of just getting cancer!

Does anyone else here have small cell cancer? Just wondering what has worked in the past for you if you care to share it would be most welcome!

By the way, my hair is now fuzz and is trying to grow back. Others noticed it before I did!

On a note to Ellen, I will be getting my story out there too. We simply don't have even adequate cancer marker tests, physical exams and insurance doesn't pay for CT scans unless the MD says we need it. I think given the circumstances CT scans and ultrasounds are diagnostics we need at every physical. I've seen too many people, too young with cancer lately!

s to all,
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Unread 07-12-2004, 11:44 AM
Hi everyone.... been a while since I've posted anything.


It is great to hear from you. I am glad that the new chemo is taking care of the mets. I have never heard of that type of chemo. It must be incredibly hard to have and to treat two different type of cancers at once. I really admire all the research you have done and how pro active you have been in talking with your Drs, insisting they consider that you had two different cancers. How are you feeling on all that chemo. I know you are a very active person.
Unread 07-12-2004, 06:45 PM
Hi everyone.... been a while since I've posted anything.

s Linda

It sure sounds like you are keeping busy with treatments, blood draws, etc. Has your doctor ever mentioned having a port inserted? It certainly saves your veins.
Hopefully that new chemo will continue doing its job and may you soon get that dance with NED.
Keep up the great attitude!!

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Unread 07-12-2004, 07:01 PM
Hi everyone.... been a while since I've posted anything.

Hi (((Linda))), I am glad you posted again but so sorry that you have to battle two different cancers at once. It seems your doctors are on the right course to wipe out those nasty cells and hope you soon find yourself in remission. I trust you doctors will request the CT scans as often as necessary since they can help so much in any dx. I want to commend your pro-active approach as well as positive attitude and believe these can be so important in defeating the nasty beast. Please continue to let us know how you are doing. Will keep you in prayer.
s, peggiesue
Unread 07-12-2004, 07:42 PM
Hi everyone.... been a while since I've posted anything.

Dear Linda:

Sorry to hear of all the happenings. No doubt some days cannot be easy but I am so encouraged when I hear of your strength and taking an active part in your treatment - that is so important.

I agree with you regarding CT scans - believe it or not I'm going for my first one this Friday even though cancer was diagnosed and surgery done a CT scan was never suggested by the oncologist so like yourself I am becoming more proactive and asked my family physician about it and she heartily agreed that I should have one and booked an appointment right away.

Please continue to look after yourself and continue to let us know how things are going.

Sending you s
Unread 07-13-2004, 06:21 AM
Hi everyone.... been a while since I've posted anything.



I was so great tto hear from you. You sound like you are so strong as you are fighting. I have never had small cell so I am not able to answer any of the questions that you have about it.

I will pray that this round of treatment will blast those nasty "C" cells once and for all.

God Bless
Unread 07-13-2004, 07:45 AM
Hi everyone.... been a while since I've posted anything.

Great to see you on line again!

I hope your new treatments will accomplish their job and boot that cancer out on its uncharming little butt.

Funny you should mention that angioplastic chemo---we have a retreatant here this week whose husband had kidney cancer w/mets to the lung four years ago. At the time they described his lungs as "Swiss cheese." He went on some sort of angioplastic treatment that starved off the blood supply to the cancer sites, I believe...and he's now in great shape.

Your attitude is wonderful, and that's the best "treatment" of all.

Unread 07-13-2004, 08:55 AM
Hi everyone.... been a while since I've posted anything.

Although I do have not had the small cell cancer, I am hoping and praying that the new treatments will work their magic on the "invaders" *punch* !!! Keep us posted!!!

Unread 08-11-2004, 02:39 PM
Hi everyone.... been a while since I've posted anything.

Tenacity -
I was thinking about you today and wondering how things are going?
Unread 08-11-2004, 02:55 PM
Hi everyone.... been a while since I've posted anything.

I hope those markers continue to drop and you acheive a long long dance with NED. You are in my thoughts and prayers.

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