Endometrial stromal sarcoma | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > Cancer Concerns - GYN

HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Endometrial stromal sarcoma Endometrial stromal sarcoma

Thread Tools
Unread 07-13-2004, 11:07 AM
Endometrial stromal sarcoma

I had complete hysto on June 18, 2004. I had fibrods that had started growing after 12 years. Doing great but path report came back showing LOW GRADE
Sponsored Links
Unread 07-13-2004, 11:15 AM
Endometrial stromal sarcoma

Somehow my message got posted without all the info. I am to do a CAT scan right after 6 week checkup. If nothing shows then oncologist says we will do nothing since uterus is gone.

I have an appointment with another oncologist after the CAT scan for a second opinion.

This cancer is fairly rare so anyone with any infor on this would be most appreciated.

Thanks for your help.
Unread 07-13-2004, 12:12 PM
Endometrial stromal sarcoma

to Cancer Concerns

I am sorry that you are having to go thru this, but I thought that I would direct you to the recources:


You can also get to it thru clicking on recources at the top of the page.

I am sure that there will be many other women hop on board with more information, or even other recources about your particular cancer.

Best wishes and God Bless and Keep you
Sponsored Links
Unread 07-13-2004, 12:15 PM
Endometrial stromal sarcoma


What type of cancer? Did he give you a name?

Sending you (((hugs))) and support.

Blessings to you,


Unread 07-13-2004, 02:54 PM
Endometrial stromal sarcoma

Yes it is endometrial stromel sarcoma . It was in the uterus.
Unread 07-13-2004, 06:27 PM
Endometrial stromal sarcoma

Hi Gillsburg,

I was diagnosed with Low Grade ESS in March 2004. My doc said if you have to get cancer this is the best one to get. It is very slow growing. I had another surgery in May removing my cervix, ovaries and lymph nodes...did you have everything removed or just the uterus? I'm taking Megace (pregesterone) to keep the cancer under control....apparently I will be on that for the rest of my life. I really haven't had any side effects from it.

There is a Sarcoma Alliance website that you might find interesting....I think it's www.sarcomaalliance.org

There are also some Sarcoma support groups out on web but I find the Hyster Sister site to be the best for Cancer info and support in general.

Good luck and hang in there.
Unread 07-13-2004, 07:29 PM
Endometrial stromal sarcoma

I had everything removed. We had no idea of this was only having surgery because the fibrods had started growing. I am 51 so Dr. decided to take everything out. My lymph nodes were not check or taken out as the Dr. seemed as surprise as I was to find this.

I will know more after CAT scan and visit with 2nd oncologist but I really feel as if the lymph nodes should be removed or at least biopised. What do you think.

Thanks for all the web sites they are great.
Unread 07-14-2004, 11:08 AM
Endometrial stromal sarcoma

I would think your doc should try and take a couple of your lymph nodes and check them out. That is one of the places it spreads too. Maybe they are waiting to see what the CT Scan will find.

Let me know how it goes. Oh, and go with your gut feeling...if you want them to take a biopsy I would ask for one.
Unread 07-17-2004, 10:29 PM
Endometrial stromal sarcoma

Ladies their is a group on Yahoo for Ess and I found them to be very helpful with all the latest up dates. Just go to groups and look for ESS and ask to join. I found them to be very comforting along with all my hyster sisters also! First I was diagnoised with possible LMS are Ess . That is how I came about the Yahoo group. I don't have either. I have a rare kind of cancer called PEcoma which if it comes back is treated as a sarcoma.

TVH on March 26,04 due to a large which was a rare kind of cancer called PEcoma
Unread 07-18-2004, 11:57 AM
Endometrial stromal sarcoma

Thanks for your help. I went to Yahoo Groups and did a search for ESS and there were 443 site. I called myself going through all of them and couldn't find it. Can you give me any more info or should I go look again,

Thanks again for your help as this site has MOST HELPFUL.

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
29 Replies, Last Reply 09-01-2011, Started By tsahleen
4 Replies, Last Reply 10-09-2010, Started By Tigerlily18983
4 Replies, Last Reply 07-16-2010, Started By Mocush
5 Replies, Last Reply 01-27-2010, Started By muju
4 Replies, Last Reply 09-13-2008, Started By HMD45
15 Replies, Last Reply 11-21-2007, Started By countrysunshine
10 Replies, Last Reply 11-20-2007, Started By herebygrace
14 Replies, Last Reply 08-19-2006, Started By KBC
3 Replies, Last Reply 01-21-2006, Started By KatherineP
9 Replies, Last Reply 01-15-2006, Started By peash
1 Reply, Last Reply 03-15-2005, Started By bonny h
1 Reply, Last Reply 10-10-2003, Started By bebrave
5 Replies, Last Reply 06-18-2003, Started By lynneblack
4 Replies, Last Reply 06-16-2003, Started By Nancycarol
4 Replies, Last Reply 03-04-2003, Started By jewie
0 Reply, Started By lchurt
6 Replies, Last Reply 02-24-2003, Started By kathymp
11 Replies, Last Reply 01-22-2002, Started By sjl
3 Replies, Hysterectomy Recovery (post hysterectomy)
1 Reply, Preparing for Hysterectomy (pre hysterectomy)


Hysterectomy News

August 6,2020


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!