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Someone Plz Help- This Is Long Someone Plz Help- This Is Long

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  #1  
Unread 07-13-2004, 05:03 PM
Someone Plz Help- This Is Long

***sORRY THIS IS SO LONG BUT NEEDED TO GIVE A LITTLE BACKGROUND)

I had a hysterec in april 2002 due to endo- Doc left both ovaries said they were still in good shape-

I have done fine until about a month ago and had SEVERE pains and had to go to ER- after they sent me to have an ultrasound done they faxed my report to my gyno-

Well my gyno wanted me to wait 6-8 weeks to see if the LARGE cyst on my right ovary would rupture or take care of itself- then come back for an ultrasound-
I started hurting again last week- NOT as severe as the beginning but did decide to not only go to gyno of CHANGED GYNO because the one I had used was sooo far away.

I found one nerby and went to him today- I GUESS I am wanting someone to ease my mind- I AM SOOOO SCARED this could be cancer ....



I took all my paper work from my old gyno in with me- He glanced thru things and asked what problems i am having today. I explained about me having to go to the ER several weeks ago and them scheduling me an ultrasound which showed I had a HUGE cyst on my right ovary. I told him last week I started hurting again and wasnt sure if it is my ovary or what but the pain is sharp and in the right side....

He did the NICE EXAM they always do- then SIT DOWN and said.... (Remeber I dont know Doc terms so I could be incorrect in some things he said)
He said- Well- your have an abnormal pelvis (or something) and said in all honesty Im not SURE whats going on. He said during the examination he felt alot of HARD MASS areas above my vagina area and that MOST cyst when you push on them feel like a baloon with water in it so therefore it is somewhat flexible- He says mine is NOT.
He asked how long I have been hurting.... I told him severely a few weeks ago but then it stopped and then last Thursday or so I started having sharp knife like pains going down my right side into my vagina area.
He said he dont see how I could be having intercourse without sever PAIN and I told him I HAVENT had much due to me being mostly scared I WOULD start hurting agian.

He looked thru my report that was done from the last ultrasound and first was going to give me several options ONE being us wait several weeks and see what happens UNTIL he realized that report has already made it several weeks.

He then said he wants me to have another ultrasound done asap and for me to be ready for possible surgery.
I told him I had HOPED I could spend the rest of the summer with my son b4 he goes back to school but if its THAT necessary to schedule it so I can recover in a few days and get over it- THEN HE says.... Your not understanding- This will not be a surgery to where you recover within a few days
He said, first he DOES want to look at my results from tomorrow mornings ultrasound and me come back next Tuesday to see him so we can talk-

He said IF "HE" were a betting man that he would bet I will be headed for surgery with an abdominal incession (like I had during my hysterectomy ) He said sense he is not positive whats going on inside with the hard mass, ect He prefers doing it abdominally so he can take both ovaries out, look around and clean my pelvic wall, and then also see what these hard mases are.

He did say this is NOT an emergency surgery BUT it does need taken care of asap- UNLESS something changes after he sees the report sent to him tomorrow- He said its not likely that surgery will NOT have to be done so be preparing for it.

He did say he is NOT saying it IS cancer and is not really sure WHAT he is looking at right now.

Of course I would have felt more at ease if he had said- I KNOW ITS NOT CANCER- I wish I had questioned THAT more. SOOOO tomorrow I will go and have this done and then next Tuesday go back to him and find out what he thinks-

IF possible I plan to wait until my son is BACK in school b4 having anything done.

I mentioned to him that my old gyno said something about me possibily going back on the LUPRON shots for the cyst- He looked at me kinda funny and said- Lupron is NOT going to help this.

I also asked him could the hard mass possibly be due from the endometriosis coming back--- He ONLY said if it is endo we will clean your pelvic wall while in.

So as of right now I dont know what to think-
Once driving home I started wondering if the hard mass could be scare tissue and adhesions from all my prior surgeries....

I just pray its NOTHING serious- prob is I dont think he is for sure and want know until surgery is done.

CAN ANYONE TELL ME OTHER OPTIONS THIS CAN BE ?
PLEASE BE HONEST- IM GOING NUTS WORRYING
L.
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  #2  
Unread 07-13-2004, 05:42 PM
Someone Plz Help- This Is Long

to cancer concerns

I am sorry that you are having to go thru this and right befor school starts as well. I know that it is hard to wait, but until they get in there, there is no real way to tell what is going on.

Have you had any test like a CA-125, CT scan, and or MRI scan? Those are good indicators but not fool proof, CA 125 can be elevated for benign reasons (endometrosis just to name one), CT and MRI scans are fairly good but they also have their drawbacks on occation.

I wish you the best of luck and will pray that this is a benign mass, and that you get to have a fun filled summer with you ds.

God Bless
  #3  
Unread 07-13-2004, 05:47 PM
Someone Plz Help- This Is Long

THE NIGHT I WENT TO THE ER - WE ASSUMED AT FIRST IT WAS MY APPENDIX-

YES THEY DID DO A CT OR MRI- i think- THEY MADE EXRAYS AND THEN SENT ME TO LAY ON A TABLE THAT SENT ME THRU A TUNNEL- IS THAT A CT OR MRI?

ANYWAY THATS WHEN THEY TOLD ME I HAD A CYST HOWEVER THE ER DOC KNEW IT WAS FAIRLY BIG BUT NOT AS BIG UNTIL I HAD THE ULTRASOUND DONE LATER-

I REMEM READING SOMETHING ABOUT A CA-125 BUT NO I DONT THINK I HAVE HAD THAT- WHAT IS IT ?

THNX
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  #4  
Unread 07-13-2004, 05:52 PM
Someone Plz Help- This Is Long

Gagal
The unknown and waiting for test results are very hard. The CA 125 is a blood test that can sometimes indicate ovarian cancer. The Dr won't be certain if it is cancer until after surgery, although tests can be indicators. I hope you don't have cancer, but if cancer is suspected please make sure the surgery is done by a gyn?onc surgeon. These surgeons who specialize in cancer are the only ones trained to give you the best possible outcome. Please keep in touch
  #5  
Unread 07-13-2004, 05:52 PM
Welcome to Cancer Concerns

The test in the ER was likely a CT scan. That plus the transvaginal ultrasound and a CA125 can tell where they're going, but only surgery can tell for sure. When you discuss the results of the new ultrasound, ask if he feels there is possible cancer. If so, you need to go to a gynecologic oncologist, because when cancer is suspected, they are the absolute experts. It's a hard question to ask, but it's an important one.
  #6  
Unread 07-13-2004, 08:31 PM
Re: Welcome to Cancer Concerns

  Quote:
Originally posted by margaret321
The test in the ER was likely a CT scan. That plus the transvaginal ultrasound and a CA125 can tell where they're going, but only surgery can tell for sure. When you discuss the results of the new ultrasound, ask if he feels there is possible cancer. If so, you need to go to a gynecologic oncologist, because when cancer is suspected, they are the absolute experts. It's a hard question to ask, but it's an important one.

ok I need an opinion from someone-
if he cant tell FOR SURE if its cancer until surgery- does my reg gyno do the surgery and then later send me to ANOTHER gyn oncologist?

What if he says he dont THINK it is but not for sure UNTIL he goes in?

I know I have alot of questions I just want to make sure I do the correct thing in the correct order

Im just uncertain what order all this goes in.....
I didnt know if he thought there was a possibility if he would send me on the the specialist RIGHT THEN himself or if I had to suggest- and what should I do if he says well I dont think it is but there is a possibility.
  #7  
Unread 07-13-2004, 08:57 PM
Someone Plz Help- This Is Long

s Gagal

You need to have a ca 125 checked.Itcould possibly indicate a higher chance of ovarian cancer.
The problem with ovarian cancer is that it takes actual surgery to get a definite diagnosis.
If ovarian cancer is even slightly suspected, it is imperative that you have the surgery done by a gyn oncology surgeon. They are the only experts to perform this type of surgery.
You do NOT want to have the initial surgery done by an ob/gyn and then sent to a gyn onc doc.
Hopefully this mass will be benign.
Best wishes and stay in touch.

karenann
  #8  
Unread 07-14-2004, 05:03 AM
Someone Plz Help- This Is Long

  Quote:
Originally posted by karenann
s Gagal

You need to have a ca 125 checked.Itcould possibly indicate a higher chance of ovarian cancer.
The problem with ovarian cancer is that it takes actual surgery to get a definite diagnosis.
If ovarian cancer is even slightly suspected, it is imperative that you have the surgery done by a gyn oncology surgeon. They are the only experts to perform this type of surgery.
You do NOT want to have the initial surgery done by an ob/gyn and then sent to a gyn onc doc.
Hopefully this mass will be benign.
Best wishes and stay in touch.

karenann
-------------------------------------------------------------

Now a few weeks ago when I went to the ER they did blood work- would that not have showed up anything that would have sent up red flags to them?

just curious
Thnx
  #9  
Unread 07-14-2004, 05:18 AM
Someone Plz Help- This Is Long

A ca125 was probably not drawn at that time.
ox karen
  #10  
Unread 07-14-2004, 10:40 AM
Someone Plz Help- This Is Long

GAGAL -

If I real this right -

--you had pelvic pain
--they found a hard something in your pelvis - a cyst is usually squishy
--you had some imaging test that indicated the thing was bigger than they thought

Unfortunately, there is no way to know what is going on until you get inside, and if it is cancer - there is only one kind of doc you want picking at your insides - and that is a gyn onc.

I'll be a bit more directive than my ((sisters)).

Get the name of a gyn onc in your area. Say you want an appointment to evaluate a pelvic mass.

Gather all the test and image data - get the reports and the actual scans - and bring the m with you to your appointment.


The gyn onc will probably want some other tests done - includinga ca-125 blood test. If it turns out not to be ovarian, s/he can point you to another surgeon.

Dorrie
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