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To those who have arthritic pain - Does your pain defer in different articulations? To those who have arthritic pain - Does your pain defer in different articulations?

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  #1  
Unread 07-17-2004, 10:06 AM
To those who have arthritic pain - Does your pain defer in different articulations?

Hi, fellow Road Dwellers

As I'm dealing with minor flares of arthritic pain, thanks to the extreme humidity we've been dealing with these days , and as I'm still trying to figure out what is causing the pain, I'm wondering if others have noticed that, depending on which articulation is involved, the pain is different Can these pains all be caused by arthritic pain??

Let me try to describe the pains:
  • When it's my ankles and wrists that are involved, the pain is just like a big, deep bruising pain. I can pinpoint it and heet will, almost immediately, relieve the pain.
  • When it's my knees that are involved, the pain is more like muscle pain, except that it's deeper and it's like an extreme weekness. It's also accompanied by a whole lot stiffness. If I ignore this pain, it will become worse and worse. Of all the symptoms I'm dealing with, this one is, by far, the worse.
  • When it's my right hip and lower back that are involved, it is a very strange pain: the pain only occurs at times, when I do a certain movement. It is very sudden and very sharp. When it's my hip, I'll feel like I'll fall if I put my weight on it... or I can't bend. However, once it's over, it's over: it doesn't linger at all, and there's no stiffness involved.
  • When it's in my finger and hands, I think that's when I'm having the most typical arthritic pain symptoms: it's also like a bruise, but at the surface of the skin: if I rub the area, it both soothes the pain and causes the skin the hurt. This one, while more frequent, is the least troublesome of my pain.

Has anybody else noticed that their pain is different, depending on what hurts? Could all these pains be caused by the same condition, arthritis? My doctors seem to think so... though the verdict is still not known where my hip/lower back is concerned.

BTW: currently, the flare is only minor and easily managed by Advil, so I consider myself lucky.. but I do know that the pain can get debilitating, at times, adn seriously affect both my mobility and quality of life.
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  #2  
Unread 07-17-2004, 11:30 PM
To those who have arthritic pain - Does your pain defer in different articulations?

Dany,
Have you been diagnosed with arthritis? Your pains sound
like different afflictions
From what my doc said, if the pain feels like
it's on the exterior of the bone (hip bone in my case)
it's bursitis --comes and goes. He said this isn't so bad(!)Does this sound like you?
Also, did you develop all of these pains following the hyst?
I wonder if the meds (toxins?) pumped in during surgery don't
affect bones and joints. for what this is worth, I doc put me on a
detox cleanse for liver, lymph nodes and kidneys--last April. During the cleanse, the thumb/wrist pain left completely.
However, after beginning bio-identical hormones, it returned,
as did a catching in the knuckles. I'm calling for another cleanse!
Hope you find some remedy, hon. Sounds like you're dealing with
a lot.
best,
Leigh
  #3  
Unread 07-18-2004, 05:24 PM
To those who have arthritic pain - Does your pain defer in different articulations?

Thanks for the feedback (((Leigh))) and so sorry you're having a hard time

To answer your question: no, I haven't been diagnosed with arthritis. A few years ago, when I had that first, mega flare up, doctors ran a gamut of tests and they all were sure it was arthritis. However, as is usually the case with me, all the tests came back negative. Because the symptoms were consistent with arthritis, I was dubbed as having arthritic pain

A Rhumatologist explained that, most likely, I am dealing with early stages of arthritis, which would explain why the tests all came back negative.

BTW, while all the pains started after my hyst, it wasn't immediately afterwards: they started 18 months after my hyst, at a time when I was going through a lot of stress and when the weather was particularly awful (very humid and very, very hot).

From all that I've read on arthritis, it is an auto immune disorder. Auto Immune disorders are known to flare after a trauma and a surgery is a trauma to the body, especially one as major as a hyst. That would explain why so many women are dealing with arthritis, fibromyalgia, Lupus and other Auto Immune Disorders since their hyst.

Another trigger for Auto Immune Disorders is stress. And the reasonning, when I had that mega flare up, was that the stress had triggered the arthritis.

Oh, and I know that I'm not dealing with bursitis, because I was dealing with that before my hyst and the pain was a whole lot different: It didn't have the same impact as the pain I'm now dealing with.

I do know that some of my symptoms are not consistent with typical arthritis. For one thing, I have very little swelling, except in the knee. And the knee is most likely osteoarthritis, since I had arthroscopic surgery in that knee, which would, most likely, have weakened that joint.

I think that the most frustrating part in all of this is not having any answers... just questions. Somedays, I even come to believe that it's all in my head
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  #4  
Unread 07-19-2004, 08:21 AM
To those who have arthritic pain - Does your pain defer in different articulations?

Speaking of fibromyalgia.....is it possible that some of your symptoms could be related to it? Has your rheumy ever discussed it with you? (I probably should know the answer to those questions, but for some reason, , I can't recall.)

Before my hyst, I was dx with FMS, but since then (different doc) it has be termed as "arthritic pain in the absence of positive test results." But then again, my doc is an idiot so, I don't know what to think. I do know that my pain "travels" and feels different in different places...some muscular, some bone, some I can't quite figure out.

Good luck in finding an answer and relief from this pain! Keep us posted.
s!!!
  #5  
Unread 07-19-2004, 05:32 PM
To those who have arthritic pain - Does your pain defer in different articulations?

((((Bill))))) Sounds like both you and I are in the same boat: Basically undiagnosed pain Furthermore, your pain sounds very similar to mine

I did mention the possibility of FMS but the Rheumy I saw, while I liked him, didn't have much to offer as far as answers. I didn't help that, on that day, I wasn't having any pain for the first time in 5 months I have since been told that this doctor is "a jerk".

I am seeing my GP in August and she is good. So I will ask about the possibility of FMS: my symptoms do sound similar to FMS symptoms, so it could be FMS I'm dealing with
  #6  
Unread 07-19-2004, 11:17 PM
To those who have arthritic pain - Does your pain defer in different articulations?

Dany,
you enlightened me re: precursors to auto immune diseases---surgery and stress--also didn't know arthritis was
in the auto immune category.
Might you consider an alternative medicine doc? Just my experience having the pain disappear on the detox cleanse.
Sometimes wonder if it isn't the drugs used during surgery that are causing so many to have pain problems. Surgery is like
being poisoned for me- still feel like my internal organs swell
at times---I have a long time friend who has weird pain problems
and she's about 5 years post hyst...eyes,.osteo, a bone that started to grow out on the side of her foot, and now navicular problems.
Know you'll post re: your doctor
visit in August. Hope it's positive...You look way too young in your pic to be suffering so much. take care. Praying for you restored health!
Leigh
  #7  
Unread 07-20-2004, 07:57 AM
To those who have arthritic pain - Does your pain defer in different articulations?

(((Dany)))

I could write a book on jerk doctors, so I totally understand where you are coming from on that.

It was a Rheumy that I saw 2 years ago that suggested FMS and referred me to a Physiatrist (sp?) for treatment. Unfortunately, I got into dealing with "female issues" and the whole hyst thing and never got around seeing the Phys. Then I switched GPs and somehow ended up back at square one.

At this point, I realize that I'm dealing with 2 separate issues -- femal issues (STILL) and FMS issues. I am currently on the hunt for a new GP and am going to try and get in to see what a Physiatrist has to offer as well.

Please keep me posted on how you are coming along on your journey. I do hope you find answers!
  #8  
Unread 07-20-2004, 07:23 PM
To those who have arthritic pain - Does your pain defer in different articulations?

((Leigh))) Thanks for the pointers on trying alternative medicine: I may, eventually, go that way but have been really weary of going that way... just a thing that happened and turned out bad for my DS... It's just that I haven't had much luck with such things a detox (can't even stick to a well balanced diet for longer than a few days, these days ).

I do hope that you find something that helps with your pains and symptoms.

(((Bills)))) I knew you would know where I was coming from with my doctor woes While I'll keep you posted on my journey, I'll also be looking for your updates. Hopefully that Physiatrist, if you can get in to see him, will be the answer for you.
  #9  
Unread 07-30-2004, 04:14 PM
To those who have arthritic pain - Does your pain defer in different articulations?

  Quote:
Originally posted by Dany
Thanks for the feedback (((Leigh))) and so sorry you're having a hard time

To answer your question: no, I haven't been diagnosed with arthritis. A few years ago, when I had that first, mega flare up, doctors ran a gamut of tests and they all were sure it was arthritis. However, as is usually the case with me, all the tests came back negative. Because the symptoms were consistent with arthritis, I was dubbed as having arthritic pain

A Rhumatologist explained that, most likely, I am dealing with early stages of arthritis, which would explain why the tests all came back negative.

BTW, while all the pains started after my hyst, it wasn't immediately afterwards: they started 18 months after my hyst, at a time when I was going through a lot of stress and when the weather was particularly awful (very humid and very, very hot).

From all that I've read on arthritis, it is an auto immune disorder. Auto Immune disorders are known to flare after a trauma and a surgery is a trauma to the body, especially one as major as a hyst. That would explain why so many women are dealing with arthritis, fibromyalgia, Lupus and other Auto Immune Disorders since their hyst.

Another trigger for Auto Immune Disorders is stress. And the reasonning, when I had that mega flare up, was that the stress had triggered the arthritis.

Oh, and I know that I'm not dealing with bursitis, because I was dealing with that before my hyst and the pain was a whole lot different: It didn't have the same impact as the pain I'm now dealing with.

I do know that some of my symptoms are not consistent with typical arthritis. For one thing, I have very little swelling, except in the knee. And the knee is most likely osteoarthritis, since I had arthroscopic surgery in that knee, which would, most likely, have weakened that joint.

I think that the most frustrating part in all of this is not having any answers... just questions. Somedays, I even come to believe that it's all in my head
Hi Dany,
Im really sorry about all the pain and aggrivation you are going though and hope you get some relief soon. I just needed to respond to you because I have a lot of the same symptoms you have discribed, including the bursitis but also stuff like strange pins and needles sensations and sometimes numbing. I do have hashimotes thyroiditis, which is autoimmune, but its under control with meds right now, but other then that, like you, all other tests are negative. So far, all they can come up with is *Chronic Myofascial Pain * (i.e. Fibro)

What I wanted to tell you about though is this, the last Rheumy I saw, suggested I take 0.5-10 mg of Flexerel (muscle relaxant) before bed every night. Now I dont know if its just coincidence because I happen to be out of my latest *flares*, or what, but I think its really helping ...especially with my morning stiffness. I just thought, that maybe you can consider this and who knows? maybe it can help you

I have also learned that many women with adeno, endo, and/or fibroids have a lot of the same pain symptoms in the low back, hip and thigh. Some of them got a lot of relief with the hystos, some didnt. As has been stated before on these forums, theres got to be an autoimmune connection with all of these diseases and disorders, including fibro and chronic fatigue.

We really need an *Autoimmune Specialist*, a doc that will specialize in the whole shah-bang. We have a rheumy for arthritis, a neuro for ms, etc. etc. We need a doc that can specialize in all of these things and make the connections and recognize new and different autoimmune symptoms so that when women who suffer these diseases come for help, we're not thrown from one specialist to another, having one test after another, with the end result being us walking around wondering if its all in our heads.

Anyway, I really hope the best for you and hope maybe my suggestion can help you.

Kali
  #10  
Unread 07-30-2004, 04:28 PM
To those who have arthritic pain - Does your pain defer in different articulations?

Hi Dany,
I've been reading these posts with interest. I have alot of the same symptoms as yourself and the other ladies. In fact my hands are so sore today that my veins pop out and the aching is almost like a burning pain. I saw my rheumotoligist 2 weeks ago. She said that my blood work showed an elevated inflammatory factor. I couldn't pin her down to a straight answer to what the heck it was. She's sending me for blood cultures to try and figure out what's going on. I had 1 dr tell me it was fibro, another say no it wasn't(she said it wouldn't show in the blood). All I know is that I found the pain to be worse since I had the surgery. I'm sure it's the trauma our bodies went through. I found that when I lost my weight, my pain actually increased. My family dr was surprised, she said that it could be that my joints were adjusting??? Anyway, keep perservering...don't let the drs brush you off, you deserve an answer!
Keep well,
Rose
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