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Symptoms of Cancer Symptoms of Cancer

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Unread 07-22-2004, 12:00 PM
Symptoms of Cancer

I have ALL the symptoms of ovarian cancer but was diagnosed with IBS many years ago. I have been going from dr to dr this past year trying to find out if there is any cancer.

My mother and her oldest sister both died of colon cancer, so I do stay on top of my gastro issues, but, as you can see, cancer is a very real worry for me.

My last gyn did an ultrasound to check ovaries and (I was on my cycle at that time) said that they looked good. She also indicated that looks are deceiving. I, supposedly have adenomyosis, two small fibroids, heavy cycles which seem to be getting better, bleeding after sex (sometimes), uncomfortable sex, indigestion, extreme bloatedness and gas.

I would be interested in knowing how your cancers were detected and if you had to press your drs to do further testing. And, how many of you had your hyster without knowing you had cancer?

I am scheduled for total ab hyster on August 17 because I'm afraid NOT to have it. But, if there is any cancer, I would like to know prior to them during surgery so that I might have an oncologist.

Help! Any input you give will be appreciated! I'm afraid to have the surgery and afraid NOT to have the surgery.
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Unread 07-22-2004, 02:03 PM
Symptoms of Cancer

to Cancer Concerns

I have not had Ovarian cancer but I did have a scare before I had my hyst. Before I had my hyst I had a ultrasound (regular and trans vaginal) which showed an abnormal mass, the gyn then ordered a CA-125 test which was elevated (235 normal is 0 - 35). And that is what prompted me to have my hyst. I ended up not having OVCA but I did have cervical cancer ( found out after the hyst).

I am sure that there are other gals that have OVCA will be on board to let you know the true answers to your questions.

Althought it may not be an accurate test in detecting OVCA has your doctor done a CA-125?

Are you having your hyst due to the adenomyosis and fibroids?

I know that you said that you have been on top of your gastro issues, but have you had a colonoscopy? I would ask your doctor about it being that your sister and mother both had colon cancer.

I wish you the best of luck in finding the answers to your questions.

God Bless
Unread 07-22-2004, 02:08 PM
Symptoms of Cancer


You need a gyn/onc for this type of surgery! Please get one.

One test for OVCA is the CA 125 test. It certainly can indicate if a problem; also ask the gyn/onc, that you must get, if you should get a CAT scan.

Ovarian cancer is known as the cancer that 'whispers', and, in my case, I only had what I now know was a symptom. This was the bloated abdomen, which came and went, for a day or so, about 3 times a year for a couple of years. Looking back on that, it was a strange kind of swelling, but I would always put it down to overindulgence at dinner the night before.

Finally, in August 2002, it did not disappear, as it had always done before. I did not know that I had cancer of any kind, as I felt like quite a healthy woman. A month later, I was operated on for what turned out to be a metastasis of OVCA, but the doctors then had not been able to identify it - they had not ruled out pancreatic or colonic cancer! However, they kept playing detective, and, soon after this op., - and unknown to me, I was also given a CA 125 test which indicated ovarian cancer. I then went to another country. I had no idea about the CA 125 test for about 5 months. Then, ascites - the swelling came back. I got the most fantastic gyn/onc. Within 2 weeks, I had my SAH/BSO, for OVCA.

Let us know that you have got a gyn/onc. As my hyster sisters say here, they truly are the specialists for us.

I wish you all the best.

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Unread 07-22-2004, 02:09 PM
Symptoms of Cancer

Thanks known and thanks to the wonderful people on this site, I have read up on endometrial cancer and find that family history of colon cancer might be a prerequisite for endometrial cancer.

I certainly have had my colonoscopies on schedule. I'm going to check to see if there is any test that can be done for endo cancer. I did have a CA125 and my level wa 11.1.
Unread 07-22-2004, 02:14 PM
Symptoms of Cancer

wild rose you are so blessed! Which dr did your initial surgery? I have also been told that my uterus is the size of a 4 month fetus. I wonder if that's an indication of anything?
Unread 07-22-2004, 02:24 PM
Symptoms of Cancer

Hi Patty,

Hopefully this whole thing is nothing to worry about and I am glad to hear that your ca125 number was within normal limits.

However, did you ever have an abdominal pelvic cat scan???

Unread 07-22-2004, 02:32 PM
my two cents

Sounds like you are struggling with a lot right now.

I don't have the same type of cancer but my two Aunts have....which brings me to ask you if they did an intravaginal ultrasound? My first Aunt's regular ultrasound showed nothing but the intravaginal one was the one that detected the ovarian cancer. How about having a CA125?

Also, good to hear that you are still seeking the answers to your gyn. problems -- had my second Aunt not just accepted the first doctor's opinion (he said it was all in her head) then perhaps she would still be with us today.

Good thinking as well to find out all that you can before you go in for surgery -- knowledge is power.

Having said all of that though, try your best not to let the fears of having cancer take away your quality of life right now. While listening to your body and being an advocate for yourself are very very important; accepting the diagnosis that you are cancer free is just as important. Will having a hysterectomy as a precaution really give you peace? -- only you can decide whether the risks and long-term issues of a hysterectomy are worthwhile. It's your body and you have to live in it.

Please go for your second and third opinions because they are a necessary step in getting to the bottom of what is going on in your body but if all doctors agree that you are cancer free then try to find peace with their medical opinions. After all, stress itself can be a major contributing cause to some other serious medical conditions.

I would give almost anything to have a doctor tell me that I am cancer free but as it stands there are no tests to pronounce me "cured" -- only time will tell. So with that in mind, I have to keep living and move forward because the present is now and I don't want to waste it away worrying about the unknown possibilites of the future.

This is just my opinion though. Good luck with everthing and please seek more opinions before you decide anything.
Unread 07-22-2004, 02:38 PM
Hi Patty,

I had my TAH/BSO January 14th -I'm 41 and never thought I would have ovarian cancer. No one in my family has breast or ovarian cancer. I had a tubal ligation, normal peroiods, always healthy, ate right, evercised, no alcohol, no smoking. I started having lowe back pains -hard to explain because it wasn't the back actually but on the insides. I had it for several months,on and off. At first I put it off to a sprained muscle. Everything else was fine - I had lost some weight but I put that off to the exercise. I did see two separate doctors since the pain persisted and my husband pushed me to see a doctor -I would never have gone otherwise. Although the last month -November 2003 it did get worse. I couldn't have any bowel movements without pain -I would literally cry on the bowl, that's when I went to the docs. One told me I had a bladder infection -took 2 weeks of antibiotics-didn't help. Another one told me it was a muscle spasm and I needed a message! One day I started bledding in the kitchen, blodd slowly seeped down my legs while I was in my nightgown preparing braekfast. I had no pain -I thought it was my period -although I never had a period like that! I bled for 1 day and then it stopped-the pain persisted so I decided to see my gyno since the pain was in the lower body. When I told him my symptons and he made me cry with his exam -he immediately sent me for an ultrasound (vaginal) and a blood test CA125 =this was December 22nd. I knew he suspected something because you can't get these exams that quickly at Xmas time. He called me the same day to say "There was nothing more he could do for me" and he needed my permission to fax the results to the top gyno/onc he knew before he left for Xmas vacation. I agreed and got operated Jan 14th. My oncologsit never suspected it was cancer -he thought it would be endo or a fibroid. he also was surprised at surgery. I was stage 2B. I am lucky in the sense that the back ache MADE me go to the doctor 0had I waited I could have been stage 3-4. DEMAND that you have these test, CA125 and vaginal ultrasound- find the doctor that will listen. Please let me know what happens. Good Luck!
Unread 07-22-2004, 03:04 PM
Symptoms of Cancer

maxime, that's what frightens me ---- if I'm NOT persistent, then drs won't do any more than is absolutely necessary. I have an HMO insurance also and they probably look at that as well.

You are absolutely one of the lucky ones --- that you had the back pain and bleeding. Ovarian cancer can be a silent killer! I have had some lower unexplained back pain and was sent to a chiropractor and it got better. But I do take all pain seriously because I know my body.

Before going into this surgery I do plan to have as much info as possible so that I get the best possible care.
Unread 07-22-2004, 03:08 PM
Symptoms of Cancer

connie, I'm sorry to hear that you are struggling with cancer, but I'm glad to know that you have a positive attitude in taking one day at a time!!! That will get you far!

I have scheduled another appt with a different dr who will do an intravaginal ultrasound on Monday and I'll see what he says. CA 125 registered normal.

Thanks Rosalie for your input.

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