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I'm scared! Need support! I'm scared! Need support!

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Unread 07-26-2004, 10:06 PM
I'm scared! Need support!

A urologist did a CT scan of my pelvis and abdomen. He told me today that on his end all is well, however not only did it pick up my uterine fibroids and polyps, which I knew about, but also found a ovarian cyst on my left ovary. This is new! I just had a sono three weeks ago and my ovaries were fine. I have scheduled a hystorectomy for 8/19/04, and planned to leave my ovaries. I changed my mind about that in a hurry! I would rather deal with hormonal issues than worry about having ovarian cancer.

When I talked to my ob-gyn she suggested that I come in this week for another sono. It is unlikely a functional cyst since I am on birth control pills. It isn't an endomitreal cyst becuase I don't have endometriosis. The only other kind is a neoplastic (new, abnormal growth) and those can be benign or malignant. Unfortunatley, the odds seem to favor the neoplastic cyst. I have a very strong history of breast caner in my family and know that it is genetically linked to ovarian cancer.

My sister-in-law found out about three months ago that she had a benign ovarian cyst and a month later they found her pelvis permeated with ovarian cancer. She died two months later (4 weeks ago). I have been having a lot of hormone imbalance problems. I recently found out I have been estrogen dominant for I don't know how long. I am scared to death! I go in for my sono on Thurs., 7/29 at 10:30 a.m. The doctor said if it looks at all suspicious, she will move up my surgery date. I would appreciate what ever feedback or support any of you can offer. I am so grateful for this website. Thank you!
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Unread 07-27-2004, 12:38 AM
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No one can tell if this is cancerous or benign until after the surgery when the pathology is done. Most cysts are benign. However, if after the next ultrasound (and a CA125?) there is still concern, ask for a referral to a gynecologic oncologist. They're the experts on cancer, if it's there. You've had the CT and ultrasound and another ultrasound cming, so they'll have an idea of what they're looking at. I'm sorry to read about your siser in law's diagnosis and death and I know this is weighing on your mind. One step at a time for you, one step at a time.
Unread 07-27-2004, 10:20 AM
I'm scared! Need support!

I would suggest a consult with a gyn oncologist --

--if it is not cancer - you could ask the gyn onc's advice on whether the particular pattern of cancers in your family would suggest removing your ovaries to be prudent. More people think they have a genetic susceptibility than actually do

--if it is cancer you really do want the gyn onc to be doing the surgery.

Your gyn really should have a ca-125 drawn if there is any concern that this is cancer.

Keep us posted

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Unread 07-27-2004, 10:59 AM
I'm scared! Need support!

Dear (((Jan))) Unfortunately only surgery will tell whether the cyst is benign or malignant. Although the sonogram did not detect the cyst, CT scan sometimes finds things other test do not, so it is possible the cyst is not that fast forming as you think. I am sorry re your sister-in-law and I know that is having a strong effect on you in this situation. Please consider seeing a gyn/oncologist and one, at least, should be present at your surgery if there is any chance you may have cancer. Please let us know how you are doing.
s, peggiesue
Unread 07-27-2004, 02:00 PM
I'm scared! Need support!

Dear Jan,

If there is any possibility that it could be cancer...please consult a gyn/onc!!! They are specially trained in this field and would be able to give you answers to your questions.

My prayers are that it is a cyst.

Unread 07-27-2004, 03:28 PM
I'm scared! Need support!

I agree with everyone else. If your gyn thinks there is ANY chance you have ovarian cancer, no matter how slim, make an appointment with a gyn/oncologist.

Did your doctor do a CA125 blood test?
If that number was low, that's reassuring.

Keep us posted. Try to get some sleep. This is the WORST part, the waiting.

Unread 07-27-2004, 08:37 PM
I'm scared! Need support!

I'm so sorry for what you are going through, Jan! I was diagnosed w/Ovarian Cancer just 6 weeks ago...and I know how this 'thing' ..especially the waiting and NOT KNOWING what's going on....plays with one's head...but please, Hang in there....there is a chance that it is benign....and I will pray for just that.
Stay positive! You know what they say about the power of positive thinking!
I agree with what everyone else said..if there's a chance that it's malignant, I hope you will/have seen a gynocological oncologist...I know I felt so much more at ease knowing that I was in good hands in case my tumor ended up being malignant.
I'm so sorry to hear about your sister-in-law's diagnosis and passing...and I hope you don't have Ovarian Cancer.
But , If yours happens to be malignant, again, hang in there...There are Ovarian Cancer survivors out there in the world. You certainly can be one of them!
Hang in there, and stay calm. We're here for you
Unread 07-29-2004, 02:46 PM
Good News!

Thank you all for your kind words and guidance. It means alot to have your support.

I went for my sono this morning and sure enough there was a 3 cm cyst on my left ovary. My doctors said it looked very benign and not to worry about it. She thinks it is functional even though they are unlikely on the pill. She says it happens occassionally esp. in over weight women, which I am.

We agreed to do a CA 125 and see how that looks, but as it stands we are doing a full hystorectomy (ovaries and all) on Thursday, 8/19. An incision will be neccessary. They will send it all to the lab to be checked.

I am enourmously relieved. I have a very scary history in my family with cancer, and this sort of thing just freaks me out. Plus I've had all kinds of health problems that have been hormone related (estrogen dominance) in the last six months, so I figured I was at pretty high risk for cancer too. Anyway, I am glad this day is about over and I have some positive news.

I am in awe of you all. You are walking a hard walk, and doing it with grace. I wish you all the very best and you have my prayers.
Unread 07-29-2004, 03:21 PM
I'm scared! Need support!

Dear Janice,

I'm relieved to hear your news! (but I'm sure not as relieved as you are to be able to share it with us!)
I'm real glad that things look good! I'll pray for a uneventful surgery and a speedy recovery for you!

Unread 07-31-2004, 06:47 PM
I'm scared! Need support!


I am so glad that your cyst may be functional. I have a tah/bso on July 6th with both ovaries removed, both ovaries had cyst and one ovary was larger then my UTERUS!

Keep a positive thought that is so important. I will keep you in my prays, august 18th comes soon enough


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