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Low malignancy Potential Low malignancy Potential

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Unread 12-17-2000, 08:09 AM
Low malignancy Potential

Originally posted by maggiew
Aint that the truth. I was beginning to worry about the fatigue until I found this message board, and no longer worry that I am healing slowly. Pain disappeared by the end of week 3 and I assumed that I would start feeling normal with the end of pain.

Now I am just upset with the oncologist for not even giving me and my ob/gyn a clue as to what kind of testing should be done with those 3 pelvic exams a year he said I should have for the rest of my life! I will not be allowed to skip any of them, my doc and his office manager/wife are my husband and my best friends, and I can gauranted that they will stay on top of it if I don't. Since I no longer have a cervix, Doc said that I will only need a pap smear once a year, but a pelvic at the suggested intervals.

He also wants to do follow up ca125 tests, but is not sure how often these should be done, and I want the ultrasounds to ease my mind. We were all shocked and frightened by the one that found the ovarian tumors (yes, the doc was scared, and badgered me about not telling him of symptoms, of which there were none. Yes, I felt bloating, and changes in BMs, as well as bladder changes (heavy stress incontinence after periods, which worsened over time) but having irritable bowel syndrome I just assumed that this was because of that, seemed to fall in line with those symptoms!

I do know that I am frightened about a recurrance, and want to have any and all necessary tests, I just don't know what those tests should be. I talked to a woman I found on an australian OVCA board, and she said she haas the ca125 as well as ultrasound every 4 months since her hysterectomy and diagnosis.

I will do whatever it takes to be healthy for however long God decides to allow me my health.

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