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Unread 08-02-2004, 04:22 PM

Hello ladies,
Well got some disturbing news today; results of the CA-125 was 92 which is high from what i understand of it all; so it looks like i'll be in the OR sooner than later.
I've seen posts with ladies with levels in the thousands; should I be overly concerned? I know there's nothing i can do to change whatever is going on in there and I'm trying not to be over anxious but i'm just curious as to what some of the levels were in you ladies that were, unfortunately, diagnosed with ovarian cancer.
I'm hoping all of this abnormal crap is from the Tamoxifen I'm on from my breast cancer 3 1/2 years - has anyone heard of an elevated level with Tamoxifen??? Has anyone on here had an elevated level and then had a negative pathology come back?
Thanks again for all your responses,
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Unread 08-02-2004, 04:43 PM

Hi Gloria

My CA125 before surgery was 2067 !!!!!!

After surgery was 521. Just had my first chemo 12 days ago, so will get my CA125 before my 2nd treatment when I met with the oncologist.

My gyn/onc is very optimistic about my prognosis. She emphasizes that the CA125 is a number only. In my case we are lookinig for dramatic improvement after the 1st chemo.

Please keep us posted how you are doing......i can't offer any help on your Tamoxifen wishes to you !!
Unread 08-02-2004, 05:30 PM

I've been told that the CA125 is very unreliable.

Depends on which of my doctor's phone calls I believe, but I was told my count was 11 and then 5 days later she called back to say a mistake was made and my actual count was 1400. Big difference.

I did have TAH/BSO and ALL of my pathology reports came back BENIGN!!!!!!!!!!!!!
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Unread 08-02-2004, 06:20 PM
Hi Gloria

The norm is considered 35 or under, so that is elevated. However, cancer can't be confirmed until surgery. I don't know about Tamoxifen affecting CA125 but things such as infection and endometriosis can cause a rise. Are you having a gynecologic oncologist do your surgery? If there's any cancer concern, then the gyn/onc is the way to go. I had a CA125 last month over 400 and was feeling fine and have a friend up around there feling fine too. Mine was 160 before surgery. I felt awful then. Yet a woman in Israel went to London with a CA125 of 21,000 and did well. That gyn/onc should be in place for you.
Unread 08-02-2004, 07:04 PM

Thanks for the responses so far ladies. A gyn/onc will be doing the surgery. Margaret, you said you felt awful when your counts were high - how do u mean awful - what were u feeling? The only thing i'm feeling now is anxiety!!! Otherwise, I feel well; except for today, no appetite and some nausea but that's def stress.
Thanks again ladies,

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