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Can anyone relate? Can anyone relate?

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Unread 08-07-2004, 09:31 PM
Can anyone relate?

Hi HysterSisters:

It's been a little while since I've posted anything but I'm wanting to know if I'm being paranoid or if anyone else has had this happen to them.

April 27th was the date of my second surgery TAH/BSO 19 lymph nodes removed. (first surgery was in Feb. TVH endo cervical adenocarcinoma 1a). I feel I should not be having any pain now since I'm so far out post op. My pain is to the left of my bellybutton and a little below my belly button (only on the left side) along my vertical incison scar. When I wake up in the morning it doesn't really bother me but as it gets mid day or evening I can really feel it. When I bend over to pick up something off of the floor I can feel it and getting in and out of the car I can feel it. If I push down on my stomach while laying down I can feel it. I hope this doesn't sound too weird.

I did make a special appt. to go in to see my Gyn Oncologist because I automatically thought it was cancer related and he pushed on my stomach did a rectal exam and said he didn't feel a pelvic mass.

Has anyone else had this pain or something like it? Thank you so much for sharing with me.

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Unread 08-08-2004, 06:09 AM
I understand

what you are experiencing, Donna. I had TAH/BSO on Jan 14th and was found to have ovarian cancer. It will be 7 months on August 14th and I still have pains. Some days are better than others. This week, for example, I had horrible pains where the larger tumor was found (from my uterus to rectum). I often feel crampy and painful in the areas where my ovaries were. The last time I saw my oncologist in June I told him about it and he said it could take up to 1 year ( or longer) to heal. Every one is different. He sent me for an ultrasound because as he put it "I complained about pain" (By the way -he's the "best" around but has no bedside manners). The ultrsound come out clear -so he kind of told me to stop whining. I'm always afraid I may be having a recurrence. I have to go see him again Aug 31 (I actually was supposed to go in Sept since he's been away for over a month on vacation) but I called to move up my appointment. My incision is still quite sensitive but other women on this site are having the same so I'm quite sure thats normal. The pain and extreme fatigue is what I don't understand after 7 months postop. So I'm sorry I can't really help you -but I just wanted to tell you "You're not alone". I'm going to my appt Aug 31 and I'll whine some more! I also want my CA125 done -the last one I had was in April (it was good -6.3). My oncologist doesn't really think the CA125 is of any good. I hope you start feeling better and hopefully some other ladies will respond with more info for us.
Unread 08-08-2004, 10:17 AM

Did you ask the Dr. or did he/she mention a hernia? I have a hernia up in that area. Once in a while it bothers me and if I have a cold and cough it's awful. I also got some phantom pains after my first Gemzar last month and went to urgent care, but they found nothing. They're real pain for sure--but in an odd area and they came and went.
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Unread 08-08-2004, 10:25 AM
Can anyone relate?

I do not know what it could be but has your doctor thought of the posibility of a hernia?? Although I never had any pain with mine it could be a possibility. I wish you the best of luck in finding out what your problem is.

God Bless
Unread 08-08-2004, 02:48 PM
Can anyone relate?

He didn't mention hernia but I'm praying I don't have one. The thought of another surgery scares me.

I'm scheduled for a colonoscopy on Aug. 23rd.

What does a hernia feel like anyway? Is it pain located in one certain place like mine? Does it only hurt when you cough or bend?

Many Thanks,
Unread 08-08-2004, 10:21 PM
Can anyone relate?

I am not a doctor but could it be scar tissue? With the pulling and all. I had my gall bladder out last October,03 and I have problems with scar tissue. Of course the best thing to do is always check with your doctor if you have any problems. Hope your pain free soon. Take Care!

Unread 08-09-2004, 08:29 AM
Can anyone relate?

I had my RAH/BSO with lymph node dissection on March 12, 2004. I was dx with endo-cervical adenocarcinoma, stage 1B. At around 2 1/2 months, I had pain radiating across my abdomen for an evening.

About two weeks ago, I had pain in the upper abdominal area, in fact, the same area you talk about. I had it for two days, off and on. I also was having pain in my hips and lower back. That is gone also. I feel the pain in my hips/lower back was due to the radiation.
My rad/onc's nurse did tell me that there will be times when adhesions from surgery might "break free" causing unexplained pain. I am documenting these and will tell my gyn/onc about them at my next visit. (I forgot to tell him about the first one and the second one happened a few weeks after my visit).

Unread 08-09-2004, 10:53 AM
Can anyone relate?

I have something similar in my lower right abdomen. It's something I can definitely feel, and is something that tugs all the time. I am always aware of it. My doctor did a bimanual exam and found two things. One, I have scar tissue, which is what I'm feeling. Two, my intestines are twisted around funny in the connecting point between the small and large intestines, which is something that can commonly happen after surgery.

I have all sort of weird little pains -- some worse than others -- and I of course freak out whenever I have one. But when I can keep my head together, I do remember that my original cancer was not painful. It's of course something to have your doctor continue to check. But once you're intestines are taken out and put back in, and once you're cut upon, things inside change.

If the CT scan doesn't show anything, you may well just have weird scar tissue. Still, if you have symptoms and you feel something else is going on, do push your doctor for more tests. As Margaret321 said, the CA125 is reliable for many people, but not all. So we all have to watch our bodies more vigilantly than before.
Unread 08-09-2004, 02:45 PM
Can anyone relate?

A hernia feels like a bulge when you lift something or cough or strain. If the bulge stays there when you are upright and goes away when you push on it or lie down, then it is called an incarcerated hernia. It can cause pain at any of these times. I had a very large hernia that was causing pain and bowel problems so I had it repaired. Doctors often advise a wait and see attitude for small hernias unless they cause a lot of pain or become strangulated (don't go away when you lie down -- this is considered to be an emergency).
Unread 08-10-2004, 01:25 PM
Can anyone relate?

Yes, yes, yes, I have this too. I have a burning/ripping pain in my belly button area. I have seen two doctors in two days. They have no idea what it is. They are going to do a CT scan. It hurts when I sit. Feels okay when lay down and feels fine when I stand up. It is causing a problem at work because I sit at a computer all day.

Please private message me if you find out what this is.

Good luck sister.

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