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confused - another CA-125 test confused - another CA-125 test

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Unread 08-10-2004, 12:24 PM
confused - another CA-125 test

I went to see my dr. this morning and to discuss the results from the transvaginal I had done last mon. The dr. said the 6 inch complex ovarian cyst I had on left ovary DISAPPEARED and I now have a cyst on my right ovary 3 cm. Is it possible for a complex cyst 6 inches to disappear within a month? He did another CA-125. I will find out the results from that test this fri. The results from 2 weeks ago were 116. The dr. told me last week they would not rule out ovarian cancer. I am now looking for another gyn. for a second opinion. He said the pain and swelling I have around my ovaries and abdomen could be intestinal and suggested I have a colonoscopy done. I have swelling, pain, nausea, and vomitting. He also told me I could go back to my normal daily living activities like going to Curves, walking, and whatnot. Has anyone else heard of this and what did you do?
If the dr.wasn't concerned about ovarian cancer why would he do another CA-125? I can't get any straight answers from the dr. this time around.
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Unread 08-10-2004, 04:50 PM
confused - another CA-125 test

I would make an appointment with a gyn/oncologist for a second opinion. Take copies of all of your records, including the ultrasound reports. A gyn/oncologist is the specialist who can determine if what is causing your problems.

Unread 08-10-2004, 04:55 PM
confused - another CA-125 test

Hi Denton56
I am looking for a gyn/oncologist who takes my health insurance.
I spoke to another dr. this afternoon about the results of my latest transvaginal. He told me it is possible for a cyst that size to disappear if it was infected and we will see what the results of my CA-125 are that was done today. He offered to do another transvaginal at his office. I will call him and let him know the results of this test.
I have copies of all my results ready to go.
Thanks so much for your support.
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Unread 08-10-2004, 04:56 PM

It certainly is appropriate to get a second opinion, and if cancer may even be suspected, a gynecologic oncologist is the way to go. As for the second CA125, the Dr. may want to see what it is and do a comparison. But with your concerrns, I would think a consult with someone else would be in order.
Unread 08-10-2004, 05:00 PM
confused - another CA-125 test

Thanks Margaret for your support. I called my health insurance today to see if they cover a second opinion and they do. I just have to find a dr. who accepts my insurance.
i have copies of the results of the cat scan, ultra sounds, and blood work. I am waiting for the results of the CA-125 that was done today. I did speak to another dr. this afternoon and I feel a little better after talking to him.
Unread 08-10-2004, 07:18 PM
confused - another CA-125 test

My "cysts" seem to be bouncing from one ovary to the other also; had a 6 cm + septated cyst on my right ovary on ultrasound in mid June; saw gyn/onc a month later who ordered a CAT Scan of the Ab and Pelvis - it showed a 5 cm+ septated cyst but on my LEFT ovary. Docs are trying to say the ultrasound tech transposed sides but I know that's incorrect because I was sent for the ultrasound because of a fullness in the right ovary that my GYN found and the tech went thru everything step by step!!! I'm having a lap ovary and tube removal and vaginal hysterectomy in 2 weeks; tired of all of this crap; been following cysts for almost 10 years now and now with my history of breast cancer and being on Tamoxifen for 3 1/2 years and my uterus enlarged I just want it all out; not that I'm in a hurry for the surgery, I'm a nervous wreck, but it will kinda be a relief. CA125 is also elevated - 92 -- we're hoping for a false positive. They're also concerned about the possibility of not only an ovarian cancer but also the possibility of an endometrial/uterine cancer because it's enlarged - ugh, does it ever stop???!!!!
Unread 08-10-2004, 07:59 PM
confused - another CA-125 test

Hi Karen,

Yes, I totally agree with everyone. Please make an appointment to see an oncologist/gyno. I noticed that you live in Yonkers. I have a great doctor at North Shore in Manhasset if you feel like coming down to Long Island.

Good Luck in your search.
Unread 08-11-2004, 04:58 AM
confused - another CA-125 test

Hi Whatnow,
I am sorry you are going through so much. I had a TAH in Nov. 2003 because of numerous fibroids and my uterus was the size of a 5 month pregnant woman's. I had terrible problems every month with my period. The dr. left my ovaries in because "we like to preserve the ovaries so we don't send you straight into menopause", and a lot of good that did me. The pain is exxcruciating at times. I was scared to death when I had my surgery but it was well worth it afterward (now I laugh when I walk passed the pads and tampons WITH PLEASURE). If you need more time for recovery after the surgery, make sure you take it. I think I went back to work too early (right before tax season).
I will keep you in my prayers and hope that all turns out well for you.
Unread 08-11-2004, 05:02 AM
confused - another CA-125 test

Hi Rosalie,
Thanks for your offer. My health insurance only covers drs. in Westchester County, but I wish I could go to another dr. somwhere else. I don't have the money to go outside of my plan.
I am going to make a few calls to other drs. today and hopefully than can see me asap. I am very nervous about this whole thing.
If you're ever in Yonkers, I work at <admin. snip - no addresses, please!> I'm there mon.-fri. 9-5 unless I have a drs. appt.
Thanks again.
Unread 08-11-2004, 10:21 AM
confused - another CA-125 test

It is important to see a gyn onc. When a ca-125 is elevated in a premenopausal woman, a gyn onc may recomend several things - Mine recomended several ca-125 tests, timed around my menstrual period. Some women have cyclical evelations that may be due to endometriosis and other things.

However, because of the potential seriousness of ovarian cancer, this is nothing to fool around with. If you are doing the "watch and wait" approach - make sure the watching is done by an experienced gyn onc. I did - we watched and measured for about 2 months before a clear upward trend was exposed and then we opted for surgery. I have known other women that were able to watch and wait and avoid surgery.


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