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Pain and misery over 1 year on! Pain and misery over 1 year on!

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  #1  
Unread 08-12-2004, 07:01 AM
Pain and misery over 1 year on!

Had hyst just over a year ago and 2nd surgery this Feb for TVT and repair. Although both successful and no regrets I've never been free of pain since.
I've put most of it down to recovery and just got on with it but to be honest I am really achy and sore and fed up. Feels like the cuff is on fire, its very tender up there and have period type pains most of the time. I'm trying to keep a pain diary as I did when had my hyst and have noticed it does get much worse at certain times of my cycle not that I know where I am really. Cant find any relief except pain meds which I dont want to take anymore, sex is painful so is sitting and too much standing.
Anyway sorry to bore you all but I am waiting to see my gyn soon yet again which I am dreading cos he's not that sympathetic.
After reading loads of post and doing my research I think maybe its adhesions or something like that. I was not checked for endo during surgery which is what my GP suspected for years. Any advice will be greatly appreciated. Thanks girls.
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  #2  
Unread 08-12-2004, 04:53 PM
Pain and misery over 1 year on!

Hi,
I'm sorry you continue to have pain. As you can see from reading here, you are not alone my friend.

I deal daily with pain and swelling and a very sensitive belly. Too much activity can send me to bed for a few days. I too thought my problem was adhesions, but I had a lap two years ago and none were found. So if I do have them, they're doing a good job of hiding.

I've never been one to take pain pills, but I have learned that one must do what we have too, to continue to function. I've been on the duragesic patch for several years now < eek, has it been that long? > I also take darvocet for breakthru pain and phenagran for nausea.

There is nothing wrong with taking pain meds if needed. I don't think I would be sitting here now typing this message if I didn't have them, I would probably be in bed crumpled up in pain.

I'm glad you have an appointment with the doctor. If you don't like what this doc has to say or if he isn't willing to help you can always look for another. I've been to many docs since my hyst and some of them were real losers! However, I've also found a few gems. If I hadn't of continued to look I wouldn't have found those gems. For every door that closes another opens.

One thing I did that was helpful, was to get all of my medical records from my main docs that I had been seeing. I also typed up the short version of my pain, what I had tried, and what I felt made the pain better or worse. I took this to each new doc I saw. Some didn't give it a second glance, others were impressed that I had taken the time to do this and I think I was taken more seriously and they got a better picture of what I've been through.

  #3  
Unread 08-12-2004, 05:52 PM
HI there

I am also over one year on August 5th. Don't feel much like celebrating for sure! I wish I never had this surgery. I was once a very active person, who never had any real pain, this surgery has changed all that. I had a TAH/BSO so my pain is definetly NOT cycle related. It is a constant, dull ache, with a "pinching" pain on the left side where my ovary was bound down to the bowels. I feel the same as I did at three months post-op, it is very frustrating. When I told my GYN about this, he said "I moved alot around in there, it will take time", but a year is enough time! He also told me to do sit-ups, like that is gonna help anything! I know I should probably go have this checked out, but where do you go now? I have no gyn. parts left in me, so a GYN seems like a dumb choice, regular DR says "what did your surgeon say" so I just go on, but it is not easy. Since you have ovaries, maybe you should see a different GYN? (can't believe they didn't check you for endo during your surgery!) I know it's easy to say see someone else, but it isn't easy to do, going through all this crap with a new DR. Anyway, good luck to you, this road is not an easy one.
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