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2 years ago i had my hyster..would i ever do it again? 2 years ago i had my hyster..would i ever do it again?

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Unread 07-19-2004, 07:02 AM
regrets yes and no

Hi Sisters;

Do I have regrets. Yes on my daily 10 minute cry then I slap myself and force myself out of my cornor and put on my smile and I take on the day. I too feel like an old dog that has been kicked around so many times its not funny. Four surgeries later and another still pending and I am running from the specialist like a wild fire because of it. I have resigned my self now that I will be in pain for the rest of my life. The stroke that I suffered due to the HRT has complicated things when it comes to finding a hormone for me but they are very close. They may actually have something this week Yaaaaay then I can put some of those mind numbing an swiming hot flashes away for a while and well as I say the alzheimers brain fog that I get. I carry a note book around constantly now and my friends just cuckle and deal with it when I forget. Seven months later I am still on sick leave which is driving me around the ben and my doctors too cuase they say I am doing more than what I would be doing than when I would be doing when I was working. I volunteer alot at our local community centre and am involve with all the sports programs so that means I a wipping my body into great shape whick is producing a healthier me. On days when the fibro is really bad yes I have developed that since the hyst it is a real test then I just barge on with a smile and then suffer in silence when no one is looking. I am now on heart medication for migranes that can push me into a stroke another result of the surgery. Very rare form of complicated migraines I am told. joy. My bowel moves once every two weeks Thats the biggest joy and thats worst than labor and you can hear me scream all over St. John's I have taken to wearing pampers since this mess hence the surgery that they want me to have very weak bladder. But the one good thing that coam of it was that I did lose my job no I am not crazy for saying this. I was forced into a carrer change one that everyone else but me was seeing i needed to be into and had such a love and pasion for and alsways did in my off hours as a volunteer here at our community centre. So I applied for school and was accepted for Community Recreation and leadership. Hence the really good outcome. So good things do come out of the surgery. So ladies always look for the bright lining in the zipper and you will find one. If I can find one in my hell then you can too.

Your sister Denise.
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Unread 07-20-2004, 01:46 PM
What I'm learning . . .

Hi, ladies.

So often, I've found myself wondering if I'd do it all over again. The "what ifs" are enough to make you depressed in and of themselves. But, as Carmen so eloquently said, we do have to find the best us we can be. My hysterectomy was a horrible event in my life, what with post-op internal bleeding, bowel obstruction, adhesions, follow-up adhesion surgery, and, alas . . . adhesions again. Sigh. But, I'm not a 20-year old anymore and healing takes time - - lots and lots of time. For me, I'm learning to exercise more, eat better (I still cheat occasionally with cheese and meat but, hey -- I can't give up EVERYTHING!), and just generally be good to myself. I used to have all kinds of energy to be "social coordinator" for my group of gal pals and I've gone through bouts of guilt because it seems like I'm letting friendships go. I'm learning to let that go and realize that my true friends will still be around if I accidentally forget their birthday or if I have to say "no" more often to requests to go out with the girls. I'm also learning to quit comparing myself to all the other friends I've known who have gone through their hysterectomy with seemingly flying colors. I'm also learning to redirect the energy I've spent on envying those friends. Anyway, I've chosen to be my own best advocate. All the energy I've spent feeling sorry for myself and wallowing in my misery (not saying you ladies are but I WAS and still slip there sometimes) is being redirected into researching as much as I can about adhesions, what helps them, what makes them worse, etc. I'm working closely with my doctor to explore advanced laparoscopic surgeons that have expertise in this area. But, I'm doing the research and presenting the ideas to her for her review. I think we sometimes get in the mindset that we are our physican's only patient. I would get so frustrated because it seemed like she just wasn't DOING anything! But, once I redirected my energy into taking charge of my condition it was like she took a different turn and began to take me more seriously. Anyway, I'll end with this: for those of you with Adhesions, I've been going to a Massage Therapist who specializes in Rolfing massage techniques. Rolfing is a "connective tissue" technique that is more geared toward specific areas of pain - - it's not a relaxation massage and it's not for the faint of heart because it can be very aggressive. But, I'll tell you this - it's working wonders for me. Hope this helps someone. Hang in there, ladies.
Unread 07-28-2004, 04:44 PM
Regret hysterectom

Knowing everthing I know now, I would never have had my hysterectomy! I wish I would have found this website before my surgery, which was 3 1/2 years ago. Nothing but hormonal troubles and hair loss. I am still trying to figure things out without much success. I can not find anyone who knows much except for this site. My advice to anyone considering surgery is research and more research!
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Unread 08-01-2004, 01:57 AM
2 years ago i had my hyster..would i ever do it again?

Count me in on those with regrets! This surgery ruined my life.

Yes, we have to move on and make the best with our lives and bodies as they are now and I am doing that to the best of my ability. Still, the more I learn about hysterectomies and the aftermath the angrier I get. My doctor misled me completely, harmed me greatly and continues on his merry way still doing this to other women, while I am left with ruined health, finances and no sex life.

I am moving on with my life by educating adolescents and young women about what their ovaries REALLY do for them and that they are NOT disposable. Hysterectomies harm the ovaries, whether immediate or long term. Women need alternatives and better treatments. Everyday I read on here women who say they HAD to have a hysterectomy and then state the reason which is often a condition that could be treated without hysterectomy. Some of course really DO need them, but too many say there is "no choice" and have never heard of the choices they actually do have.

Even the ACOG recognizes the overuse of hysterectomies and the severe health consequences but this is a big machine that has been set in motion and will take many years before things can be changed.

When I was reading some of the other post on this thread I noticed several women who made list of their post hysterectomy problems and then said they didn't think it was related to the hyst but the symptoms they stated ARE common side effects. That's the problem; we are very complex creatures and few understand how everything in our bodies work together.

Did you know that you have to have NO special training outside of basic medical school to become a gynecologist? ANY med school graduate can declare him or herself to be a gynecologist and start practicing. One does not even have to be an M.D. just a D.O! What happens when only one single part of the body is focused on? THIS! This is what happens to us. We need doctors to look at the OVERALL picture. Fortunately there are some wonderful doctors who ARE doing just that. Unfortunately, they are few and far between.
This is, of course, my own personal opinion.

Would I do it again? NEVER!
Unread 08-02-2004, 01:42 AM
2 years ago i had my hyster..would i ever do it again?

Originally posted by Lucille in CA

Did you know that you have to have NO special training outside of basic medical school to become a gynecologist? ANY med school graduate can declare him or herself to be a gynecologist and start practicing. One does not even have to be an M.D. just a D.O!
Here is a description of the training required to become an Ob/Gyn in the US:
The education and training requirements for obstetrics/gynecology are set by the American Board of Obstetrics and Gynecology (ABOG) and include the following:

- Graduation from an approved medical school
- Completion of an OB/GYN residency program (minimum of 4 years in length) that is accredited by the American Council for Graduate Medical Education (ACGME)
-Rotations divided between obstetrics, gynecology, gynecologic oncology, reproductive endocrinology, and ultrasonography
-Experience in primary and preventive care role for the equivalent of at least 6 months of the residency, including inpatient and ambulatory care; diagnosis and management of breast disease and lower urinary tract dysfunction; performance and interpretation of diagnostic pelvic and transvaginal ultrasound
-Increase in patient responsibility with each year of training
-Serving as chief (senior) resident during final year of residency
-Board Certification

Once the above requirements are met, physicians are allowed to take the certifying examinations given by ABOG. Physicians who pass the examination are granted board certified status in Obstetrics and Gynecology, a pre-requisite to subspecialty certification.

If certified in obstetrics and gynecology after 1986, the physician must complete a recertification process every 10 years to maintain certified status. If certified before 1986, the physician can take a voluntary recertification process.
Source: http://www.womenshealthchannel.com/obgyn.shtml

And here is a statement about the training of a D.O. (Dr. of Osteopathy) in the US:
Osteopathic training in the United States is somewhat different to the United Kingdom. Ultimately Osteopaths in the US are completely equivalent to Doctors (MDs) in Law and every other aspect. Many Osteopaths continue and become surgeons and all are able to prescribe controlled medications etc.
Source: http://www.osteopathonline.com/osteopat2.htm

By nature, most medical training takes place on the job... that's why there are internship and residency requirements. NO type of MD learns their specialty in med school; GYNs are not unique in that respect. Surgical techniques, for example, are learned by first assisting a more experienced surgeon, and then performing the surgery while supervised by someone more experienced in the procedure.

My hyst was performed by my Ob/Gyn. Since meeting all the requirements listed above, she's also taken many opportunities to attend continuing education programs relevant to her specialty. I have the utmost confidence in her qualifications to perform hysterectomies and oophorectomies and to understand the long term ramifications of both... she is still my GYN and does my annual pap smears, prescribes my HRT's and has also treated me for other problems that have come up along the way. She is confident enough in her skills as an Ob/GYN to also understand her limitations; she will refer me to a colleague if something comes up that is outside her area of expertise. I do not think she is unique, but typical of the degree of competence I would expect from any of my DRs.

This has been a most interesting thread... (((Chris))), I love your attitude, and I agree with you wholeheartedly. Most of us posting in this forum have had our share of bad breaks and tough times, and many continue to suffer... we can either be bitter and angry, and let that bitterness and anger poison our hearts and prevent us from enjoying the lives we do have; or, we can accept what we cannot now change and move forward in the best way we can.

I can't say I'm thrilled with what I've been dealt over the past few years... nor am I sure it's all over with ... but some good things have come out of it, too. I have met some truly exceptional women through the experience. My life is a little richer for that.

Unread 08-05-2004, 01:56 PM
2 years ago i had my hyster..would i ever do it again?

I'm just over 2 weeks postopTAH/BSO no cervix and some of the posts here on this forum literally scare the bejeebies outta me. Such horror stories.

I'm so sorry to hear so many have had such a difficult time with their surgeries and recoveries. But now I'm scared outta my wits.

Did I make the right choice? Will I have these kinds of problems in the future? The hormones, the pain, the scar tissue, the swelling, the adhesions, the rectocele! OMG! What have I done!

I refer to Bizet Womans post at this point...

Bizet Woman wrote:

" No matter how bad off you may be, you surely must know that there are countless unfortunate, suffering souls walking this planet at this very moment, who would trade places with you in a minute. "

I ask.. with all the medical technology available nowdays, why is anyone suffering and in pain. I don't have a desire to live the rest of my life like that, but is it too late for me now. I am so terrified that I have made a mistake.

The excessive bleeding, the anemia, the huge uterus.. could I have 'got by' and not brought about further pain and suffering, or can I hope to look forward to a worse life experience by going through with the surgery.

The future is definately not so bright I gotta wear shades...

Take care sisters.. I hope you find a solution to your suffering soon. and I hope I never have to endure such pain and suffering as you have. God help us all.
Unread 08-05-2004, 07:15 PM
2 years ago i had my hyster..would i ever do it again?

I had my tah bso in June 2000 and if I knew then what I know now I never would had done it. But we don't and we can't go back so we are stuck where we are. no sex drive can't loose a pound and have work so hard not to put any on. hrt doesn't work for me. and I have tried my share of them. But I keep trying thinking something has to wor.
Unread 08-06-2004, 07:03 AM
Don't borrow trouble

Hey, ladies.

First of all, I'd like to respond to BuppiSis. I completely understand your fears. However, at 2 weeks post-op, I'm not sure The Road is the place for you to be browsing. You have sooooo much healing time ahead of you and most people have little to no issues with their hysterectomy. Or, if they do, the symptoms are so minimal that they barely cause a hiccup in their day. In any surgery, there's a chance for less than postive outcomes . . . this forum is the place for those of us who have experienced those. If you compared our experiences to the vast majority of the others who post on the entire site, we're in the minority. Plus, what one person sees as a completely "unliveable" circumstance, another sees as simply a bump in the road of life. Also, some seek an instant end to pain in order to regain quality of life, while others simply look for a way around it to maintain their quality. And, yes, in response to your statement about why anyone should have to live in pain with today's technology - - that does seem primitive, doesn't it? However, many of us have issues that would require heavy doses of narcotics to totally end pain. At least for me, I'll look for other ways around it. Again, I understand your fears, but try not to think on the negative too much at such an early stage of healing. Chances are good that you'll be in that majority group. The Post-op forum might be a more supportive place for you. Hugs!!
Unread 08-06-2004, 07:48 AM
2 years ago i had my hyster..would i ever do it again?

Hello All Sisters-
Yes I can sympathize with all of us who are having problems after the hysto. I am 39 and had mine on 6/24/04 for a large routine fibroid. Well turns out it was cancer (uterine leiomyosarcoma). So I wish I would have had the thing taken out earlier (they told me it was benign). Well, it only happens to about 1 in a million, so what's the chance it was me? Anyway, they recommended no radiation/chemo, just wait & see it it returns. I have pelvics every 2 mts. and CTScans every 3 mts. I was fortunate as the tumor was large but the cancer was small and encapsulated. And nothing was found in my D&C or end. curretings. But now I feel every ache & twinge is cancer-related. When I went to my reg. GYN for my post-op he said my right ovary was enlarged because I am ovaluating and not to worry its normal. Now I am worried about ovarian cancer. Also, I noticed my back hurts a little and my tummy looks bloated (but I also have 3 little kids). Anyway, I am wondering what kinds of symptoms you sisters had after 5 weeks post-op. Remember I just had my uterus/cervix removed. I am scared of this thing metastizing, if it does, my odds really are bad. Anyway, thanks for listening. I am trying to be really positive, but sometimes the worst gets to me.

God Bless Us All and may we all have super healing.
Unread 08-06-2004, 11:23 AM
2 years ago i had my hyster..would i ever do it again?


Thanks so much for the encouragement! I really needed that!

I can't help but browse all the wonderful forums here at hystersysters. I like to see how the preops, postops and those on the road less traveled are doing.

There is so much information, that it is a blessing for those of us who are thirsty for information. The posts are wonderfully informative. I enjoy most the postings that offer encouragement and support.

Blessings to all.


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